No Correlation with Anxiety Alluded To

[EyeoftheWild]

The word "quackery" was to describe his suggestion, not his credentials. Without concrete evidence of a correlation, then no such relationship should be alluded to. People on this site, as you know, have enough anxiety to deal with; and any supposition that would increase that does harm.

Of course, you know this. You are an extremely bright man, and have given so much of yourself to this board. But, imagine yourself at the beginning, when you were struggling with the various sx of BFS. Would you want to read something about how, in some way, BFS is aligned with ALS?; I don't really think so. I know that I certainly would not have. I guess that is my point. That because we are stuck with words, that we must be ever vigilant that we do not create something which is not.

Some people with BFS have said that they feel their memory is weaker; no doubt brought on by being stressed. However, would it be appropriate for a Dr. to say that BFS and Alzheimer are related?

We have been bumping around this forum for a similar length of time, and the last person I would wish to engage in an argument is you. Perhaps others do not see it my way, and will think as you do that I am over-reacting. In any event, as you say, it doesn't matter. We are both here for the same reason, which is to help people heal and receive healing grace in return.

Cheers,
Basso

 

[EyeoftheWild]

Val2:

At the beginning of your ordeal, when you initially posted, you received a lot of wonderful support and advice. Your desperation rang clear, and a bevy full of cyber-strangers ran to your rescue. It didn't matter if you were black, white, green, fat, or skinny. We understood, in large part, your angst, your pain. Because we understood, we sympathized and wished only that you should feel well, that you should feel cared for. MarksmanS even went to the extraordinary length of offering his home phone number to you. (I thought he was crazy do to that, but such is the care that he carries in his heart.)

Why did complete strangers invest some of themselves toward you? Well Val2, the answer is easy, because you are most definitely worth it. Yes, I know you don't want the sugar coating, but is that what we are offering? Is our reaching out to you, as you stretched out your arms to us, just us being "nice?" Whats wrong with a little sugar anyway, it is sometimes the balm which allows us to heal.

The tenor of your posts is very negative and you seem to determined to write your obituary prematurely. If this is so, why bother to come to this site at all. You have already determined that you are beyond help, and so why waste what little life you have left, sitting at the computer. Better to be out staring at the sky and hugging everyone you see. Which is probably not such a bad thing in any event. Having said all that, you are obviously coming here because you desire anything but for your life to end. I believe that your coming here is as much an affirmation of your life than anything else.

You say that you cannot find anyone who has cramping with their BFS. You know this is not true. Most, if not all BFSers have experienced this to greater and lesser degrees. Many BFSers suffer incredibly, and yet they have turned the experience into one of hope. Before BFS I would not have had the audacity to tell someone who was physically, spiritually, and emotionally down that they needed to "pick themselves up," for fear that I might do further harm; easier just to avoid the subject altogether.

I believe that you have made the decision to live! You only need to find a different means of expressing your pain and anguish other than the, "I am dying, oh P-oop" one. You have the support of this board and you have the considerable life giving force that inhabits within each and everyone of us. Don't forsake that!

I have a challenge for you. Put aside your troubles for a period of 7 days and post often to the people who come to this site for comfort. Share with them your life, your loves, your heartbreak, your hopes and extend to them the helping hand that has been extended to you. You will find, I think, that this offers more chance at rekindling your own spirit then all the words in the Library of Congress.

Sincerely,
Basso

Kisses and hugs back at you!!

 

[OPHIAzkatieSOPH]

I can't resist this debate. I think that their may a correlation between *** and bfs in that some of the motor nuerons are affected. Twitching is a result of hyperactivity of the nervous system and can also be a result of nutritional imbalances. Many people have brisk reflexes with bfs because of this hyperactivity. People with BFS tend to get crampy in their hands and feet because of stress and anxiety. Nevertheless, if they weren't in some way correlated this site wouldn't exist. I don't mean to say they are related, I just mean to suggest that some symtpoms can appear to be similar.

 

[EyeoftheWild]

KateS:

You have missed the point by a country mile, and your playing with semantics may only make others miserable. As you said before, many people have headaches and that is a sx of a brain tumor; does this mean that there is a correlation between the two. Of course not, and you have said as much.
Logic, I'm afraid, must be handed out with consistency.

Basso

 

[jsageurge]

The cause of BFS is currently unknown by the medical profession. No one doubts that. The letters ALS appearing on this board cause anxiety, to the point where they usually replaced with ***. No one doubts that either. Saying that something is “related,” with no other context is ambiguous, and saying this about a syndrome with unknown and possibly varied causes seems even less productive. We all know how our minds work when they are filled with fear. They become unreasonable. This is made even worse when someone has health anxiety or OCD. Taking all of this into consideration, I can find no reason to disagree with Basso’s point. Mark also sees this, thus the status of this thread is one of a productive dialog, not a debate. There’s a big difference between the two.

Val: Sorry to hear about your pain. The pain symptoms that I have are moderate and annoying, not severe, but include muscle aching in my arms and finger/wrist joint pain. I’ve been trying alpha lipoic acid for over a month and my twitches have decreased by about 80% but more important, I have no muscle aches. I still get intermittent finger/wrist joint pain. If you have not tried this, you should look at the other posts on lipoic acid and consider giving it a try.

Cheers,
-Bill

 

[OPHIAzkatieSOPH]

I suppose when I said the word "debate" I wasn't considering the definition. Maybe I thought we are sort of debating the reasons Mark's nuero (which is mine by the way) said what he did. I guess knowing this doctor, I was sort of defending him, because I know he is thorough, knowledgeable and he has been in the field for a long while. I think that no one can argue that BFS affects people on the nueromuscular level. There is very strong indication of that being true. Maybe that is because they really don't know what catagory to place BFSers in. I'm sure that is a pretty broad catagory. BFS occurs at the nuermuscular junction- thus causing a irritation of nerve fibres but causing no damage, and if that was the point Mark was making then I agree