Never Fear Judgment Here

[MsMaverick]

First off- NEVER fear judgment here. We've all been there in one degree or another. I'm so sorry you've had to deal with all this. Please know that you are not alone, that's what we are here for. I too was a complete mess when I first started coming on here, and I honestly don't know what I would have done without these members. Hang in there, I know it's hard. Post as often as needed without fear!

 

[abbitBouncyBunny]

Alot of us has been down the same road, don't feel bad. Sometimes just typing or writing your feelings out can be a great form of therapy. I'm so sorry it has taken this big a toll on you. I was doing outpatient therapy at the begaining of this myself. I wanted to kill myself but could not get up enough nerve to go thru with it. It seemed that Nobody understood what I was going thru, and still I have struggles and wonder if it will ever just go away. My life is getting better by just ignoring my fears and going on with my life. It is scary and uncomfortable, but it is benign none the less. Keep in mind that they are alot of us here, and alot more people out in the world living with this syndrome. Your not alone, and the light is always on here for you to come too and express your fears. Alot of good people here that understands....Good luck, and soon you will get to a place where you can live with this. It takes some longer than others but we all get there. I still twitch, tremor, rock, rattle, and ratchet all over, but I refuse to let it stop me. I used to get mad when people would tell me it could be worse, but they were so right. It can also be better, so try to ignore it and it will slowly fade into the background. God Bless )

 

[ShannyB63]

Hi Martin, I'm so sorry you have been thru all of this...but Randy is right there are so many of us, me included who have gone down the same road as you did, you most definately are not alone...i thought about ending it too in the early days with this, I just didn't know how I would do it......i couldn't get my head around how this could all be benign..I was convinved my neuro had done the test wrong too...it's all part of this journey we are on with bfs...I am off work too because of my anxiety disorder, there is no shame in anything you are going thru...and I think you did great at writing your feelings down...remember there is probably nothing you could say on here that hasn't been said before, we are all different people sharing one horrible disorder..bfs...and I'm glad you have had all the tests and they were all fine....bfs is a weird thing, lots of weird tremors,twitches and sensory stuff....I am doing cbt with a therapist to help with my health anxiety....keep posting remember you are not alone, we all have our different struggles with this....god bless you and be strong.....hugs from Shannon...

 

[christinasgirl123]

Hi Martin, I absolutely can understand that this stuff was scaring you to death (almost literally..). These things can drive you absolutely crazy. You know weare sharing a lot of the hand stuff. I was down the road very quickly, but also got a good portion of the way up again quite quick. This was due to the help of these people here, anti-anxiety meds and a very good and understanding neurologist. I can only recommend : look for someone who helps you. Start psycho-therapy. And there actually ARE meds that can help with BFS. Not only the anxiety, but the symptoms. Only because it is called benign it doesn't meant it's not absolutely terrible sometimes, I know the nights waking up startled for no reason, jerking , the tremors and the stuff. The SSRI's that were making me feel even worse at the beginning helped me with this fear a lot and do not affect me in daily life, although I'm not sure if the docs will let you go through the first weeks alone at home as for the attempted suizide. We are here to listen to you.

 

[ShannyB63]

Hi Martin, glad your going to post more..and dont worry about the hands, mine buzz very often I actually had a hotspot in one hand for 8 days straight it buzzed non stop...now it buzzes off and on as do my feet...which are also twitching like loons along with my calves...and yes getting a grip of that anxiety monster is the key to all of us...good to hear from you again...best wishes shannon

 

[kschoenhaut]

That's why we're here, i will support you all the way man, from your avatar you really have some people you should fight for, don't give up, and if you feel down post here, i will never tell you it's in your head, i will help you get through this because unlike doctors, i know how it is to be afllicted by a mysterious illness. Take inspiration from people that actually have a crap diagnosis and fight and leave a mark on humankind, steven hawking, michael j fox and Terry Fox. When i feel like *beep* i go and read about their lives and how they acieved a million times more than i will ever achieve.

 

[sanfordSKnorton]

Hi SilverbulletI also have this weird sensation in my chest as if a hummingbird was flying in there Not so funny, though..Remember one day I almost fainted as I let it happen without trying to stop it. My blood pressure went up considerably and I was all scared. It happens to me still but I am able to control it somehow. When I feel it coming I take a deeep breath and hold it for a while and it passes.. This way I don't let anxiety get to me as I don;t give it much thought. As far as head trembling is concerned I had it too but it should go away with time..Trust me on this one - I was also scared sh-s when I woke up one day and I could feel like my head along with my lips was shaking. Free of it now My experience tells me the worst symptoms happen during the first 2 years and then they ease a bit. For example at the moment I only suffer from twitching in my right calf / nerve damage from my spine/ . My left leg was weaker for some time but now it is as good as new. Trying NOT to think about it definitely helps , at least meHope it helps.

 

[exyDexter3x3]

Hi I am also sorry to hear this condition has done this to you but like everybody says we have all been there in one way or another....I only have the twitching in my thighs and it has stopped for a week now the right leg was intermittent today...I just try to let it go sleeping is hard....