Hello everybody. I am a 29 year old female newbie with wide spread twitching. It all started in September of this year. I noticed numbness and tingling in my left pinky finger and forearm. It had been going on while I was pregnant with my son who I had last December. I didn't pay much attention to it until that day in September and then I decided to google my symptoms. Things like MS came up and when I started to read the symptoms like twitching I began to panic. Right away literally as I read the symptoms my left thigh began to twich and all of my limbs started to get tingly and numb. I then googled twitching and found that it was a major symptom of ALS. Within miniutes I had twitching throughout my whole body. I went to my GP and he said anxiety but sent me to the neuro anyway. Two weeks after the twitching I had an EMG and NCS done on all limbs hands and feet back of neck and middle to lower back. Everything came back clean. I also had extensive bloodwork done wich came back fine. My neuro then sent me to the psycologist who diagnosed me with GAD. He put me on lexapro and klonopin. I have been on these meds for almost 3 months with no change. Now I am also experiencing a dry mouth and sore throat wich makes me panic over bulbar symptoms. I am so scared I have no idea if I should go bback to my neuro. Any thoughts would be greatly apreciated. Thank You.
Newbie with Twitching - MS Concerns
- Thread starter hugops21
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SecretAgent007
Well-known member
If you spend enough time on this site reading through many of the newbie posts you will find you have much in common with them. The more you let the fear get the better of you the worse your symptoms will get. Anxiety plays a huge role in the severity of BFS symptoms. If you are still seeing the therapist, see if they can't help teach you some self meditation techniques to calm your nerves. You should see a significant improvement in your symptoms. Its amazing the power the mind has over the body.This is a good website with lots of knowledgeable and experienced people. There are differing opinions on ways to cope or manage the symptoms, but if there is consensus on one thing it is the strong impact anxiety can have on your symptoms. Get that under control first and you can experiment with other methods to ease your symptoms further down the road. Good luck to you.
Hi, and welcome to the board. So sorry that you are dealing with so much fear rite now, but please believe me when I tell you, you dont have ALS, or MS. 
) ALS damage is occurring very quietly and slowly up to two years before a person displays any symptoms, but an EMG can pick up that quiet damage, so its never too early to have the EMG once symptoms have begun. I hope that makes sense and I hope that gives you some comfort that your EMG was really clean, and you really dont have ALS.Your story sounds sooooooo much like soooooo many here, we have all had the tests, you have had the tests, we dont have it, and you dont have it. We are all just one big, twitching, tingling, cramping family, and you will fit rite in. ) We are here if you need us, so ask any questions you may have ) Take careRobynn )
) ALS damage is occurring very quietly and slowly up to two years before a person displays any symptoms, but an EMG can pick up that quiet damage, so its never too early to have the EMG once symptoms have begun. I hope that makes sense and I hope that gives you some comfort that your EMG was really clean, and you really dont have ALS.Your story sounds sooooooo much like soooooo many here, we have all had the tests, you have had the tests, we dont have it, and you dont have it. We are all just one big, twitching, tingling, cramping family, and you will fit rite in. ) We are here if you need us, so ask any questions you may have ) Take careRobynn )Thank you both for your quick replies. I am just having such a hard time believing that my symptoms are based on anxiety. I was really relieved after my EMG came back normal. That lasted about a day. I then began thinking what if the EMG missed something?! I started getting pains in my legs not cramps or anything disableing just pains. I now have this cough and sore dry throat thing going where I constantly have to clear my throat which makes me think that the EMG missed bulbar onset.Is that possible? I don't believe I have any abnormal tongue twitching and I don't have any problem chewing drinking or swallowing any food but I have had neck, cheek, and eye twitching. It just scares me and this whole ordeal is depriving me of my life with my family. My husband wants me to snap out of it but it is just so hard with all of these symptoms I'm feeling. I twitch just about everywhwere. Every twitch brings more anxiety and tears. I just want to find some way to get through this. My therapist isn't the best. I try to explain my fears to him and all he wants to do is up my meds. Not one doctor has even mentioned BFS to me. If it were anxiety wouldn't the medication help that?
ionyZarrion
Well-known member
Totally agree with SAM.29 yrs old with no weakness and a clean emg=no als.-simples-
Thanks again so much for the reasurance. I will try everyone's suggestions and see where that takes me. I do have good days where I hardly feel any twitching and then there is the rest of time where I twich all day on and off. I have two wonderful children who can most days keep me busy enough whre I am not bothered by my symptoms. I hope to one day be able to comfort others with this problem as you have all done for me. I really appriciate all of the support! Thanks again : )