Ahhhh one of those weekends. Saw neuro 3 weeks ago Monday- or well maybe 2 weeks ago Monday. Past strength test...normal reflexes all symetrical and equal. Random, hit n runs (twitches) some I can see in the thumb pad, some I that hit fast that I cannot see...No really hot spots except maybe the eye...etc. Basically my twitches appear ANYWHERE head to toe. I am having one of those doubtful days today- that maybe my neuro missed my strength/weakness etc. I know alot of neuros that do NOT believe in the SLOW ONSET ...and they totally dismiss it. I dont know one way or another If my neuro believes it or not, didnt ask...but she was so sure of her self that I was fine she didnt even want to give me a EMG unless I WANTED IT b/c she said...that I DO NOT HAVE ALS but BFS..(altho clinically she could NOT see any fasics..) she believed in what I was describing were that.How many of you have had their fasics disappear at the neuro visit? How many of you got the all clear w/ out a EMG? What are some of the time frames your neuro has given you that WITHOUT CLINICAL weakness and just twitches- Your out of the woods..OMG i cant believe I am sitting here asking these questions but...this is why were all here , right? Support. .. Even if you have to hear the same thing over and over again. My twitches have REDUCED DRAMATICALLLLY from the get go. I keep telling myself I have had them before...(18 months ago or so BUT I keep wanting to start these over as new, b/c the other ones WENT AWAY)..I remember feeling the same thumps and hit n runs...but I never noticed any in my neck or did I? I just didnt pay a lot of attention to them BECAUSE I wasn't scared of anything @ the time. Now for 4 months now with this round..I AM FREAKED- but getting better.Dee DeeJUST NEED SOME LOVE N SUPPORT!!!!!!! lol
One of Those Doubtful Weekends
- Thread starter InkedMama
- Start date
D - Stop it!! You dont have als. You're pregnant, very tense, a little afraid, and, of course, twitching. Your twitching is benign. You are focusing on your body because of the stress about everything...this is what we do...you can look at your body, think about it, touch it...that's why you have transferred your anxiety there. Relax, you are well, the baby is well, and life will be new and very fulfilling...
GolferGalaxy
Well-known member
Dee Dee,As you know I had an EMG done about 6 weeks ago and it was clean. I didn't ask many questions at the time. Basically, once I heard it normal I was relieved and didn't ask any questions. Anyway, I had a follow up visit with my neurologist on April 12st (two weeks ago). I asked additional questions regarding my EMG. He indicated that there was nothing picked up on my EMG. No fasics, no anything. I also asked him about the time question. He said the 8 months is a really, really long time. He emphasized that people with als notice a significant symptoms/signs intially. It's not subtle. He didn't say anything like after such and such months you are all clear. He was so confident that this is not ALS that I don't even think he needed to address it. Remember, you got a similiar response your Neuro. Also, my neurologist did a fellowship at an ALS clinic and worked with over 300 patients. I hope this helps, as I understand what this roller coaster of emtions is like. I still battle these good and bad days. Like you said, this is what this forum is about...support.CDC
Hey CDC I am 8 months into twitching this week. Your post helped me! I have just seen my GP for this and he tells me it is benign. But, of course I still worry. My twitching is much better than when it first started, but still there. I am beginning to think it will be with me forever. <sigh>Thanks for posting.Linda
cindyandco
Well-known member
Dee Dee: It is so easy to let the physcial stuff get amplified when we are scared. This morning, my tongue was twitching a little---make me feel scared. Went to work, got busy, and I can't remember feeling it twitch at all. Now, I've home for a few minutes and all of a sudden, I notice a little twitch-----good grief!!!! I don't know why I do that. I know just enough about ALS to scare the crap out of me, but not enough to know when the symptoms are nothing. I wish I had never heard of it. I have been twitching since early November--starting on 7 months and my docs still are telling I'm fine. Hang in there----better days will come again.Cindy
jokercrisp
Member
I agree with MarksmanS, its annoying as HELL, but benign. You are sooooo far in the clear with your timeline....I saw my Neuro the other day after 7 months of twitching, had another normal clinical exam, he kinda chuckled, smiled and said, "I think youre gonna be ok, see you in 4 months." I wouldnt worry, I still have my hit and runs and bouts of weird tingling, but trust the doc, get someone to help with your anxiety, stay off the internet(maybe even here.......) and get ready for a BIG CHANGE in your life. Best of luck as always with this and everything thats coming up for you.B
Lovely--If it's any comfort, I think nearly everyone here has had those nagging doubts after being told they're OK. I've had more strength tests in the last month than I can remember--all good, and done for my back problem--but this weekend, for the first time ever, the area between my right thumb and forefinger twitched. Just a couple of times, but it stopped me in my tracks. Now what, I thought. I had to repeat in my mind everything the neuro and the neurosurgeon told me--doesn't matter where you twitch, no weakness or wasting, it's benign. I had a clean EMG on both arms in December, too. And, of course, my hand stopped twitching in a few minutes. I hit 7 months two days ago; I sincerely believe that if I brought "it" up again to my neuro that he'd toss me out of the office. Days like this will come and go, hopefully with less frequency--but you're fine. Listen to your docs, not your fears. And once your baby arrives, you'll be too busy to notice the twitching! Hang in there and don't worry about anyone getting tired of you--this forum is meant to help folks through "days like this."Mark
paulrational
Well-known member
I was at your stage of twitching 18 years ago. Im still walking ,talking and generally being a pain in the ass to all i know but im still around twitching and twitching a thousand times worse than you are by the sounds of it.YOU HAVE NOT GOT IT !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!no way.But your worries are typical so youll always get support here.