One Year of Twitching - Appreciation

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IamInsanetwitch

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All,I appreciate all the help I have received over the past year. This month will make the 1 year anniversary of my twitching. I have been able to deal with this pretty well since I received so much help from so many wonderful people on this forum. Johnny the Jet gets a special shout out. He has been so nice and understanding. I feel like I am beating this but I occasionally have set-backs. I'm having one. My twitching has decreased dramatically over the past year. Mostly, I ignore them. Recent finger twitches bothered me but they generally last 2-3 days tops. For the past two weeks, my left thenar has been twitching. Sometimes it is a big thumper and sometimes it is barely noticeable. It is important to note, I can see it and feel it; however, it is in exactly the same spot on my thenar muscle every time. Now, my mind is tricking me into thinking my left hand is showing slight atrophy. At times, the twitch does go away for several minutes and sometimes several hours but always comes back. This is the longest hotspot I have ever had. Today, I have been feeling some achiness in my hand with a little stiffness. If I had this particular twitch and was still experiencing twitching all over, I think I would feel better...strangely. This one spot only twitching is bothering me some. I'm in pretty good health and 33 years old. I'm a little concerned. Would love some peace of mind if you can help. Thank you.
 
Hey I'm new here although I have the title of hero I would say everyone here has been my hero helping me through this BFS crap !! My first twitch was 10 years ago, my thumb moved up and down on its own for almost a year when it was at rest but it went away... 6 years later my chin twitched for months on end on the exact same spot !! I then was more tuned into body wide twitching as it seemed more frequent ! 14 weeks ago roughly my tongue started twitching every 30 seconds it was constant !!! The exact same spot !!! It's still twitching but not as strong more as often as I could go 10,20 or 30 mins with no tongue twitch and other days or times it could go constant for a while but in general it's calmed a lot !Right now my tricep has twitched every 3 seconds pretty much for over a month with the odd break ... Today it stopped for a couple of hours I think ...My point is that they were all on the exact same spot ! I twitch from head to toe and my calves are particularly general spots of activity and I feet also !! I had a clinical, EMG & NCS all of which were normal, so if a guy can twitch that much at random and on the same spots and be normal we should try to put our health anxiety behind us ... I try hard and get the odd set back bit hey we are human and if health anxiety is our weakness or phobia we have to take the sucker pinch and get back up and get on with it !! We are all dealing with BFS ... You included !! Your fine after a whole year !! Twitching of any variety it's just a twitch and weather it moves or stays on the same spot is irrelevant ! Take carePaul
 
I had the exact same incessant thenar twitch that lasted for like 2 months. So did several other people here, it was really weird that we all had twitching thumbs/thenars at the same time. My acupuncturist freaked me out when he said it looked like it was smaller than the right hand. But I'm fine and you will be too. Acupuncture and diet change helped, or maybe it was just time. Do a search for thenar here and you'll see you're in good company.
 
Thanks to you both. I guess I am most concerned because I'm not having any twitching anywhere else currently and haven't for awhile now. This just popped up out of the blue and will not go away.
 
Just need a little reassurance again today. I feel like I am slipping backward into my fear spiral again. I'm fighting hard not to.1) If I have had this same twitch (and only this twitch) in my left thenar for two weeks to a little over two weeks now and I can still use my thumb like before, I can rest easy? I can still pick up things and move it like before...that's a good sign right?2) If I can feel and see this twitch, I'm good?Just freaking out a little that this twitch will not go away and I keep comparing my hands (I know...bad thing to do) and my left thenar is beginning to look smaller than the right. I keep telling myself that I am right handed so my right hand would normally look larger. I'm sorry to keep harping on this. This twitch is really rocking it today.
 
Please don't worry. I've had the same twitch near my left elbow since August, and when I went to the neurologist a few weeks ago, he could have cared less about it. The only thing he was interested in was my strength (which was fine). Be glad that you're only dealing with a hand twitch. I'm sure in time it will pass, and then you may get a new hotspot. It doesn't really matter whether the twitch stays in one spot for a while or spreads to other areas, if you can see it/not see it, if it twitches 24/7 vs. a few times a day. As long as you have no clinical weakness, you're fine. What's helped me the most through this BFS journey is working on my anxiety over the twitching. Try to move your twitching into the background. Assume you're fine unless you discover that you can't pick up your coffee cup. And don't study your hands for atrophy -- if you had true atrophy, you'd have weakness, and you sound fine to me! I wish you peace.Michele
 
For some reason when I get hotspots I don't really get the random all over twitches either. And sometimes I would get twitches I could see but not feel and vice versa. My neuro said it really made no difference as they're all benign with a clean exam(s).The main thing is that you're able to use your thumb and there's no weakness. Remember no one is symmetrical, that's not atrophy in your case. Also, you've been twitching for a year now. Even conservative neuros will say that 6 months of twitching and no weakness or changes means you can pretty much rule out ALS.
 
Thanks all,Just in the back of my mind is, "what if it has started now?" I know I had a clean emg and clinical but that was a year ago.I know I'm having irrational fears but like so many here...we know they are irrational but the "what ifs" still linger. I keep trying to tell myself...no weakness - no als.
 
Of course...then I think, "what if I am the exception?" I'm trying...I just guess I am messed up. If I could go back a year and stop myself from googling this stuff, I would be so happy. That moment has caused me such grief and fear.
 

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