DCinnerLynx
Member
...and no one responds.
What's up with that?
What's up with that?
No Response to Support Requests
- Thread starter DCinnerLynx
- Start date
EyeoftheWild
Well-known member
Good Morning Linxminx:
Your plea has been heard.
) It seems like you are more concerned with Fibromyalgia than BFS; do you twitch. Yes I know, we are a shamelessly bigoted lot and are prejudiced against any who don't fasciculate. 
I have not had the snapping joint issue although there are quite a few here who have. I also do not really suffer from joint pain, thank goodness, so I am perhaps no help to you there.
What is interesting is that our body responds to the same thing in a myriad of ways. Stress for example can cause any number of health complaints, not least of which may be BFS. You suffer from health anxiety and so your body is reaching out to you to say, "hey, linxy whats up." I know that before I got BFS that I twitched once in awhile. Once the pressures of my life built to a head the twitching became the conduit for this pressure, an escape valve if you will. Of course, at the time I didn't see it like that, I thought I was dying. This is not to say that it is all in our heads. The body and the mind are so intertwined as to make them inseparable. However, I believe that if we can deal with the mind issues that we have a much better chance at having the physical symptoms abate.
In our so called modern day we have less time for ourselves than we ever did. Despite all our great inventions to make life easier it has become more complicated and busy. How ironic.
The magic in life is as it always was, that is the recognition of life as magnificent and that the world we inhabit is a miralce of nature, God......! You were not shunned on purpose but rather the good people here were unsure how to respond to your queries. I, for one, welcome you my fellow earth traveller and look forward to further posts.
Cheers,
Basso
Your plea has been heard.
) It seems like you are more concerned with Fibromyalgia than BFS; do you twitch. Yes I know, we are a shamelessly bigoted lot and are prejudiced against any who don't fasciculate. I have not had the snapping joint issue although there are quite a few here who have. I also do not really suffer from joint pain, thank goodness, so I am perhaps no help to you there.What is interesting is that our body responds to the same thing in a myriad of ways. Stress for example can cause any number of health complaints, not least of which may be BFS. You suffer from health anxiety and so your body is reaching out to you to say, "hey, linxy whats up." I know that before I got BFS that I twitched once in awhile. Once the pressures of my life built to a head the twitching became the conduit for this pressure, an escape valve if you will. Of course, at the time I didn't see it like that, I thought I was dying. This is not to say that it is all in our heads. The body and the mind are so intertwined as to make them inseparable. However, I believe that if we can deal with the mind issues that we have a much better chance at having the physical symptoms abate.
In our so called modern day we have less time for ourselves than we ever did. Despite all our great inventions to make life easier it has become more complicated and busy. How ironic.
The magic in life is as it always was, that is the recognition of life as magnificent and that the world we inhabit is a miralce of nature, God......! You were not shunned on purpose but rather the good people here were unsure how to respond to your queries. I, for one, welcome you my fellow earth traveller and look forward to further posts.Cheers,
Basso
CursedLeprechaun
Active member
EyeoftheWild,
I for one appreciate the time that you and countless others spend on this site (even if your time is only worth 84% of my time, or is that your dollar??). As a relative newcomer to BFS, I am thankful for the "been there, done that, still alive" attitude of some, the "nothing but the facts" of others, and your messages "nestled in flowers."
Cheers to you!
I for one appreciate the time that you and countless others spend on this site (even if your time is only worth 84% of my time, or is that your dollar??). As a relative newcomer to BFS, I am thankful for the "been there, done that, still alive" attitude of some, the "nothing but the facts" of others, and your messages "nestled in flowers."
Cheers to you!
Basso-I'm lovin-on you too!
Thanks for being here, as "full of you" as you are
(My only complaint is that I've never been invited for ice cream! What's a gal gotta do?)
Since our priority is to help the fellow sufferer, may we always be more unified in our oneness than divided in our differences.
Life is too short, this disease is just too darned mean, and too many people are suffering for us to major on the minors here.
Blessings,
LisaLM
Thanks for being here, as "full of you" as you are
(My only complaint is that I've never been invited for ice cream! What's a gal gotta do?)
Since our priority is to help the fellow sufferer, may we always be more unified in our oneness than divided in our differences.
Life is too short, this disease is just too darned mean, and too many people are suffering for us to major on the minors here.
Blessings,
LisaLM
GinniferLynne
Well-known member
Sharon,
Just wondering if your neuro ordered these tests for you or if you asked for them.
Mine didn't deem them necessary.
Ginny
Just wondering if your neuro ordered these tests for you or if you asked for them.
Mine didn't deem them necessary.
Ginny
totaltwirls
Well-known member
Some of them my neuro ordered and others I asked for. She saw how upset I was at my appointment and scheduled the EMG and NCV on her own, even after saying I received a BFS diagnoses from her, but after experiencing the numbness and white spots in my eyes (diagnosed as aura migraines due to severe stress), I demanded the MRI's and she agreed. My GP and ObGyn did the bloodwork and urine analysis initially at my visits to see what was going on, prior to my GP referring me to a neuro. My GP also performed the EKG at my first visit indicating that blood clots could cause twitching - still not sure about that one, but my EKG was fine.