New Here: Thumb Twitching/Numb Fingers

BabylonQueen

New member
Hi there! I'm new around here and actually, I'm still not sure what I have. But here's my story so far. Some help would be greatly appreciated :)It started last Saturday when I was on the computer. I've always been on it, and it's never been a problem before, but for some reason on that day my thumb starts twitching and my pinky and ring finger go numb. I do some online research and of course I come across some scary initials... ALS, MS, etc. Naturally, I panicked, and the rest of my night is filled with fear and an overall feeling of crappiness. I woke up the next morning with my last two fingers still numb, but my thumb only twitching when I rested my hand on my stomach. I'm still feeling awful because of what I have and for the next few days I become obsessed with knowing as much as possible about all these dreadful diseases. Good news is, I find out that what's going on with my two numb fingers is most definitely an ulnar nerve entrapment, probably in my elbow because of the way I sit at my computer (I've been cushioning it with a pillow ever since). I read that it can be corrected, which was a BIG relief... but I was still concerned about what the deal was with my thumb twitching (looking back, I think it was just my hand resting funny on my jelly mouse pad. although I'm still uncertain). It stopped after that morning, but I still couldn't put my mind at ease until I knew what had happened. More research ensues, along with more panic and fear that I will die of ALS or something else. Since then, my mood's been on and off... just when I feel okay and reassure myself that I'm mostly fine (only problem being the nerve, of course), all of a sudden my body acts weird and I go into another downward spiral of fear.The fear started up again when two days ago, my whole body's twitching! Not all over my body simultaneously, but one minute it'd be under the sole of my foot, next my thigh, then my forearm, then my butt hehe. And on and on this twitch would travel. Sometimes in a few places at once. A few times it'd be more like a rumble, and sometimes just a large chunk of my muscle moves and it's more visible. I got extremely worried, trying to reassure myself that it was just all the stress and anxiety that was making me twitchy. But I couldn't help myself... I would lie down to try and relax and feel my legs trembling like crazy at one point. It actually made my stomach uneasy to the point where I almost puked. I keep the shaking under control once I relaxed, and I would tell myself that this kind of stuff happened before, but this time I couldn't help but think something much more awful was the cause of it :(And so it continues. Every time I reassure myself that things aren't bad, a symptom comes up and I freak the hell out. One time it was my calf muscles feeling overworked and cramped up, even though I was sitting for most of the day (I strongly suspect this is restless leg syndrome, but I've never had a doctor check it out. I've had that restless feeling for as long I can remember, at least as young as 8. I've had them come and go, where one week the nights would be absolutely painful and not have any the next week, which might mean I don't have it 'cause I heard it's supposed to happen regularly. Could be wrong though. ANYWAY...) Then when I get over my worries about my legs, I start feeling weak and achy. My rational mind is blaming it on tiredness, but I do countless exercises to fight the fatigue and prove that I still had my strength. Every chance I get, I inspect my two hands to make sure my grip's still the same, and obsess over the differences between the two. Was my hand always _______, or did this only start happening now? I'd curl my toes to make sure they still move fine, run down the stairs, hop on one foot, and millions of other things to put my mind at ease. But yes, something else has to happen next to tire my worried brain, of course it does. And this one probably scared me the most... I got twitches on my numb pinky and along that same side of the hand (between the wrist and the knuckle where it's all fat and meaty, hehe). I took this as a sure sign that my hand was going to slowly lose muscle and eventually die on me. I'm really worried about all this mostly because I'm an artist. The whole incident happened with my drawing hand, and I couldn't help but worry like crazy because I would be DEVASTATED if anything were to happen to my right hand :(I've been reaching out to people for help. My boyfriend has been amazing, and so has another good friend of mine. I was hoping I could get some similar support here :>. I also told my mom about my hand and the nerve and she gave me a splint for my wrist to wear at night, although I dunno if it'll help because I strongly believe the problem's in my elbow (I wear it regardless :>). She also made an appointment for me to visit my doctor this Monday. I feel a bit less confident about my situation, especially since many people on this forum who've been diagnosed with BFS and have anxiety about ALS have been through it for at least a year or longer in a lot of cases. All this has been happening to me, and a week hasn't even gone by! I guess I'm just asking if it's possible if the twitching is from BFS, stress and anxiety, or worse... Or is it too early to tell?Current symptoms: left sole is twitching, two last fingers on the right hand are still numb, right hand feels fatter and calf muscles and right shoulder blade are sore.~B
 
Hi!What you describe is the classic "I read about ALS, then the twitching started"-story. It's the most harmless form of BFS, but also often the most difficult to cure.You need to understand that your muscles twitch because you're in a state of hyper-anxiety. To make it go away, all you have to do is stop thinking about ALS and similiar diseases and not research them on the Internet. It's easier said than done, but if you don't stop this now in the early stages you will condition your nervous-system to this high anxiety, and it will be much harder to get rid of the twitching later. Go see a doctor, *believe* him and get on with your life.
 
