Needing Reassurance with Twitching

[Eliasios]

Hi All - I really need your reassurance with this. I'm having a really bad day and of course read other links that's got me frightened. I have been twitching for 3 years now and while I was pregnant I started having pain(11/25/07) in my lower right leg and it's still there today. My entire leg, foot, back has pain on the same side. I had an EMG done in March 08 and he tested my entire right side and all was clean. I am really scared right now after reading other sites and how pain can be associated with **S. Do any one else experience pain like this. I have a follow up appointment with in next Thursday and I would really like some advise on what I should as the the neuor. I do trust him as he performed his residency at the Mayo Clinic. It seems I always go to my appointments and freeze up and don't ask anything. What if any advise can you give me regarding my symptoms and how I should approach my doctor on my next visit. Please any help would be great.

 

[TompeteA]

The first piece of advice is do not do any more research on A"". You will find something somewhere that will fit your situation, in your mind at least. I was guilty of doing the same thing, but now refuse to go to any of those sites, they are counter productive. I did learn one thing that may help you, the average time from the onset of symptoms to diagnosis of A"" is 13 months. At 3 years your odds are slim and none, based on this, and your clean emg over 2 years of onset of symptoms. I also know that the fact the symptoms are still present, and now presenting in a new fashion, it is hard to let go of A"", and you may have read many stories on this site of people who are now symptom free, but for eveyone of those there are many more battling away. I had a neurologist tell me due to my A"" fears, "in 10 years you will still think you have A"", but you would have been dead for 8 years". I myself am almost at 3 years, and honestly, still struggle with it due to my symptoms. Some advice for you doctors visit, write down prior to the visit all the questions you want to ask, do not make the list to long, just hit the key worries you have. I would straight up make the point that you just cannot shake your A"" fears and ask them to talk to you in detail about the disease. Mail it to him/her asap, since your appointment is coming up soon. This will let them know you want some time to talk. When your at your appointment and having your discussions, never cut the doctor off, just let them go as much as they are willing, and be very polite. If they are rude in return, get up and walk out and find another Neurologist, that is what I did. Good luck with your appointment

 

[percryston]

Although I have not been diagnosed with BFS as of yet I do have many of what appear to be the signs and symptoms and I can assure you that I have had pain and stiffness and difficulty using my right leg on and off for the five weeks since this all began and in fact have kept more or less constant trouble with it for the past two weeks. I am going next week for an EMG so I am hoping to get a little better idea as to what is going on after that is complete. I keep a stiff/heavy feeling in my right leg and sometimes on my right side in general, have pain in my leg both in the form of dull and numm and occasionally more of a sharp and shooting type. My knee pops and clicks when I walk or kneel down and stays stiff and sore most of the time and the muscles in my right leg seem to stay tensed and almost in a "pre-cramp" state more of the time than not. Im not sure if any or all of this sounds like what you have experienced but I thought I would offer my experience up. Just rememeber there are so many ways that we could all be so much worse off, be thankfull that you are as well off as you are and look foward to the better days because they will come.