KarenKatherine
New member
I am a new poster, but have been reading the forum for about two years. I have had twitches for over two years now, different places, and other symptoms many here have. I try to reason with myself, but often find that I spin out of control doing strength tests, scheduling doctors appointments, and just obsessing. My twitches started with my eye, spread to me cheek, and then my right hand. No longer have real issues with my eyelid or my cheek, and my hand twitches are usually the warning sign that I am about to get blasted. With my hand it is usually muscles twitching that will pull my pinky, ring, and pointer finger side to side. I can watch the muscle beside my thumb thump away. After this it is usually my legs below the knee, sometimes both, sometimes only one. I had stiffness in my legs as well, which completely panicked me. I do not notice the twitches in my legs unless I am sitting still or in bed. They are not huge thumpers, and sometimes feel like worms crawling. Recently my left thigh has been very tight, almost like a band is around it. Was like it for a week or two, went away for a week, now is back but intermittent. I can stand on my toes, walk on my heels, stand on one leg, and hold my hands up. That being said, anytime I scuff my foot, have a little trouble with a button, I just obsess. The fact that the twitches and tightness comes and goes also freaks me out, maybe two or three months on and two or three off, sometimes more, sometimes less.I have been to the neurologist and had an EMG about two years ago. He said it was fine except for some stuff with my neck and assured me I did not have ALS or anything else. He was pretty good and could see that I was a mess and set up an MRI of my head to make sure all was well, and it was. I did have more problems late last year and he sent me for a neck MRI, once more because I think he was trying to calm me down. It showed 5 pinched nerves in my neck, but compared to what my mind was thinking, it was great news. My neurologist has told me I do not have ALS or MS. I just started with a new GP who is great. I told him about my problems and he immediately asked if I had been to a neurologist. I said yes, and that I had an EMG. He said good because the twitches and cramps could indicate ALS. Of course that set me off too. He did have me take 600mg ibuprofen, which helped with the cramps and stiffness. I just can't reason with myself.I just want to hear from those living with this. Do I need another EMG? Do my symptoms sound like BFS (I think they do, but could easily talk myself out of it)? Is there anything I should do or not do? Any advice would be greatly appreciated! The forum has calmed me down in the middle of the night many times, and I thank all of you for sharing your experiences.