I've read your story hundreds of times. It sounds very much like BFS and nothing like ALS, so you can throw that out the window. Yes, some people take comfort in having symptoms for a long time, but in reality its the NATURE of symptoms (and lack thereof) that make the difference. Feel free to wait months or years to feel relief, but rest assured that ALS is not capable of presenting symtoms as you have described. Go to the doctor and get checked out for your peace of mind, but I'm confident you will be fine. :D)
 
It's really uncanny at this point how similar BFS stories are to each other. I have been dealing with this for about 10 months now (getting very close to a year), and my anxiety over this has subsided quite a bit (and my twitching has as well - although it waxes and wanes). I wish I had read all these stories when this first started happening to me, but even if I had, I would have thought that I was the "unique" one due to all my health anxiety.They almost all follow the same pattern. We notice twitching, we read about it, and then boom, the twitching spreads, we become more anxious about it, etc.One of these days, some doctor is going to spend some time on this forum and find a very distinct pattern to our symptoms and our behavior with the symptoms.I think you really can rest assured that you have BFS. You may also have some sort of nerve entrapment issue (maybe carpal tunnel or something) with your numb fingers, so I would go see a doctor, for sure, but the overall twitching = BFS. What I do know, is nothing you're saying sounds like anything to be worried about!!Hang in there!Mitra
 
Thanks so much to all three of you for the reality check :) Today I woke up and I felt very weak and sore. I was about to fear the worst, but after seeing that someone here replied with some good news is a tremendous weight off my shoulders. Actually, now that I brought up my achyness, I wanted to ask... any advice on how to treat it or cope with it? Is there anything particularly special that you guys do, or does just a Tylenol suffice? Do you suppose this would be caused by my BFS and anxiety, or the nerve entrapment? Or perhaps this is just lack of sleep and I'm going crazy again :)It's good to know that I'm not an exception to the BFS rule and just like the rest of you, hehehe. Thanks again! :D)~B
 
I would try some ibuprofen (way better for muscle pains than tylenol) and trying to relax. Stop doing strength tests, they do more harm than good and likely are tiring out your muscles. As Johnny always mentions, in these awful diseases the symptoms find you, you don't have to search for them by doing strength tests. Another thing, if you search on this forum, is that many people experience exercise intolerance, meaning they tire out or feel more pain after exercising than most people do. This could be happening to you. You should continue to exercise, however, because it's good for you, but just the realization that BFS may cause exercise intolerance may be helpful.And, I would see a doctor, if I were you. Not to rule out anything serious (because I really don't think you have anything serious), but just to figure out how to treat what could carpal tunnel or a problem with your ulnar nerve. I have read that many folks on here have woken up with numb fingers (seems pretty common) but if there's anything you can do to fix it, you might want to check it out. (However, this comes from a person who likes to avoid doctors like the plague).Lastly, work hardest on alleviating your anxiety. This does wonders for most of us with our symptoms.Mitra
 
Mitra has a good point suggesting you need to check your ulnar nerve conditions, because if neglected, it would be getting worse and worse and first, it causes a hell of pain, second, the damages might be significant. However usually it is absolutely reversible if attended timely. you might wear an orthesis for a while or take certain physio treatments, and then just follow up regularly - and everything would be OK.Actually your legs might cramp exactly because you are sitting most of the day. I spend about 5 years for now in total with 10 to 14 hours of sitting work per day (no daysoff, two weeks of vacations per year), and my legs are now quite, ugmmm... not very muscular, I'd say :) sad to say!!!! sitting work kills, we should have that as a sticker, like on sigarettes ;)
 
Thanks again guys! :D) I'll take everyone's advice into consideration, especially if it'll help me feel better. The more the better. Also, I'm feeling a lot more confident. I came back from the doctor's just now. For my hand, he said just to wait it out, massage it a bit, and to come back in six weeks if it ain't better. As for the twitching, weakness and all the works, he took my blood pressure and then I got my blood drawn in a lab afterwards. So now I play the waiting game.On a side note, I was away from the computer the whole weekend and up on my feet since Thursday. Aside from the muscle pain that I got from walking around for hours (the kind you get after an awesome workout), my body felt fine. The twitching was practically gone and my hand didn't bother me nearly as much. Of course when I come back home it starts up again, but nowhere near as bad as that last horrible week. I'll take that as a sign to stay away from the computer and get out some more hehe. I'll see how that goes, and I'll have an update on my blood test as soon as I hear anything about it :) Anyone have any other advice on easing the twitching?
 

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