AllGoodHere
Well-known member
This is a play on words from occasins's post plus some results I've recently received from yet another specialist.The battle with PNHE symptomsAs PNHE warriors, as in life, we need to keep up our defenses (eat well, sleep soundly, exercise and keep fit physically and emotionally). Allowing emotions and drama to take over will cloud our thinking and affect our physical selves so some meditation and internal body work is essential (meditation of whatever kind, yoga, tai chi, qigong). Focusing on our goals is paramount (being a good friend, parent, worker, partner, etc.) rather than focusing on ourselves. Discipline to do this and not be side-tracked by the easier, self-indulgent parts of ourselves is probably the most difficult part of this battle.The last of the great expertsI think I am done with the doctors - the last test (full paraneoplastic battery) came back negative. I've been referred to all the best 'experts' around and feel like this is a waste of money and time now. The docs all agree that there is some problem but it is not life threatening and they just can't figure it out other than that. I believe that what I have is some lingering enzyme deficiency - yet undiagnosed - brought on by a combo of viral & emotional stress from taking care of my mom when she was losing it. As 'the problem/symptoms' do respond to a better diet and small amounts of supplementation am going to just go with that. There is a lot that medical science doesn't know yet but I figure, it's not going to kill me so I will work with it and around it. Just like people have done for centuries. At least this way I feel like I'm in with the flow of humanity in time LOL. The down side is that - to stay 'healthy' and have less pain etc - I have to be more disciplined. Not sure I can swing it some days but will definitely make an effort.Life is waiting. See you later.