Overcoming Anxiety Through Support

Amaranth

Active member
Hi everyone! I stumbled across this site a few weeks ago and it has been really helpful in calming my anxiety. I don't have an official BFS diagnosis, but my neuro and GP have said that nothing sinister is going on and I'm still trying to believe them.I'll start out by admitting that I have pretty severe health anxiety (hypochondriac). It began last summer when I had some family tragedies, but I won't go into details. I was pregnant at the time and started to experience panic attacks. I gave birth to my baby in November and was fine while I was in the hospital, but once I got home I started to have panic attacks again. I had terrible fears of having a stroke or blood clot NinaPost. Paralyzing fear! I started having hot/cold flashes, but I didn't know what it was at the time. I still don't know if it was because of hormones or if it was a result of the panic attacks, chicken or the egg I guess. I started having headaches about 5 days after she was born and then at 8 weeks I started getting buzzing twitches in my left foot and bug crawling sensations on my left shin. I was also very muscle twitches all over my body, legs, arms, abdomen, etc., but for some reason those weren't really scary for me. Either I chalked them up to sleep deprivation or they were just in the background while I was panicked from everything else. At Christmas I got a very bad sinus infection, took two rounds of antibiotics and an oral steroid. Mid-January we are still living in a 3 level condo on a busy street (lots of road noise day and night) with a baby in our bedroom while building a house (potentially 2 mortgages) and I am still up every 2 hours feeding her and no napping during the day. I then developed a terrible electrical shock, constant vibration in my left shoulder, upper back and spine. It was so intense I could not sleep for several days. It eventually diminished to the point of just feeling like a tingly, bubbly sensation along my spine that traveled, but it would flare up when I was stressed. Constant buggy crawling on my legs, but would also get a buzzing sensation randomly all over my body, but those would eventually go away after a few hours.End of March the electrical shock vibration in my back was so intense that I had my husband take me to the ER. My headaches had been non-stop since November so I was convinced I had a brain tumor. CT scan of brain and blood work was normal, referred to a neuro to check for MS. A couple of weeks later, neuro ordered brain MRI (normal) and also checked for lupus, vitamin deficiencies, anemia, etc. Everything normal. Told me she didn't suspect anything scary and that time, love, and patience could heal many things. Prescribed Xanax for panic attacks and told me to come back in 6 weeks. That was 4 weeks ago and we are now in our new house and settling in, getting a little more sleep now and things seem to be getting better slowly. Probably the most concerning aspect for me is that these sensory symptoms seem to be 90% on my left side, which only further aggravates my anxiety.So, first I want to thank everyone for being part of this forum and providing helpful information to people like me. Second, I'd like to know if anyone else is primarily affected by the sensory symptoms that seem to go along with BFS. Twitching is definitely secondary for me. I'd also like to know how common the electrical current sensation is and if there is any relief to be hopeful about! :) And, is lack of sleep common among sufferers? Here are my symptoms:1) Muscle twitching, all over body, but light in my description, sporadic2) Electrical current or vibration in left shoulder/upper back. Feels constant for 20 seconds, pauses for 1 second, constant for 20 seconds, etc. Most noticeable when I am trying to fall asleep.3) Bug crawling or buzz sensation in left shin, constant4) Buzzing across entire body, sporadic5) Tingling sensation in scalp that is intermittent6) Pins and needles in legs, mostly left, intermittent7) Grumbling or grinding sensation in my left hip/buttocks, intermittent:cool: Pulsing burning feeling in my upper lip, intermittent9) Bubbly, tingly feeling along left side of spine, constant10) Vibrating inside left leg/foot, intermittent11) Vibrating in left palm of hand/fingers, intermittent12) Tiny tremor-like feeling in right cheek, occasional13) Night tremors, wake up feeling like bed is shaking, occasionalThanks in advance!
 
