so i guess i'll make the obligatory its been 1 year post and I don't have ALS 
Its crazy to think but it has been a full year since things went wrong internally with me. I remember very clearly coming home one evening and suddenly feeling my hands and feet burning up...literally like they were on fire. I remember the horrible bee sting sensations hitting my body at random times in random spots. I remember the off and on headaches and horrible fatigue. I remember the bad back pains that just didn't seem to go away. I remember the horrible insomnia that began and has lingered. I remember my desperate trip to the ER after 3 days of no sleep and incessant nerve pains. These are bad memories and I'll be honest I wish I could say those experiences only made me stronger, but that's not the case so far.I've seen probably 9 doctors and 3 chiropractors\wholisitic practitioners over the past year. Had tons of bloodwork, MRIs, EMGs, and any other tests you can think of. I've tried multiple medications, spent too much money, and in the end I still don't have a diagnosis. That's honestly the worst and most embarrasing aspect of this. I have even asked if this was anxiety and multiple doctors told me they didn't think so but it was definitely an aspect to this. I've asked about BFS and one neurologist doesn't believe in it and the other said "sure if that helps you". I have multiple level spine issues that I can't get an answer on if they are the cause or just another symptom. Its been a crazy frustrating experience.Over the past year the only improvements I have seen were sharing experiences and ideas and theories with the people on this forum. Particularly TwitchBFS. He has done research and shared ideas and theories and experimented with different things and shared that along the way. At times I'm sure its overwhelming or even annoying to some but for me I have benefited. Going to a gluten free diet, avoiding caffeine, chocolate, or other stimulants, ditching heavy excercise habits, sea salt baths, sleep habits, etc....all of these things have helped make things manageable and able to resume life. They haven't been cures for me but they have helped me get some semblance of normalcy back.A year later here is where I am:Things that are better:Bee sting sensations happen very infrequently versus all day every dayno more headachesfatigue is lessI don't worry as much about ALS, MS, or other dreadful conditions killing me off soonmigratory joint pain doesn't happen every dayburning hands and feet pretty much goneThings I still struggle with:Muscle twitching 24x7 Muscle spasmsskin issues (acne, rash type issues, etc)anxietyinsomnianumbness in hands and feet on occasionsSpinal issues\pain neck to bottomI can honestly say its been the toughest year of my life...I am thankful though for many of you and for this forum.
Its crazy to think but it has been a full year since things went wrong internally with me. I remember very clearly coming home one evening and suddenly feeling my hands and feet burning up...literally like they were on fire. I remember the horrible bee sting sensations hitting my body at random times in random spots. I remember the off and on headaches and horrible fatigue. I remember the bad back pains that just didn't seem to go away. I remember the horrible insomnia that began and has lingered. I remember my desperate trip to the ER after 3 days of no sleep and incessant nerve pains. These are bad memories and I'll be honest I wish I could say those experiences only made me stronger, but that's not the case so far.I've seen probably 9 doctors and 3 chiropractors\wholisitic practitioners over the past year. Had tons of bloodwork, MRIs, EMGs, and any other tests you can think of. I've tried multiple medications, spent too much money, and in the end I still don't have a diagnosis. That's honestly the worst and most embarrasing aspect of this. I have even asked if this was anxiety and multiple doctors told me they didn't think so but it was definitely an aspect to this. I've asked about BFS and one neurologist doesn't believe in it and the other said "sure if that helps you". I have multiple level spine issues that I can't get an answer on if they are the cause or just another symptom. Its been a crazy frustrating experience.Over the past year the only improvements I have seen were sharing experiences and ideas and theories with the people on this forum. Particularly TwitchBFS. He has done research and shared ideas and theories and experimented with different things and shared that along the way. At times I'm sure its overwhelming or even annoying to some but for me I have benefited. Going to a gluten free diet, avoiding caffeine, chocolate, or other stimulants, ditching heavy excercise habits, sea salt baths, sleep habits, etc....all of these things have helped make things manageable and able to resume life. They haven't been cures for me but they have helped me get some semblance of normalcy back.A year later here is where I am:Things that are better:Bee sting sensations happen very infrequently versus all day every dayno more headachesfatigue is lessI don't worry as much about ALS, MS, or other dreadful conditions killing me off soonmigratory joint pain doesn't happen every dayburning hands and feet pretty much goneThings I still struggle with:Muscle twitching 24x7 Muscle spasmsskin issues (acne, rash type issues, etc)anxietyinsomnianumbness in hands and feet on occasionsSpinal issues\pain neck to bottomI can honestly say its been the toughest year of my life...I am thankful though for many of you and for this forum.