I have posted about my symptoms each time when something popped up. I'll post now my whole story and would wish some input from others here.
Everything started last November. This means exactly 1 year has past.
My best friend was diagnoesd with MS. I became very anxious about this and thought i maybe have it also.
Having had a shower i wanted to blow dry my hair. I felt my hand weak. After a few days i was on my routine walk with my dog and i felt my leg somehow weak. I can remember i had tripped over while going with my dog on a walk.
I started fearing MS.
Some days later my back hurt really bad and i started getting the flu like symptoms: Fatigue tiredness etc.
I stayed in bed for some time. Then i started getting some sort of lightheadedness, vertigo. By this time i was sure i had MS.
My girlfriend visited me since i live in a different country then she does. At that time i felt my legs really heavy. I sometimes had the sensation as if i couldn't move my legs. Vertigo still there i visited the ER. There i young neuro made same standard test and told me that everything seemed ok. He mentioned i should go get a MRI to be sure.
I whole month had passed and the vertigo still persisted. Heavy feelings had gone away. My hand didn't feel weak any more and my legs where almost normal again. I visited a neuro i knew of being very good. He made many test and mentioned that he cant find anything wrong with me.
Some weaks after my neuro visit my whole body started twitching. I had pins and needles in my whole body, buzzing sensations in my ancles and fingers. Feet and arms that would get really fast numb when crossed or lied on etc.
At the mean time i had made an MRI of the Brain that didn't show anything wrong.
Since i had many disturbing symptoms i visited again my neuro. He made again his tests and said he doesn't think it is something important. However we decided to make an EMG because of my feet twitches which at that time (and until today) where 24/7. At that time i didn't know anything about ALS. This made me go relatively relaxed into the EMG testing.
The EMG detected the fasics in my feet. The doctor told me that they are nothing to worry about and i should stop worrying.
However since i had a bunch of symptoms i couldn't relax so i went and made an MRI of the neck. This came also back negative.
It now was May. I noticed that my feet would have tremble while doing some different jobs. I started thinking again about weakness. At that time i first realized what ALS really meant (since untill this time i would mix it up with Alzheimer).
Not having any diagnosis i tried to go on with my life and stop worrying (something i havn't achieved until now).
Symptoms i would experience where, trembling eyes => Thought that it was nystagmus.
Blurring of my vision from time to time => thought it was Optic neuritis
Shingles all over my body.
Pins and needles here and there. Sensitive when clothes touched my scin.
Severe headaches. I can remember that i was taking almost for a month the "Aspirin for migrains" every day. However the headaches persisted.
High blood pressure i also had (between 95-110 the low one and 145-160 the high one almost throughout the day)
During July i had some new symptoms, mainly tingling in my feet, burning in the soles, burning in my face, numbness like feeling in my jaw and face. All of them would come and go. Didn't stay long. I went on holidays to Greece (the country i grew up - however born in Austria with austrian parents) to meet my girlfriend. We went on an island. There i started getting dizzy again. Some nights while trying to sleep i would get the immediate need to stand up and start walking. My twitches whole body wide where of course again there.
I returned from my holidays. My dizziness still persisted. i again started having concerns about MS. Tingling here and there and some other minor stuff. I visited my neuro again he tested my strength etc. and mentioned he cant find anything. At that time my dizziness had faded away and my neuro could't detect any imbalance from my side either.
I got some tranqs since my neuro is of the firm believe that i have a anxiety problem.
Before starting the meds i started having a wird type of tremors. My whole body started having those tremors at the beginning during my sleep. They would wake me up. After a few days i got this tremors also during the day. It reached a point where i would feel them almost 24/7. This went on for a few days. During those days i got also shakiness in my hands while doing different stuff at home (eating, typing, etc.).
After me testing myself where exactly i would have these tremors i found out that my jaw and neck/throat would have them. My head was feeling them also. However none of my friends could see them (i neddn't say that all of my friends have started thinking i'm going crazy).
