Thanks for your replies.
I have had this for about 14 months now.
What I do not quite understand is that many on this board seems to believe that once you have been twitching for more than a year without other symptoms you are safe.
This is not at all true according to my doctor. You do not have ALS, but there are many other nasty things like the Paraneoplastic syndrome.
I am really depressed about this.
One question Swift_TaySwift20, did you get PNS ruled out after the chest X ray then?
What are your symtpoms?
Thank you so much.
Joanna
I have had this for about 14 months now.
What I do not quite understand is that many on this board seems to believe that once you have been twitching for more than a year without other symptoms you are safe.
This is not at all true according to my doctor. You do not have ALS, but there are many other nasty things like the Paraneoplastic syndrome.
I am really depressed about this.
One question Swift_TaySwift20, did you get PNS ruled out after the chest X ray then?
What are your symtpoms?
Thank you so much.
Joanna