beensuggested
Well-known member
Well, today is the day. One year ago today I developed crampy achey legs that progressed into odd weak sensations and then twitching in the legs and then twitching all over by December 14th. What I asked from Santa last year was for it not to be anything terrible 
Needless to say the weakness and the pain and the twitching all got worse including odd feelings like cold water being poured down my legs as well as a plethora of weirdness. I had my dear friend and GP tell me it was nothing, nearly drain my of blood to run tests - as my husband says I am unable to not ace tests so naturally they were all normal. I saw a dear friend who is a neurologist who didn't discount my symptoms or the sensation of weakness but couldn't find anything clinical - again I aced the tests, and for those of you wondering what I look like, if you open the dictionary to the word "normal", I do believe Mr. Webster has recently pasted my picture there 
The neuro didn't do an EMG because he said he has always liked me and still likes me way too much to put me through that test to have it be....ok everyone together....NORMAL. I started to look at this site in my desperation to believe that I wasn't dying or going to be horribly disabled. I eventually got my nerve up to post 'cause believe it or not I am not really an "internet chat" type o' gal. I found some wonderful advice and information and above all else people, friends here that helped me right my world and put there where it belongs. I have been doing well and I have also tried very hard to "give back" for all the help and support I have received.
So, one year later, I wondered how I would mark this event. And I can tell you that in celebration of this auspicious event....I have chosen to suffer a full flare! Granted it is not as bad as last year, but I can tell you I am "anxious". I am crampy, achey, my legs feel a little weak and wobbly. I have some of the ice pik type pains in my ankles, I am twitching strongly and my legs feel almost like they want to fall asleep although they are not numb - the true clinical description of parasthesia.
I am seeing patients today, but would really like to sit on the couch with a book and feel a little sorry for myself. Then I think I should get that EMG. Then, I remember how awful last year was and how I never want to lose myself like that again. I also think about my Dad, who by the way is doing quite well. So....in honor of my one year anniversary, I am going to repeat my Dad's words and take them to heart...I will not BE sick because I am NOT sick. I will not dote on this nor lose sleep over it. I will not let this take away any of the things I have gained. I am going to have a brief pity party - no cake, and get on with it. But feel free to let me know that all of this is entirely NORMAL (LOL) for BFCS
Smooches,
Kit
Needless to say the weakness and the pain and the twitching all got worse including odd feelings like cold water being poured down my legs as well as a plethora of weirdness. I had my dear friend and GP tell me it was nothing, nearly drain my of blood to run tests - as my husband says I am unable to not ace tests so naturally they were all normal. I saw a dear friend who is a neurologist who didn't discount my symptoms or the sensation of weakness but couldn't find anything clinical - again I aced the tests, and for those of you wondering what I look like, if you open the dictionary to the word "normal", I do believe Mr. Webster has recently pasted my picture there The neuro didn't do an EMG because he said he has always liked me and still likes me way too much to put me through that test to have it be....ok everyone together....NORMAL. I started to look at this site in my desperation to believe that I wasn't dying or going to be horribly disabled. I eventually got my nerve up to post 'cause believe it or not I am not really an "internet chat" type o' gal. I found some wonderful advice and information and above all else people, friends here that helped me right my world and put there where it belongs. I have been doing well and I have also tried very hard to "give back" for all the help and support I have received.So, one year later, I wondered how I would mark this event. And I can tell you that in celebration of this auspicious event....I have chosen to suffer a full flare! Granted it is not as bad as last year, but I can tell you I am "anxious". I am crampy, achey, my legs feel a little weak and wobbly. I have some of the ice pik type pains in my ankles, I am twitching strongly and my legs feel almost like they want to fall asleep although they are not numb - the true clinical description of parasthesia.
I am seeing patients today, but would really like to sit on the couch with a book and feel a little sorry for myself. Then I think I should get that EMG. Then, I remember how awful last year was and how I never want to lose myself like that again. I also think about my Dad, who by the way is doing quite well. So....in honor of my one year anniversary, I am going to repeat my Dad's words and take them to heart...I will not BE sick because I am NOT sick. I will not dote on this nor lose sleep over it. I will not let this take away any of the things I have gained. I am going to have a brief pity party - no cake, and get on with it. But feel free to let me know that all of this is entirely NORMAL (LOL) for BFCS
Smooches,
Kit
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