The first thing that went through my head was that i had parkinson. I had read that people with PD would also get twitches, dizziness and of course tremors. I couldnt do else, so i called my neuro during the night. He went a little angry on me and said: If you should have parkinson, which is more than rare in your age (i'm 25 now when everything started i was 24), wouldn't i have noticed it. I suppose he wanted to tell me if i thought he was incapable.
I started taking my meds/tranqs. Allmost after having the tremors for over 2-3 weeeks the stopped.
Then a whole new story started. My twitching went mad. I would get it almost over my whole body for 2 days. At that time a started thinking if i truley wre becoming mad. The twitches faded slowly away. I was getting some type of calmed since i was hoping that this would be it i would from now have no new problems.
However i started noticing my tongue twitching. At first only one-two times a day. I started pressuring my tongue with my teetchs, rubbing it, etc. The twitches went from bad to worse. I would get about 50 a day. I wrote about this here on the board. MAny told me i should give my tongue a brake and stop cheking it. So i stopped making different test on my tongue. This calmed the twitches.
Then i started having something as a tight throat. I noticed when eating some food would stuck mid way through my throught. No choking but some type of bad feeling. I noticed that i would here a clicking sound while swalloing. My fears of course where ALS (and to be honest still are). Not having problems big problems however with swalloing i try to convince ne that this won't be the problem.
Now for a few days i'm getting the type of perceived weakness many of us here have experienced.
Ok i'll stop now since it is becoming way to long. Would be glad to read any comments. I only want to sum up my fears.
MS->MS->ALS/Myasthenia Gravis->MS->Parkinson/MS->ALS/Parkinson/Myasthenia Gravis/MS
So one can definetily see an important thing. Now after a whole year of symptoms rather than having no fears or at least having some certain fears i have fears of having more diseases than at the beginning. I'm sure that a great portion of this can be attributable to Dr. Google. Having this board is one thing (a good one) but the rest makes one go crazy.
Everything started last November. This means exactly 1 year has past.
My best friend was diagnoesd with MS. I became very anxious about this and thought i maybe have it also.
Having had a shower i wanted to blow dry my hair. I felt my hand weak. After a few days i was on my routine walk with my dog and i felt my leg somehow weak. I can remember i had tripped over while going with my dog on a walk.
I started fearing MS.
Some days later my back hurt really bad and i started getting the flu like symptoms: Fatigue tiredness etc.
I stayed in bed for some time. Then i started getting some sort of lightheadedness, vertigo. By this time i was sure i had MS.
My girlfriend visited me since i live in a different country then she does. At that time i felt my legs really heavy. I sometimes had the sensation as if i couldn't move my legs. Vertigo still there i visited the ER. There i young neuro made same standard test and told me that everything seemed ok. He mentioned i should go get a MRI to be sure.
I whole month had passed and the vertigo still persisted. Heavy feelings had gone away. My hand didn't feel weak any more and my legs where almost normal again. I visited a neuro i knew of being very good. He made many test and mentioned that he cant find anything wrong with me.
Some weaks after my neuro visit my whole body started twitching. I had pins and needles in my whole body, buzzing sensations in my ancles and fingers. Feet and arms that would get really fast numb when crossed or lied on etc.
At the mean time i had made an MRI of the Brain that didn't show anything wrong.
Since i had many disturbing symptoms i visited again my neuro. He made again his tests and said he doesn't think it is something important. However we decided to make an EMG because of my feet twitches which at that time (and until today) where 24/7. At that time i didn't know anything about ALS. This made me go relatively relaxed into the EMG testing.
The EMG detected the fasics in my feet. The doctor told me that they are nothing to worry about and i should stop worrying.
However since i had a bunch of symptoms i couldn't relax so i went and made an MRI of the neck. This came also back negative.
