New Member Seeking Advice

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helpjoe

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Hello,As a new member, I'd really like to tell my story and hope to receive some thoughtful feedback on what is going on in my life. I will apologize for the fact that my story may take a little while to tell, but it really is important to not miss too much so you can understand what I'm going through. By the way, I'm a 30 yr old white male...about 5'8, 180 lbs...weightlifter (not body builder), fairly athletic guy, with 2 beautiful kids and wife.A little less than 3 yrs ago I "out of the blue" started getting tingling hands...both hands. After a few weeks, I started getting fasciculations. I don't recall where they started but I was getting them in my legs, arms, abs, feet, tongue, and other places. After about 3 months of these symptoms, I went to see a neurologist. They did an autonomic test, emg (lower ext focused), mri of the brain, blood wook, etc. Everything was normal.I continued to suffer with these symptoms and noticed a few others. Mild crampy-type feelings in hands and buzzing feelings. I just tried to ignore them. After about a year, I revisted the neuro and my exam was normal...he said to try not to worry. However, after about 2 years I seemed to develop some additional aches. My calves were hurting me and and I was getting odd sensations in my body. For the last year or so, I would feel like my arms were a little shakier when I lift weights in some movements...like bench press. My triceps seems to tremor more but my strength was decent. So I wanted to follow up with my neuro but he was unavailable...I saw a different neuro. She ordered more blood work, mri of spine, and lumbar puncture- everything was normal. I started to wonder if maybe I had a benign syndrome or was it something more serious...they never really told me.A fews days after my lumbar puncture (late Oct '07), I began a very stressful period in my life. I'm in medical sales and had a work exposure to blood. I didn't handle the situation correctly (long story-my fault I suppose). I became really stressed that I could have picked something up from this exposure. About week later, I got sick with a sore throat. Of course, I worried myself sick. Yes it was Nov and the beginning of the sick season but it was odd coicidence. I thought I was getting over it and got sick again...sore throat and drainage...itchy ears, then I developed another sickness with green drainage, etc. I felt like I was sick for 6 wks or so...very odd. My doc thought the last illness may have been an infection. My mind was racing and during this time (about 1-2 wks after exposure) I developed dry mouth. I wasn't sure of the cause...stress, virus, what? I started getting tested for infectious disease (HIV, HEP C)...neg at this time. Then my kids and wife got sick in Feb and I picked up the cold too. Well, all of sudden I developed dry eyes. My mouth was still dry too. After this virus, I experienced a couple incidence of ithcy ears and mild sore throat and wasn't sure of the cause. My muscles were aching me more than usual as well...stiff legs, lower back tightness, aching, sharp pains in calves but don't remember hurting them, hands hurt, etc. I just haven't felt right since the winter...not necessarily sick but just feel like something happened to me. After 6 mos from exposure, I was tested for HIV, Hep C, and HTLV- all neg. I hope this is conclusive but I still worry at times because I was sick a lot and it just worries me.Now because I developed some dry eyes and mouth, I saw a rheumatologist. I have been tested for a lot of different autoimmune disease- all neg at this time. However, my CPK (muscle enzyme)was very mildly elevated. I am a weight lifter and I figured this enzyme was up a little from lifting. They repeated it but I didn't stop lifting and it was elevated again. Finally I took a week off of exercise and it was a little higher...maybe in the mid-300's...normal is less than 200. I was pushing on my calf pretty hard a couple days before the test because they were aching me and my doc wasn't sure if this effected the test. He decided to order it one more time and asked me to get an EMG. Well, my CPK came back down to normal which is fine news but now my EMG is showing abnormalities.The Nerve Conduction is normal. The needle portion should a mixture of normal, short duration (maybe even low amplitude), and polyphasic Motor Action Potentials in 4 muscles of the 10 that were tested (triceps, peroneus longus-calf, supraspinatus-back, and gluteus medius-butt). The Phys Med and Rehab doc said it was mild but this is suggestive of a myopathy (muscle disease). I guess I need a muscle biopsy to see if there is anything wrong.My rheum isn't convinced that i have anything wrong with my muscles because my strength is fine and my CPK is now normal. I suppose there are some muscle diseases can me metabolic, inflammatory, etc. The CPK doesn't have to be abnormal but is fairly often. I do still feel odd sensations in my body after working out-tremoring/buzzing, shakier at time in some movts, fasciculations, aches, pains in calves, stiffness, etc. I also experience tightness in my throat ...GERD, stress, realted to muscle problems, not sure??? Some of these symptoms seem like BFS but now I have an abnormal EMG. I wonder if being a weight lifter can cause changes in an EMG but the doc that did it said no. Could these be benign findings...I've been told it is possible but clearly it isn't normal. I am really scared that I may have a muscle disease and I could have something else to because of my dry eyes and mouth. Heck, i still worry about my exposure from months ago. I feel like I'm falling apart and I'm only 30. My wife stays home w/our kids and I just want to be able to care for everyone and be an active person...hopefully live to be old w' grandkids...you know like everyone else. Now I feel like my life isn't going to be the same. Sorry for the book...I know this is really long and annoying. I just need help and support and want you to know my whole story. Yes, I've become a major worrier but it is because I don't feel well. Please give me some honest feedback on all the things I discussed. It will mean a lot. Thank you so much.Regards,
 
