One Year Evaluation: Well Done!

[ronmanfred]

One year evaluation, all well.I haven’t been on the site lately and I just wanted to give an update, also for all the newbees that might be going through a rough time (I am a doctor myself and 53)). About a year ago I started with a constant twitch in my right foot arch, after a few weeks spreading all over my legs and eventually affecting all muscles in my body with ever changing hot spots. For details, see my earlier posts. You know the drill: fear, neurologists, EMG (which showed only fasciculations), Cognitive Behavoural Therapy. First of all, I still twitch !!. Not so intense as in the beginning, and I can sit still now again and read a book ! Still always a hot spot here or there. I was in New York last week on a short holiday trip and had a twicthing right buttock for a full day (probably because of walking all day) and the day later a twicther for a day in my left deltoid. Besides that there is always the popcorn throughout the body. My right foot arch I don’t feel anymore, but when I watch it (incidentally, I stopped monitoring) I see it still twitches !.I still play tennis, ski, walk for two hours. I have no weakness or atrofy, but I do have painfull and burning muscles in the nek/shoulder area. This however does not limit me in tennis or any other sport.So after a year I still have symptoms, luckily not so severe as in the beginning, but definitely still there. I have put aside the thoughts about disastrous diseases, they would have shown themselves by now. I see my symptoms now as an expression of probably an autoimmune disease like fibromyalgia etc. With these diseases you can’t find anything either in lab or other testing. I hope this mail reassures especially the newbees. I will keep reading the posts form time to time and give another update in 6 months. Ron

 

[rumzcaneconundrum]

Ron, Last week, I had my two year anniversary. The same for me, I still twitch, but my emotional component to this is better. I don't have any weakness, occassionally I look at a spot and say to myself, is that atrophy. I quickly wheel myself back, and ignore it. I don't look for things anymore.I do believe after two years, the possibility of anyting really bad is going away, and trying to move on in my life.So congratulations to you.Terri

 

[fuzzyjuly]

hi! Nice to hear from you. It's always nice to read something from a long time member. I am glad that you are doing well.

 

[SirTrouserz]

Congratulations Ron! That's wonderful. Great post. You have always been so helpful to everyone here and your one year update should be very reassuring to all the new people on the site struggling with understanding this condition.

 

[DonJose]

HI there and thanks for your encouraging post. I have been twitching for close to 7 months. I have Hashimotos autoimmune thryoid and my twtiching started with that. I too think there is a connection to fibromyalgia and like you, I have the burning pains in my shoulder and sometimes in my arms.So glad to hear you are doing well and you haven't gotten lost in these stupid twitches. I am trying to do the same.Linda

 

[TwitchMeSweetheart]

Just passing one year myself. Right there with you. I twitch about the same, some days worse, some days better. The real key is to just stop thinking about it and move on. It sounds simple and when I just started no one could tell me that but that is it in a nutshell.Part of that is not coming here as often.

 

[InkedMama]

I actually am past the one year and I am finally gonna bring myself to POST that and not wonder if this new set of twitches I have had the past few months is "new" and not like last time tho it feels the SAME! I had my first round of twitching lets seeeee Oct 06 til Feb 07.sooo 18 months now! I had a HUGE break through out last spring and summer. If I had twitches, I surely didnt notice them til almost 4 months ago when they struck again. I keep reminding myself...this is the SAME THING..I did this LAST time. Not one thing is different except stupid me GOOGLED this time. So yeah if you want to count me in from last October. I am a 18 month twitchette ....If you only want to count me in this time..I am a 4 months in April twitchette!!!Its been rough this past time b/c I read to much!!! , but I am getting better ...and everyone ELSE will TOO!