I've been reading everyone's posts for a few mos now & I'm a new member. My story started 6 mos ago when I noticed a small dent in my upper thigh & twitching. I went to see my GP & he didnt know what to think of it but was sure it was benign. I did internet research and found that it was likely something benign called lipoatrophy semicircularis, but of course with an internet search of "atrophy" and "twitches" i also came across the dreaded ***, sending me into a tailspin. Because of worrying, I developed widespread twitches & muscle spasms that kept me up at night. I decided to see a neuro, who told me it was fat atrophy, and that twitches were prob due to an electrolyte deficiency & stress. He ordered bloodwork for CPK & aldolase levels which came out fine, & told me to stop worrying, there was no way I had ***. My leg finally got back to normal after a few wks, & the spasms subsided, but like many in this community, I became fixated on bulbar. I noticed that when I said "k" sounds, my tongue raised asymmetrically, which freaked me out. I also fixated on swallowing, the scalloped edges on my tongue, every word, every twitch, etc. I realized that I'm only 28, relatively healthy, & my initial leg complaint was not even an issue anymore...still, as many of you know, logic gets thrown out the door and unfounded fears take over easily. The only thing that saved me, & took away my anxiety (for the time being) is faith. Maybe some of you aren't religious, or Christian, or Catholic, but i nonetheless want to share this prayer with those who are interested. I have a medal, called the Miraculous Medal, that I wear everyday, and I ask Mary to intercede for me and ask God 3 things: 1) that all of us in this BFS community have only BFS and not *** 2) that God take away our anxiety; and 3) that we find a cure soon for ***. It took about 9 or so days for me to get relief from my anxieties. I pray that this will help someone out there, because it helped me and was nothing short of a miracle. here is the link to the novena, and GOD BLESS:
New Member - Lipoatrophy Semicircularis
- Thread starter EmmyCee
- Start date