You and I have parallel set of sxs. However, I began with the dry eyes then moved to BCFS and sometimes the occasional dry mouth. You sound like you have what I have which is BCFS not BFS. My situation began with a very intense work trip. I was under a lot OF STRESS! Boom the day after I arrive back in Fort Worth I start feeling shaky, weak legs tight throat, and cramp like sensations in my tongue to a degree I had not felt before! Yeah I had gotten the occasional sensation but now it was different. You have had many tests that rule out many illnesses. I think that BCFS does have an autoimmune component as the latest research has shown. Look at Steve Paul’s posts. The elevated CPK is consistent with weight lifting.The best things on your side is the time that has already passed plus showing negative results in almost all test you have undergone. An EMG is not only used to point to ALS but also includes nerve inpinchments like carpel tunnel so yes you can have an abnormal EMG. Please stay away from trying to interpreting EMGs.My personnel belief is that BCFS has a partial autoimmune component and lightly activates other autoimmune illnesses sxs not the real illnesses but misfires if you will of those affected organs. This causes dry eyes and dry mouth barring any medication that may already produce these sxs.1. MND seldom has pain associated with it2. Wie spread twitching immideatly points away from MND.3. Strenght is the first thing to go4. SXS do not abateLet us know how the muscle biopsy goes. I have had the same sxs on and off if it helps any! See a neuro muscular specialist.
 
Hi there, First of all let me alleviate some of your fears if I may. Can I start with what I know best....(your worry of contracting HIV, Hep C Etc. from your exposure). I am a nurse myself AND A HYPCHONDRIAC.... "big time". However, I had a blood incident in the field and maybe a one night stand or two and I had myself convinced due to a cold I came down with at "just the right time" I had HIV. I didnt hesititate one minute to rush out and get tested. I spent 1year OBSESSIVELY worrying about HIV etc.I finally went to a "SPECIALIST"..whom actually specialized in HIV and Infectious disease. Your first HIV test with 4-6 weeks of exposure is NOW considered CONCLUSIVE. The whole 3 month thing is OLD. Infact if you go to the CDC website-- you will find that HIV test used now days are VERY SENSITIVE and most people come down with the hiv virus around 28 days of exposure. Your body produces antibods. TRUST me I SPENT HOURS with this man wanting test after test after test. When there was NO POINT. Soooo Your safe on the exposure to HIV etc. Hep C shows up fairly along the time HIV does and a lot of time they are co infections. Ok. Myopathys- Dont be upset about that. There are all kind. Mitochondrial being the most common and ofcoure benign myopathies from working out etc. You said you are athletic. You dont have to be a HUGE BODY builder to have myopathys.I have two friends with muscle disease of the benign nature- they were caused from "one a injury"...and the other a body builder. The GOOD THING...The SCARY SCARY disease the EMG detects we freak out on...Myopathy points AWAYYYYY from. I dont even know if that is a concern of yours. You didnt mention it. As you know though most people on this site fear it. If you use the search key on the upper right hand corner and type in myopathies... You will see a handful or more people that had emg's that showed the same which all in all ended up being nothing. Myopathy's are and can be common. Try to keep your mind positive. I know how scary this thing can be. Regardless of what they find benign or not. The word benign didnt convince me like I thought it would but eventually now I am coming around.When is your next appt? If you remember the baseball play ROCCO something (sorry not good w/ names) he was just recently having the same symptoms as us bfs'ers but a lot more muscle fatique etc which DID NOT LOOK GOOD- however he has mitochondrial muscle problems..which are NOT debilitating. Yes you fatique, Yes your tired...Yes you cramp hurt- but it won't put ya down.I hope I helped some. I dont know a lot about myopathy's . A blurb or two from my neuro and then what i've read on the net and in my medical book. THEY DONT ALL HAVE TO BE BAD. Stay positive. You've been experiencing this awhile now. Your still yourself, walking, talking, playing with kids and YOUNG. Soooo don't think the worse. LovelyI WANT TO ADD, MYOTONIA AND THORACIC OUTLET SYNDROME COULD BE A CAUSE- WHERE IS YOUR MYOPATHY LOCATED
 
