Well today marks 9 months of BFS. So to celebrate i saw my neuro for the third time. First time was once month into this....then at 3 months where he did the emg and then this follow up visit (6 months after the emg). I have seen some minor changes in my twitches. They have come down SLIGHTLY in my legs but have increased overall including my face, tongue and throat. My neuro did another clinical exam and said "i cant help you anymore." He said i have nothing wrong with my central nervous system and as a neurologist he can provide no help to me. He gave me two choices...1) not believe him and get a second opinion he even gave me a name i could call2) try to reduce my anxiety over ALS.He said i do not have any evidence of ALS. Of course we talked about the twitches and he said they have no significance in my situation. Meaning my face, tongue throat, calves and body twitching is not pointing to any disease. BTW he said tongue twitches are not different or worse than calf twitches. A twitch is a twitch. Location has no significance. This is very encouraging news for me 9 months into this journey. All i can do now is just live. Deal with the twitches and stop being so hypersensitive to every little thing that happens to me.
Nine Months of BFS Update
- Thread starter Frumpy
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