No More ALS Scare - PN Diagnosis Relief

[GrizzlyLeader]

So I am now officially over the ALS scare. I have noticed the twitching has noticably calmed down a bit. It does make a huge difference to have a twitch, but not have the underlying thoughts of "theres another tiny bit of my body wasting away and everything that that implies". This latest dx of pn was a relief vs. the alternative and it does explain some extremely weird sensations Ive had in my wrist and ankles this whole time. I dont know just how serious pn can be, but I have noticed that I feel symptoms changing more from horrible twitching and a little pain, to less twitching and increased pain in my hands and arms. Nothing I am not able to live with by any means, but certainly irritating. How many people have gotten a dx of pn coupled with bfs. I wonder how many people that have not had an emg possibly have this but assuming its just bfs. I think this makes having an emg that much more important if that was the case. My nuero said that most likely the pn was caused by my diabetes type 2. Theres a lot of people with diabetes that dont go to the doctor or have it dx'd. If you have diabetes that causes pn, then not controlling the diabetes would worsen the pn. I would like some people who have been dx'd with pn to share some of there experiences with me. Are there neuros that specialize with pn just as there are some that specialize in als and such. I assume this will be a condition that needs to be monitored to some degree. My fingers have also increased the frequency of twitching alot. Again, not scared from it, just curious about this condition. Thanks

 

[RapturePhoenix]

Lately i'm feeling same symptoms as you describe but in my case i got Hypothyroidism so i don't know what is the link (if there is a link) between bfs, pn and thyroid disorders, so could anybody please explain me because i'm confused. Thanks

 

[simonw00]

I am a GP and have quite a few people with peripheral neuropathy from various causes - diabetes being one of them but a good number where no cause for their neuropathy has been found. Alcohol seems to be a suspected culprit in a number of these. My patients (I am not a specialist remember) have predominantly sensory symptoms rather than motor although I have got one patient with neuropathy who, while I was excising a mole from his calf, I noted to have full on fascicualtion... worse than mine even! I quizzed him about it and he said he'd never even noticed the twitching until I mentioned it! He had had PN for a good decade at this point.As regards diabetes, the only thing I can add is that I know my patients with sensory PN find that their symptoms reduce when they look after their diabetes well.RegardsSimon