Hi ,Can someone get this post straight for me, don't completely understand this - I'm French, he has a bad emg after good ones? Myolopathie : same as .... ?I'm having thumb /piece of hand pain and think I got weakness, I'm scared.Don't want to get panic here but can someone explain this ?thanks
 
Thanks for the replies (PregnantHappy & Zekebcfs). I'm trying to be strong for the sake of my children and wife...it is tough.I will look into BCFS to see if this fits me. Yes, I was very worried about ALS for a long time too. It still pops into my mind, but I just hope that is not my cause of my misery. The EMG didn't indicated ALS...However, it did suggest a Myopathy. I started doing more research on Myopathies and I'm struggling to figure out which one I could have. Some people do get Muscular Dystrophy as adults (but rare), the Inflammatory myopathies are possible (but CPK usually stays elevated until treatment for Polymyositis and Derm and they attack Proximal Muscles) (Inclusive Body Myositis- affects proximal and distal muscles and the CPK may not be elevated- this concerns me because my EMG was abnormal in a couple proximal muscles and a couple distal muscles- but my Rheum said it would be very rare to attack someone at my age, usually mid-40's and older), Metabolic Muscle Disorders- may fit me with the crampy feelings and I think CPK's can be normal, and of course there are others. I have concluded that I am not going to be able to figure this out on my own.I am planning on seeing a Neuro-Muscular specialist in about 2 weeks. The Neuro I saw in the past referred me to this specialist. I'm out of town right now for training and started a new job. This makes my situation even worse with so much stress. I been gone for 2 wks and will be away for 2 more. I miss my wife and kids so much and just want to focus on my health...so frustrating that I have to deal with this. I'm excited about my new job but feel depressed at the same time. I think the main question I have is- Can someone have an mildly abnomral EMG like mine (low ampl, polyphasic, short dur, and normal) Motor Action Potentials and be normal? The only muscle that was EMG tested a couple years ago was my calf that was abnormal this time, but it was done by a different doc too. In other words, did my body change a little over time but it isn't due to a disease process? Maybe it is benign and will not get worse? My fear is it may be mild now but almost all of the myopathies are progressive...meaning they will get worse...this worries me a great deal. It just seems unlikely my body would change unless there is a disease causing it. Of course, some of these disease increase yuo chance of developing other problems too like cancer. To top it off, I'm suffering from dry eyes/mouth and if I have an autoimmune disease like Sjogrens this can increase my chances of developing major comlications too. I know I shouldn't think like this but but it is hard. literally feel like I'm living a nightmare right now...WOWAs for the infectious disease (PregHappy), I hope your right. It may be a pyschological thing. Before I was married, I did do some stupid things in my life and wasn't safe (if you know what I mean) and I didn't worry as much. I just got tested and let it go. Now, I have been tested out to 6 mos and still this worry lingers. I feel like I got some weird virus or two this winter and it changed my body...hence my dry eyes and mouth. Of course, I still wonder if my dry mouth was from excessive stress and worry because it started after my worring...yet it is still present months later...really odd?Anyway, thanks again and I look forward to any further thoughts...Regards
 
PLEASE STOP THAT MESS!!! His EMG represents NOTHING Of ALS. There are a million and 1 reasons to see myopathies- Infact I just looked on MEDHELP and THE CCF SAID "I have NEVER SEEN MYOPATHIES and ALS together".If your trying to SCARE people, go somewhere else. Again your following posts and making a DEAL out of 1 WORD. :rolleyes: Sick of it.
 
