No Signs of MND: Examined in Salvador

Nocturniscope

Well-known member
Yesterday I went to the most famous neurologist on my city (Salvador/Bahia/Brazil). Have spent much money because he does not accept health insurance plans.He examined me and said that I would be a very good model of normal reflexes to be shown to his students on university. That I am pretty strong and have NO signs of motor neuron disease. Them he saw my fasciculations (I was on a very bad day), my fingers where jumping non stop, the slow pulse twitch was there. He saw my 4 normal emgs and asked me why I was still in doubt my problem is benign.Then he told me he has widespread BFS and that he had the ALS fear for much time. That he is now 60 years old and he is still suffering from BFS. That he feel fatigue, pains, myoclonic jerks, fasciculations but he is still strong and can do everything he could before BFS started. Them he told me that I have BFS too and that phenytoin is a good treatment for it.No doctor before said to me I had BFS. This is the first time I was diagnosed that way by a neurologist. What I was hearing before was that It was everything on my mind, and the only thing I had was anxiety.He talked about BFS as a disease, a disease that is benign but hurts.
 
Yes, I usually get one or two quick-hit pop twitches in my chest/diaphragm area right after I sneeze or cough.Think it's pretty normal with BFS.-Ant
 
Yeah that's what I've been hoping too. The more I sneeze, the more my ab muscles get a workout. I figured in three years I'll look like Brad Pitt in Fight Club. Wish me luck. :D)
 
Great news that your neurologist gave you such reassuring advice and this is all the more valuable because he himself suffers with the condition - sounds like he understood your worries because he has had the same fears too. And BTW I also get the diaphragm twitch and kind of like the weird sensation too!CheersSimon
 

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