I have the exact same story, gave birth and have been twitching like crazy for two years. I get weird things besides twitching, lots of vibratios, hot rush in one spot of my left leg, sharp aches, you name a twitch I have had it. I to went through a awful time worrying about not being here for my kids. I wasted precious time a d barely remember my baby crawling:(
 
Welcome to the community. There's no question in my mind that you are in the right place.To answer some of your questions: Yes, I suffer from most of the sensory symptoms you listed. I also have twitching, but sometimes its the sensory symptoms that seem to be more prominent with me. Many others here have lots of sensory stuff as well....quite common among us. As for lack of sleep, I don't consider that a BFS thing, but definitely for people with high stress and anxiety, which of course usually goes hand in hand with BFS.You seem to be well on your way to recovery by accepting the truth of your condition and believing your doctors. Keep the focus on what you know to be true about your symptoms and diagnosis, and try to control the urge to fear diseases you don't have. Master that, and you've mastered BFS!
 
Thanks so much for the reassurance! It's nice to know that I'm not alone with this, it's been a lonely couple of months thinking I was going mad! WellsFive, What is this hot rush like? I had something in left foot that I would describe as a hot flash that felt like someone was pouring hot liquid on me. It would last for 2-3 seconds and the reoccur every 4-5 minutes. Eventually the space between lengthened to several hours and it eventually disappeared. It's been gone for a couple of weeks now, but it was probably one of the more frightening things for me. Not sure why, maybe because it was so odd! I can relate to worrying about being around for your children. That was what sent me into a tailspin! Sorry to pepper you with questions, but do you work outside of the home? Right now I stay home with my daughter, which I think may actually be worse for me because I have no distraction for my idle mind. I'm contemplating going back to work, but at the same time I don't want to miss this time with my baby.JohnnyRocket, I don't think I worded my sleep question the way I intended. I was wondering if lack of sleep makes the condition worse. I feel like this was probably what set me off, if it wasn't the sinus infection or antibiotics/steroid that I took. I've just never experienced so much sleep deprivation in my life until the baby was born. It seems as though I get some relief from the intensity when I can sleep better, or maybe I just manage it better emotionally. I know for certain that my anxiety is sky-high when I am tired. I've had so many irrational fears of diseases that it's almost comical at this point. Some days I am convinced that my doctors have overlooked something. My husband has said to me in a joking tone, "Why do you think you are so special?" :) I am trying to reassure myself every day that the only thing that I have actually been diagnosed with is an anxiety disorder and I've lived through all of the other illnesses that I was convinced that I had!
 
Hi and welcome to BFS. I'm really sorry that you are having to go through all of this as apposed to just being able to enjoy your little one. All of this started for me shortly after I gave birth, but took a good year for things to come to a head for me to realize something was wrong. I went through a year thinking I was just depressed over what was a very traumatic C-section. As for all your strange sensory symptom, please let me warn you, get as much sleep as you can get. Take naps with your daughter when ever you can. Sleep deprivation alone can cause a myriad of strangeness all by itself, but if you throw in some good anxiety and stress, and some irrational thoughts, believe me, you have a recipe for disaster. Sleep is the one thing that made me feel like I had some control over the sensory symptoms and the twitches really, because they would both triple if I didnt get enough sleep.I was also not eating once all this craziness started and lost a ton of weight (fast) and I remember the ER doc telling me that a lot of my sensory issues could be coming simply from starving myself the way I was. I didnt want to, I just was so scared, I had no appetite at all, didnt even want to smell food. Not trying to bore you with my story, just wanted to let you know that there are several things that can bring on sensory stuff, and twitches for that matter. The worst thing about BFS IMO is the anxiety it causes or does anxiety cause BFS??? Who knows, I stopped asking those questions a long time ago, because no one really knows. To be honest there are still a lot of docs out there who have never heard of it or dont believe in it. My neuro refused to give me that as a dxs, therefor I got no dxs for all my twitches and sensory garbage. He looked at me like I was a nut job most visits, just shook his head and grinned alot. I could barely walk back then, my legs were so bad (tight muscles, tingling, cold water sen. hot water sen. and shaky as all get out) but he did not care on bit because all my tests were normal at the time. Will I ever go back to a neuro for more tests?? Nope, not unless I cant feel something or cant move something. Things are better, and I can promise you that things for you will get much better, but you have to find a way to eat rite, sleep rite, and not let yourself get depressed. Depression alone can cause a lot of this stuff. Some times when we are really anxious, we dont notice the the basis of our anxiety is the fact that we are depressed. I was in denial about this for a very long time. But once my mind calmed and I was able to take a step back and look at things, I realized I most likely was having post partum depression and just spiraled down from there to my BFS situation. But then again, who really knows. I still feel like BFS has a viral component because my husband and daughter were having alot of the same symptoms, just not to the same intensity that I was, thats still a mystery to me.So sorry I rambled, you just sound alot like me when all this was starting up and wanted to let you know that you are so not alone, and we will be here for you to help you get through this...THINGS WILL IMPROVE trust me.Take careRobynn :D)
 