Help, I am positive about the HIV- infectious disease. I could direct you to a million and 1 websites via pm that will alleviate those fears for you. Ok, As far as your EMG- that is VERY ironic that the abnormality was found on the only leg that was tested the time before. That almost makes me think "was it there before and missed"- therefore has not changed etc. On this webpage we had the oppurtunity for a poster to meet with a Professor of MND of 40 years. He explained how the "EMG" is sort of like a EYE BALL when it came to fascics. However, IT would NOT miss something continuous in the whole muscle such as FIBS, PSWS's etc. (which YOUR EMG I am gathering NEVER indicated). Just mild myopathy. Which again I read has a million different causes.. Musc. Disc. being the probable worse but I dont think that is your case. The low amps etc. and the other things you mentioned I HAVE SEEN people have as well- If you go to memeber search and find the name THEO- You can see his EMG was FULLLLLLLL of stuff- much much worse than yours which turned out to be NOTHING. (Sorry I am just throwing out some things here at you to help calm your fears). I know through my digging I have read EMG's having abnormalities on here and on medhelp and it not being anything really.I wouldnt call a myopathy so to speak "dirty". I would NOT suggest diagnosing yourself over the internet though thats what we all tend to want to do. I myself have done it or tried to numerous times. Leave it to the Muscular Spec. When do you go see him? I wish your neurologist hadn't of left you so far out in left field but ATLEAST he did inidicate he saw nothing that reflected ALS etc. So keep that one far far far away. I agree with Zeke and his points he made totally.Keep intouch- Lovely
 
OK, to clarify a little regarding the EMG. I had an EMG over 2 yrs ago. The NCS was normal. The needle portion was normal too but they only tested 6 sites...all of which were in my legs...I think it was my foot, couple spots on quad, 3 spots on calves, etc. Everything was normal.The last EMG I received (3-4 weeks ago) showed a normal NCS. The needle portion showed a mixture of normal, low amp, and polyphasic MUAPs...I can't remember if there was short duration too...there may have been. Everything was tested on the left side, which was the case for my first EMG too. The muscles that showed these abnormalities were the tricep, supraspinatus (around the scapula), glutes medius, and peroneous longus- lateral side of calf). The peroneus longus was tested one my first EMG study and was normal, now it is showing an abnormality. This worries me a lot because clearly something is causing it to be abnormal now.What is a little interesting, was that as I was getting my EMG done a few weeks ago, the doc did tell me his thoughts as the test was being performed. He did tell me my tricep looked suspicious and I thought he said my hand did too. One the final report it was listed as normal and I did talk to him about this...he said he reviewed it and decided it looked ok. Also, during the test he told me all the muscles in my calves looked ok, but then wrote in the report that the peroneus longus muscle looked abnormal. I'm not saying the guy is wrong because he is the doc, but I was just surprised by this news. I did have completely normal MUAPs in other areas of my calves and quads. My bicep and deltoid was normal. The one thing my neuro did tell me on the phone (after I faxed him the report and discussed meeting with him) is that EMGs are subjective. Docs may have different opinions on what they are seeing. He wants me to see the neuro-muscl spec and go from there. I will see him in a couple weeks, but I'm scheduled to have a biopsy at that time too. I'm not sure what the neuro-muscl doc is giong to suggest and I'm a little confused if I should wait on getting the biopsy that my rheuma ordered. If my darn EMG was normal I would be in a much better state of mind. Yes, I ache and maybe I do have something so I shouldn't be so surprised but it is very hard for me. I'm an active person and this really sucks. Of course, having dry eyes and mouth is miserable and I'm in sales so talking can be more challenging. I would love to know what the heck is going on with me and if I'll ever get better and live a more normal life. Some docs are optimistic and others don't say much.
 
Hey- Your post is scaring some people that have HAD emg's with a certainity of no ALS. (its common here). I got a few pm's from people thinking you are thinking ALS and your docs are. Thats not the case I understand. Its myopathy. I was just going to say you might want to express the reason they are not concerned with ALS. I see it clearly... but there are A LOT of anxious people on this site- - You have to watch people like him because they tend to want to cherry pick details and then scare the crap out of people. Again, I just wanted to repeat Myopathys point away from ALS. (readers :cool: )Lovely
 
