One Year of Crippling Symptoms

[smithylab]

So It's been about a year now that all of this cr*p began. I wouldn't say I twitch 24/7, more like 2/7 which is not too bad. The problem is that I have many other symptoms like pain, buzzing, jelly legs, etc. A big concern of mine right now is my right arm feels a bit heavy, has deep twitching on my bicep, shoulder, hand, and elbow. I also have a lot of pain in this arm and my fingers as well. My ring finger on my right hand feel very achy and my whole hand feels stiff--pre-cramp feelings. This kind of stuff still get's to me every time I think I am making progress. Even though I have gotten better since this all began, I am not in a place of peace yet. I just began seeing a therapist for my Health Anxiety, so hopefully that will help me improve. I am about 70% better mentally and physically, I would be happy to get to 90%. ) Oh and I still have never had and EMG, nor have I seen another doctor since the start of this all. Thanks for reading,Jay

 

[atygrabelle]

Well i've been doing 10 years. . .and still am prone to anxiety and worryso. . .been thereIts hard to say about symptoms. The fun of BFS is the hyperawareness of every feeling. . . hmm this feels heavier, hmm this feels this way, hmm this. . .it can really go on forever

 

[Fjordian]

Heey Jay, it's good to hear from you again. All your current symptoms sounds so familiar to me. I also have some bad days now and then with flare ups but overall it is much better than last year.In general I'm around 70/80% which is acceptable for me as I know where I came from. And who knows... some day we will be 100% again, together we will beat this crap.

 

[JohnnyRocket]

Jay-Its great to hear you're making strides. Its fairly normal at 1 year to still have anxiety over our symptoms, as you do. You've isolated the problem and are addressing it, so props to you.Thanks for dropping in!

 

[GHayes420]

Nice to hear from you Jay. As the distinguished Jet explains, its totally normal to still have doubts at your time frame. You are self aware of your anxiety and that is a great first step. EMG not needed. You are gonna be just fine.

 

[Gloria123]

I do agree that we're so hyper-aware of our bodies, because of our anxiety. I get that from time to time, where I feel like my right hand isn't working properly and is weaker, but then in subsides (especially if I'm not thinking about it). Hang in there, Jay - you're making great strides, trying to take care of your health anxiety. It stinks that this happened to all of us, but it could be so much worse, and we have each other to lean on! Let's just hope our reality shows stick with the normal cat-fighting and stay away from awful diseases! (LOL...)Mitra

 

[smithylab]

Thank you all so much for the wonderful replies, you all are such awesome people.GraberC: Wow! 10 years seems like such a long time, but I'm glad you are still doing well..even with the anxiety and worry. You are exactly right, it's the hyperawareness that get's me every time!Fjordian: It's so great to hear from you!! You have been such a help to me from the beginning, and I'm so glad that you are doing well. You're right, we can do this..even if it takes longer than I'd like or want.Johnny: I'm so glad you are still around too, I will always appreciate your straight shooting no BS way of addressing the problems we face on here. At times I never wanted to hear it, but it really did help me put things into perspective so thank you so much for that!!Greg: So nice to see you post! You posting makes me feel loads better, because I know you've had your fair share of severe symptoms, yet you are still here on the community where you belong. I hope you are doing well.Mitra: Yes, we can only hope next season won't throw us for that loop again. You're so right, things could be a lot worse. Health Anxiety sucks, but it could be a lot worse.Thanks again, you folks sure brighten up a Gal's day!! )