New Neuro Appt: Burning, Buzzing, Twitches

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KimberlyKard

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Well, guys, I haven't posted for a while, but I browse through this forum everyday. I am still having the burning, buzzing, twitches, and cold water feelings. I decided its time to move on to a new neuro. I go there on Thursday. I think that she will probably repeat my MRIs since its been a year, and maybe she will do a EMG, never had this done yet. I suffer from this everyday now. The razor burn feelings spread to different areas of my body, they only cover an area of about a size of a quarter, and only last a few seconds, but *beep* they are annoying. When it is really bad, it hurts to wear clothes. The neuro on Med-help suggested PN, if it is that, then how did I get it? I am not diabetic, and have been tested for everything else that causes it. I am still thinking about the Lyme, being from PA, its pretty bad here, I don't ever remember having being bit or a bulls eye rash. I am just a little leary about the testing, I know they are not that reliable and everyone says to get checked through IGENEX, but to be honest, I have never seen someone that has been tested through IGENEX that wasn't diagnosed with Lyme. If this is the case, Lyme is spreading rapidly to say the least. I will post back after my appt on Thursday. For now, take care.Jen :(
 
Hi Jen,I used to frequent here a while back. I don't know you but it seems like you can use some support. So good luck and best wishes!Johnny
 
Sharon, She is ordering a EMG, because I never had one done, she feels its small fiber neuropathy, so if the EMG comes back normal I will be heading to Pittsburgh for additonal tests, such as the tilt table, qsart, and skin biopsy. She also wants to do another cervical MRI to see if the buldging disk in my neck has gotten any worse. She said that the neck issue though would not cause the sensory issues that I have with my face (tingling, buzzing, twitching, and burning). Oh and also more bloodwork. She is checking me for Sjogrens syndrome and 2 others that I have not been able to find out what it is. c-anca, and p-anca. I will have the bloodwork drawn tomorrow, and I still have to schedule the MRI. My EMG isn't until May, but I am on the cancellation list, so if someone calls their appt off, they will call me, so it may be sooner. I am so tired of all this crap, 7 years is to long, and it just keeps getting worse. Thanks again Sharon.Jen :(
 
SS is one of the illnesses I feel I have but is subclinical in nature. I would suggest you insist on a lip biopsy which is really the only way to confirm SS. I suppose you have an elevated ANA, SS-A & SS-B. I my case I failed all the initial tests. That is, I don't fit the pattern1 I am male. 90 percent are female2. No elevated ANA3. No elevated SS-A or SS-B4. No elevated CPK5 Chronic fatigue.SS can definitly produce the sxs you describe. SS can even mimic bfs/bcfs if gets into CNSI did not read the hallmarks of SS from you.1. Dry eyes2. Dry mouth3. Many cavaties4. Joint painLast weeks episode of Mystery Diagnosis highlighted the ability in which SS mimics other illnesses.
 
Zekebcfs,My last ANA and sed rate test was in 2006. It was normal then. She is redoing it. This is a new neuro so she is doing some of the blood work for neuropathies that the other one didn't. I have no joint pain, or dry eyes or mouth. I do have a few cavities though that need filled, but I'm scared. Yeah, scared of the dentist, but not of needles stuck in both my arms and both legs. I need to find answers, there is no way that it is normal to have these bee stinging sensations everyday, today is real bad, they are all over my face, and then the razor burn feeling is in my legs. I'm sorry, but this is not all in my head, my family feels that I'm a nut case, my husband just says, Jen, what are you going to do when you have all these tests done and they say everything is normal? I just reply, its not normal, I'm not nuts, and someday hopefully they will find out what it is, and I can say, I told you so. I will not rest until I find an answer. I asked the neuro about BFS, she just looked at me and said, do you have twitches, yes, but hardly ever, its mostly sensory, she told me that BFS is only defined as twitches, it doesn't cause nerve pain etc... So, I gotta run now, my son is home sick and he needs me.See ya, Jen :(
 
It will be very difficult to make an argument for SS if you do not have Dry eyes, Dry mouth, Joint Pian or many cavaties through your lifetime. Compound that with the negativre ANA and Sed rates and this almost puts you out 99% from even being suscpected of having SS. I agree that your sxs are real. Now, how to get to the bottom of this? Has your Thyroid been checked. My mom has the same sensations you decribe but she is an extreme diabetic and she has PN. Sometimes her blood sugar has climbed as high as 700 and I always worry we might loose her but she does not care. She keeps the same habits. I don't think this is your scenario. Advocate for your halthcare until you find an anwser is my only suggestion. Have you been to an endocronologist? I relly think you should look at this path. Maybe not nerve pain but the mis communication of normal messages. Kepp us posted and good luck. Again please look and the endcronologist route.Zekebcfs
 

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