I am very familiar with Sjogren's as well. It may be the cause of my dry eyes and mouth. Some people suspect it can be brought on by a virus, which may have been the case for me this winter. I have been tested (bloodwork) for this autoimmune disease as well as others...everything neg right now. Apparantely some people never test positive though. Sjogrens can cause some major problems as well as increase the chances of developing lymphoma, but it can be very mild too. Some people just call it the annoying disease because dry eyes and mouth is annoying but may not shorten your life, etc.I understand there are a lot of people worried about ALS...sure I worry too. The EMG for ALS is different than mine...I think. I really hope your are right and my EMG will turn out to be nothing. I may have it repeated once I see the Neuro-Muscular specialist...I guess it will be his call. I can't say I'm looking forward to getting a biopsy...having a chunk of my arm muscle taken. This isn't 100% conclusive either because there is some chance they may not get muscle that would be abnormal on EMG...it is all a matter of probability.By the way Lovely, you are very sweet and I appreciate your help. Please keep me in your prayers. I just want to be able to be healthy while my kids and wife need me and it makes me very upset to think my life will be different than what I planned. I suppose no one ever wants something bad to happen to them. It is hard not to be consumed with bad thoughts and I know my wife gets exhausted hearing about it...life isn't always fair and I need to try hard to be strong and find enjoyment in my life...I just feel rather depressed for the last few months with all the things that happened to me. I almost forget what it feels like to be happy, pain free, and not deal with sipping water or putting drops in my eyes to get through my day...I'm only 30 and a lot of buddies used to look at me as the fit guy...what happened is beyond my understanding.
 
NO problem as far as being a help . I am a hospice nurse (believe it or NOT) don't ask me HOW I can be such a basket case when it comes to myself and be totally irrational ..Then with other people. I always seek positivity and reassurance etc. Guess its just how my mechanics work. I am sorry I dont have a lot of answers regarding your EMG. I just KNOW the scariest that it POINTS away from- so that in itself is a blessing. The fact that also it was 2 years ago you had a clean one. What EVER it may be its not aggressive. It is possible that you have BFCS and another little syndrome going on that benign as well.Our bodies are weird.I've been told there is no way I have ALS but there is that STUPID lingering "what if I am the special case". :rolleyes: Nothing I can do about it if I am...but no matter how many times you tell yourself that..it doesn't take away the "thoughts". I would definately be celebrating that WHATEVER you have is not debilitating. I bet the dry eyes and dry mouth SUCKS! I have excess salivia the whole time with this pregnancy and its a little ANNOYING in itself. I hate this BFS but I can live with it. Keyword: I can LIVE with it- So can you! I will keep you in my prayers, I am a christian. Pray for me too! Its been a rough 5 months chasing my neuro, emg and dealing w/ the weird twinges- but if its just that, its just that- and I cant complain.Let me know how things go. Again , maybe another second EMG from that Musc Spec. I may suggest one EVEN if it isn't his call. They do emg's as well. I'd be curious to see what his take is.Lovely
 
I will keep you in my prayers as well. It sounds like you have little to worry about. I'm not sure of all your symptoms but having a normal EMG and everything normal is very reassuring. I feel the same as you...I can live with BFS if that is what I have...which is what I was hoping for. Now with the recent EMG results, it is hard for me to think this is benign...abnormal findings are called abnormal for a reason. I hope it is mild or benign and remains that way.I still hope and pray my dry symptoms will go away someday. My optometrist said he has seen people get dry eyes from a virus and it can take months to get better...maybe there is a very small amount of hope. The dry mouth is odd too but time will tell.It sounds like we are alike in our thoughts. I'm very rational when it comes to others, work, family, etc. When it comes to my health I become a complete mess. Now that I actually have some real fears I feel like I'm going nuts. I'll keep you posted if there is anything new to share. I think my appt with the neuro-muscular doc is on july 1st. Until then I will not have a lot to share. By the way, I know it is hard to give feedback regarding my EMG. My Rheum didn't have a lot to share either...which is why I need to see a neuromuscular spec. Boy I would love to know if some muscles can show abnormalities like mine if you are a weight lifter or have BFS/BCFS...I didn't lift for a week before the test, but I just can't find any info on this...probably because it doesn't exist. Enjoy your evening Lovely!Take care,
 