Thank you so much Robynn! You didn't bore me at all, thank you for taking time to share your story! Sounds like we have a very similar start to this mess! :)I'm working very hard at trying to manage my anxiety and stress and I think it is helping some. The baby is starting to sleep better, although I think we are a long way from making through the entire night! I did have to stop breastfeeding about 6 weeks ago because I wasn't able to eat enough for both of us! I was having terrible headaches and lost quite a bit of weight. Thankfully I had some pregnancy weight to lose, but it's leveled off now and I'm eating a healthy diet, no caffeine and no alcohol, lots of fruits and vegetables and organic protein. I'm sorry you had such a terrible experience with your neuro, how upsetting! I have to admit I didn't like the fact that I was at the point of seeing a specialist, but thankfully she probably did the most good for me. She was very compassionate and understanding and really put me at ease. She wrote me a note as I left the office with a quote: "Thankfully time, love, and patience heal many things." Mary Haskell Ey. I try to think about that every day as I work through this.I had heard so much about NinaPost depression and had my husband on high alert because I thought that it would likely hit me given my anxiety. When I didn't have thoughts of harming myself or my baby, I assumed that everything was fine. I didn't realize that there are so many other ways for it to manifest. I would describe it as sever NinaPost anxiety. Oddly enough, I never had any obsession about the health of my baby, only my own. Again, thanks so much for your note! I look forward to interacting in this community and learning more about this crazy stuff! Feels better just to know that I am not an anomaly!
 
Amaranth, you are so very welcome, and I hope this board can help make this journey a bit easier to travel.Man, I looked at what all I typed to you last night, I really should not type past 1:00 a.m., had to go back and edit alot of typos :eek: Take care and talk soonRobynn :D)
 
My sensory issues are also mostly on one side. Please remember having a baby takes alot out of you, for a couple years! Your hormones are all over, sleep deprived- even when you you sleep it's a light sleep, not eating well usually, and emotionally draining. Even though it's a great time in your life, it's very hard. Hang in there.
 
Robynn, It must not have been too bad, I never noticed, or I was just too tired myself! :) It all made perfect sense to me!MsMaverick, thanks for the encouragement! You're right, I used to feel young and healthy and now I feel like I am 85! It's really been frustrating to watch all of my friends that had babies around the same time seem to have no problems at all. Of course maybe it just seems that way to me. Someone once told me to never judge my "insides" by the other people's "outsides." Have to keep reminding myself of that!
 
Thanks cenkay! I'm definitely working through it although I find myself with moments where I am not convinced it's all benign. The anxiety that comes along with this is really challenging.My original question was if lack of sleep causes BFS to be worse, although like you I found myself in both scenarios. I was so upset and anxious that I developed some pretty severe insomnia. For a period of about 6 weeks I only slept about 2 hours each night and it wasn't even restful sleep. It was awful because my baby had finally started to sleep longer at night, but I would just like awake worrying. Then I feared the morning because I knew how awful I would feel and the cycle continued. I used Lunesta for a couple of weeks to help break through it and I'm finally able to sleep again unassisted, if the baby cooperates! :)I noticed you said you watch the "telly" and then saw you are from London. My husband is from North Yorkshire, but has been in the US for 10 years. I got to visit London for the first time last April. Lovely place!
 

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