inzTwoToneTunes
Well-known member
Maybe it’s the quote I read today. Maybe I'm just tired because I lost an hour of sleep. Maybe I'm excited that spring is almost here. Maybe I am feeling nostalgic because I am coming up on my 5 year anniversary when all this stuff started. Or maybe I am just feeling sappy at the moment. Either way I feel like saying something.As some of us move in to springtime, let it be a new beginning of your life! That’s what spring is all about. New life. I see baby lambs and cows and assorted food items and think "I am happy not only to be alive, but thankful that the life crushing fear of als is almost non-existent." I still have twitching, cramping, burning, tingling, tightness, frustration................But I LIVE with it. It took me a LONG time and with God's help and some hero's around here, I came through. AND YOU WILL ALSO. Keep fighting. Keep moving. Keep believing. Keep going. You will get through this. Eventually you will have enough. You will hear us say it enough, have enough neuro's say it enough, read it enough. Whatever it is that gets you there will keep you there. BFS is not fatal. It is life changing, but not life ending. . I remember sitting at the als clinic 2 years ago, after my 4th emg and saying "I have got to buy into the BFS thing now or never. As I left the clinic I was riding the sky rail looking down on the houses and people and I swear I could feel life start to seep back in to me. It’s hard to explain. It was about a 3 hour drive home over the mountain pass but it seemed like 3 years. It felt so good to see the flowers and the mountain. Things I used to enjoy until the fear of als robbed me of almost EVERYTHING. Fear of als robbed me of moments. Moments that I could have enjoyed. Moments I will never get back. But on that ride home I decided to experience those moments again. Experience new moments. I stopped and talked with people. I got out of my car and looked at the mountain streams. Went into some small stores and bought some weird stuff. I was aware of the world around me again. I still had a ways to go in conquering my fear, but my new journey had begun, it felt good!As spring rolls in and summer is on its way I pray that anybody that is in the grip of the beast known as fear of als, PLEASE PLEASE KEEP FIGHTING. I promise things will get better. You may never feel 100% or maybe you will! Maybe you will feel much better and appreciate your life more. Either way please start your new journey.The quote; (about moving our clocks ahead and hour)“Time change today. Life change tomorrow.”DDPS Geez that was sappy. I think I will have to go outside and do something manly like chop down a tree or rebuild my car engine. I wonder how many man points I just lost talking about flowers. 
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