Hello Help123Try not to fear the worst, like been said by Deedee there are a lot of people here with abnormal EMG's that turned out to be fine. Enjoy your moments, don't put your life on hold for something that isn't even there (I know what I'm talking about believe me). The human body is a strange thing. My cousin had an abnormal EMG, muscle pains, fatique, twitches and got dx firbromyalogie (don't know if that's the same in English) but lives a good life but with some pain now and than.Before I got the twitches started I had a lot of pain in my arms and legs. In my legs really severe pain, could barely walk from the pain. At that time I was thinking 'if this is for the rest of my life I can't take this'. But the pain reduced after 6 months, now the pain is much better althought twitches increased :crying: Doctors never said anything to me about myolpathy just ruled out *** and gave me dx BFS.So what I'm trying to say is, try to live your life and don't think the worst. It's just not worth it losing precious with family and friends. I cannot say much about your EMG results because I'm not a doctor.There is nothing more you can do than wait for the tests and see what it is, but after 3 years it's likely not to be anything sinister. There can be hunderds of reasons why our bodies give those weird signals to us. The time that you now live in fear is time wasted. I myself wasted 7.5 months of my life so don't let that happen to you. Do all your thoughts correspond with the reality, no, so there is no point in holding on to those thoughts (my psychologist talking ;) )But when you have the tests, try to ask as much as questions until you are satisfied, wright things down, that worked for meKeep faith that anyhting will turn out well for you, you are in my prayers and thougths. Keep us posted.Best regardsBart
 
Hi Help - Just wanted to throw my story in here as well - as my symptoms as similar to yours although I do not have the dry eyes and dry mouth. I am attaching a sheet I had made due to the fact I have been to so many doctors for so many different things. I started to work out back in April '07 - i hadn't worked out that intense in awhile - I was just doing the treadmill and lifting small weights - but In April I was trying to get in real good shape for my (BIG 40 shhh)! I also had my thryroid meds increased at the same time. After a week, I started to get the twitching all over - so I looked on the computer thinking it was nothing and well we all know how it goes from there. Here is the sheet - I too have the elevated CK and I have had two clean EMGs, but lately I feel horrible - I have the achy leg feeling and my hands hurt. I was told by my Endo - he thought it was myopathies - but my neuro stated on the EMG report no myopathy was noted at this time.Sorry - this was in a nice table - hope u can understand itMarch – started to feel weak in arms and legs. Dr. Ginsburg increased my thyroid medicine to .135. April-Had a body scan done, due to not feeling well. Everything was normal. April – had a Colonoscopy and an Endoscopiesdue to all the stomach problems – everything was normal. May CK -167 Range <160TSH 1.90 Range .39 – 4.60June 05 CK- 203 Range <160TSH 4.87 Range .39 – 4.60June 18 – Went to Dr. Wells because of all the muscle aches CK – 177 Range 24 - 170TSH – 3.38 Range .46 – 4.68Thyroid Antibodies very out of rangeThyroglobulin – 119 Range <60TPA Thyroid Peroxidase 1300 range <60June 19th – went to Dr. Bardwick (rheumatologist) – he did an exam, went over everything with me, he does not feel that it is ALS. June 26 – Dr, Ginsburg – Endocrinologist CK – 198 Range <160TSH – 13.69 Range .39 – 4.60August 03 – Dr. Ginsberg – Endocrinologist CK – 236 Range <160TSH – 2.20 Range .39 – 4.60August 28 – Dr. Ginsburg Endo CK – 323 <160September 10 – went to a new Endo, Dr. Mach did an Aldolase test – he diagnosed me with Hashimotos. CK – 158 (Normal) Range 21-215TSH – 10.70 Range .40 – 4.0September – Went to Dr. Dhillion (Neurologist). She does not feel that it is ALS, but that the weakness is due to my Thyroid being so out of control. She said that she has patients that have high CK levels and do not have ALS. She did an EMG on October 5th – results were normal. October CK – 174 (Normal) – Range 21 - 215TSH – 4.81 Range 0.4 – 4.0December -07 Dr. Mach said he wanted to refer me to a rheumatologist, he stated he thinks I could have ALS. He stated there is no reason as to why my thyroid levels are almost normal and now I have an elevated CK again. CK – 264 Range 21 - 215TSH – 4.53 Range 0.4 – 4.0Dr. Dhillion did another EMG On January 30th - Results NormalI made an appt in January with a Dr. Abi, she is the neurologist at Cedars Sinai at the ALS clinic – had a two hour visit – said NO ALS – it is BFS – she did a full clinical exam – sent me on my way. She said there are many reason as to having an elevated CK. I had my sister there for support. Told me to take Magnesium for the twitching and that I have bad Anxiety. I have been back to both my neurologists and they did the strength tests, etc.. neither one wanted to do an emg - they both felt no reason to no weakness - no atrophy still strong!I have the throat thing going on now - where I am clearing it every second and it feels like there is somthing stuck in it - I keep telling myself it is anxiety and it will go away.I agree with both you and Lovely I can tell everyone else they are going to be okay but when it comes to myself - I am a wreck!Stay strong!Karin
 

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