It now was May. I noticed that my feet would have tremble while doing some different jobs. I started thinking again about weakness. At that time i first realized what ALS really meant (since untill this time i would mix it up with Alzheimer).
Not having any diagnosis i tried to go on with my life and stop worrying (something i havn't achieved until now).
Symptoms i would experience where, trembling eyes => Thought that it was nystagmus.
Blurring of my vision from time to time => thought it was Optic neuritis
Shingles all over my body.
Pins and needles here and there. Sensitive when clothes touched my scin.
Severe headaches. I can remember that i was taking almost for a month the "Aspirin for migrains" every day. However the headaches persisted.
High blood pressure i also had (between 95-110 the low one and 145-160 the high one almost throughout the day)
During July i had some new symptoms, mainly tingling in my feet, burning in the soles, burning in my face, numbness like feeling in my jaw and face. All of them would come and go. Didn't stay long. I went on holidays to Greece (the country i grew up - however born in Austria with austrian parents) to meet my girlfriend. We went on an island. There i started getting dizzy again. Some nights while trying to sleep i would get the immediate need to stand up and start walking. My twitches whole body wide where of course again there.
I returned from my holidays. My dizziness still persisted. i again started having concerns about MS. Tingling here and there and some other minor stuff. I visited my neuro again he tested my strength etc. and mentioned he cant find anything. At that time my dizziness had faded away and my neuro could't detect any imbalance from my side either.
I got some tranqs since my neuro is of the firm believe that i have a anxiety problem.
Before starting the meds i started having a wird type of tremors. My whole body started having those tremors at the beginning during my sleep. They would wake me up. After a few days i got this tremors also during the day. It reached a point where i would feel them almost 24/7. This went on for a few days. During those days i got also shakiness in my hands while doing different stuff at home (eating, typing, etc.).
After me testing myself where exactly i would have these tremors i found out that my jaw and neck/throat would have them. My head was feeling them also. However none of my friends could see them (i neddn't say that all of my friends have started thinking i'm going crazy).
The first thing that went through my head was that i had parkinson. I had read that people with PD would also get twitches, dizziness and of course tremors. I couldnt do else, so i called my neuro during the night. He went a little angry on me and said: If you should have parkinson, which is more than rare in your age (i'm 25 now when everything started i was 24), wouldn't i have noticed it. I suppose he wanted to tell me if i thought he was incapable.
I started taking my meds/tranqs. Allmost after having the tremors for over 2-3 weeeks the stopped.
Then a whole new story started. My twitching went mad. I would get it almost over my whole body for 2 days. At that time a started thinking if i truley wre becoming mad. The twitches faded slowly away. I was getting some type of calmed since i was hoping that this would be it i would from now have no new problems.
However i started noticing my tongue twitching. At first only one-two times a day. I started pressuring my tongue with my teetchs, rubbing it, etc. The twitches went from bad to worse. I would get about 50 a day. I wrote about this here on the board. MAny told me i should give my tongue a brake and stop cheking it. So i stopped making different test on my tongue. This calmed the twitches.
Then i started having something as a tight throat. I noticed when eating some food would stuck mid way through my throught. No choking but some type of bad feeling. I noticed that i would here a clicking sound while swalloing. My fears of course where ALS (and to be honest still are). Not having problems big problems however with swalloing i try to convince ne that this won't be the problem.
Now for a few days i'm getting the type of perceived weakness many of us here have experienced.
Ok i'll stop now since it is becoming way to long. Would be glad to read any comments. I only want to sum up my fears.
MS->MS->ALS/Myasthenia Gravis->MS->Parkinson/MS->ALS/Parkinson/Myasthenia Gravis/MS
So one can definetily see an important thing. Now after a whole year of symptoms rather than having no fears or at least having some certain fears i have fears of having more diseases than at the beginning. I'm sure that a great portion of this can be attributable to Dr. Google. Having this board is one thing (a good one) but the rest makes one go crazy.