BabylonQueen
New member
Hi there! I'm new around here and actually, I'm still not sure what I have. But here's my story so far. Some help would be greatly appreciated
It started last Saturday when I was on the computer. I've always been on it, and it's never been a problem before, but for some reason on that day my thumb starts twitching and my pinky and ring finger go numb. I do some online research and of course I come across some scary initials... ALS, MS, etc. Naturally, I panicked, and the rest of my night is filled with fear and an overall feeling of crappiness. I woke up the next morning with my last two fingers still numb, but my thumb only twitching when I rested my hand on my stomach. I'm still feeling awful because of what I have and for the next few days I become obsessed with knowing as much as possible about all these dreadful diseases. Good news is, I find out that what's going on with my two numb fingers is most definitely an ulnar nerve entrapment, probably in my elbow because of the way I sit at my computer (I've been cushioning it with a pillow ever since). I read that it can be corrected, which was a BIG relief... but I was still concerned about what the deal was with my thumb twitching (looking back, I think it was just my hand resting funny on my jelly mouse pad. although I'm still uncertain). It stopped after that morning, but I still couldn't put my mind at ease until I knew what had happened. More research ensues, along with more panic and fear that I will die of ALS or something else. Since then, my mood's been on and off... just when I feel okay and reassure myself that I'm mostly fine (only problem being the nerve, of course), all of a sudden my body acts weird and I go into another downward spiral of fear.The fear started up again when two days ago, my whole body's twitching! Not all over my body simultaneously, but one minute it'd be under the sole of my foot, next my thigh, then my forearm, then my butt hehe. And on and on this twitch would travel. Sometimes in a few places at once. A few times it'd be more like a rumble, and sometimes just a large chunk of my muscle moves and it's more visible. I got extremely worried, trying to reassure myself that it was just all the stress and anxiety that was making me twitchy. But I couldn't help myself... I would lie down to try and relax and feel my legs trembling like crazy at one point. It actually made my stomach uneasy to the point where I almost puked. I keep the shaking under control once I relaxed, and I would tell myself that this kind of stuff happened before, but this time I couldn't help but think something much more awful was the cause of it
And so it continues. Every time I reassure myself that things aren't bad, a symptom comes up and I freak the hell out. One time it was my calf muscles feeling overworked and cramped up, even though I was sitting for most of the day (I strongly suspect this is restless leg syndrome, but I've never had a doctor check it out. I've had that restless feeling for as long I can remember, at least as young as 8. I've had them come and go, where one week the nights would be absolutely painful and not have any the next week, which might mean I don't have it 'cause I heard it's supposed to happen regularly. Could be wrong though. ANYWAY...) Then when I get over my worries about my legs, I start feeling weak and achy. My rational mind is blaming it on tiredness, but I do countless exercises to fight the fatigue and prove that I still had my strength. Every chance I get, I inspect my two hands to make sure my grip's still the same, and obsess over the differences between the two. Was my hand always _______, or did this only start happening now? I'd curl my toes to make sure they still move fine, run down the stairs, hop on one foot, and millions of other things to put my mind at ease. But yes, something else has to happen next to tire my worried brain, of course it does. And this one probably scared me the most... I got twitches on my numb pinky and along that same side of the hand (between the wrist and the knuckle where it's all fat and meaty, hehe). I took this as a sure sign that my hand was going to slowly lose muscle and eventually die on me. I'm really worried about all this mostly because I'm an artist. The whole incident happened with my drawing hand, and I couldn't help but worry like crazy because I would be DEVASTATED if anything were to happen to my right hand
I've been reaching out to people for help. My boyfriend has been amazing, and so has another good friend of mine. I was hoping I could get some similar support here :>. I also told my mom about my hand and the nerve and she gave me a splint for my wrist to wear at night, although I dunno if it'll help because I strongly believe the problem's in my elbow (I wear it regardless :>). She also made an appointment for me to visit my doctor this Monday. I feel a bit less confident about my situation, especially since many people on this forum who've been diagnosed with BFS and have anxiety about ALS have been through it for at least a year or longer in a lot of cases. All this has been happening to me, and a week hasn't even gone by! I guess I'm just asking if it's possible if the twitching is from BFS, stress and anxiety, or worse... Or is it too early to tell?Current symptoms: left sole is twitching, two last fingers on the right hand are still numb, right hand feels fatter and calf muscles and right shoulder blade are sore.~B


