Navigating Complex Relationships and Mental Health

Okay...so my blood work came back normal and my GP gave me a long lecture about starting an antidepressant which I again politely declined. I am taking ativan at night for sleep but since I care for my daughter during the day I don't take it then. She said if I wanted I could proceed with the neuro so I am. She referred me to one who I actually used to personal train (talk about a complex!! Personal training a neurologist! I thought she should be training me!) but she is out of network for me so I am seeing one I saw a few years back for headache issues. My appt is 11/21 and I am going nuts. My symptoms seem to be the same, them worse, then I'm not sure...I'm all over the place. I spent all day yesterday reading, researching, obsessing, crying (a LOT of crying) and of no course I am no better today. So here's what I have going on that has me terrified. I already posted about the sleep disturbances. The ativan helped the first night but no go last night. I woke up multiple times with the whole body internal tremor and a few times with it in one spot (particularly my left glute). Then I had a twitch or a hitch or a catch or whatever in my breathing. Twice. That about sent me over the edge. It was like a hiccup but with no hiccup? Just a quick twitch or something that caused me to rapidly suck in air. It was extremely distressing and disturbing. My twitches are predominately in my left leg (the whole thing...sometimes calf sometimes thigh/hamstring/glute) but I get the occasional in the right leg (mainly lower). I do have increased muscle fatigue. And what's really bothering me is this odd almost tickly/sensitive sensation in my left leg. You know how when your leg falls asleep and starts to wake back up theres that feeling where it's super-sensitive? Almost like a tickle but more an overwhelming senstiveness if you put weight on it or move it. That's pretty constant right now. Anyone ever have anything like that????? I'm convinced I have upper leg weakness but I can still get up out of chairs and manage stairs so I guess it's perceived? I'm so new to this and don't have any results to fall back on for hope. I'm here in a tailspin until the 21st of November and that's a long time away. Please, anyone, help me feel better about this crazy crazy so I can at least have a quasi-normal existence until the appt.
 
Mario is 100% correct!!!First things first. Stop researching. Stop stop stop. Stay away from Dr Google. In fact, I'd say to use caution in searching this site as well, since it's easy to internalize other BFS members' fears and make them your own, especially in the beginning of your BFS journey.Secondly, you need something to take away your anxiety. I benefitted from acupuncture and Chinese herbs, others have used therapy and meditation, or yoga. Take comfort in knowing that we have all been through what you're going through. I had jelly legs, sleep issues (waking up 6x a night) severe anxiety, trips to the ER for Xanax, etc. You are not alone...what you have is BFS and it's benign. take care and God bless.
 
Thank you for the encouraging words. It's nice to here that my "symptoms" aren't interesting or remarkable. Sometimes, okay all the time, I need to be constantly reassured. I need to hear it from the nuero. I need to know that I am crazy so I can let the crazy go. So sad. But I guess it's good that I know that? I have searched a lot through this forum and it's mostly helpful but I do have a few more questions. The areas that are twitching the most are the ones that are having that sensitive feeling.That's to be expected and normal right? They are also the ones feeling more fatigued. For instance my left glute and hamstring are quivering whenever I activate them. So if Im bending to pick up things I feel them really quivering away which is what makes me think they are weakening. Tell me I'm crazy lol. Please?
 
crazy crazythey are trembling becasue of hyperexcitation. and stretching. Even healthy muscles tremble when stretched (ask anybody who is just doiung his or her morning stretch in the bed (oh hell I am yawning even writing that!) - and they will tell you their arms and legs are trembling - if only they would be happy of being asked in the middle of that sweet and partly orgiastic ritual :))and yes, it is normal that twitching spots are sore and fatigued.and many of us just have excersise intolerance up to the pain in the arm when brushing hair ot teeth or pain in the legs when walking.
 
My knee is super sensitive. It's weird. It twitches too. What you need to do is be glad you are seeing someone and its not that far off. Use the period to try and relax and if you can forget the worry. I know it's difficult but that's what I try and do. I kind of pretend its all ok and I have time to see whats happening but at least you know you are lined up to see someone almost as a backup. Which I know it's not but try and view it that way. I don't know if I'm making sense? Xx
 
Thank you everyone! It's unbelievably reassuring to hear you aren't alone. Hopefully this is all nothing and I will be fine. The fretting over it all is exhausting. And the waiting..it's unbearable. I am glad I found this group of people to keep me grounded!!
 
Not only are you not alone, we all find your story quite boring. That should tell you something about how worried we are about you. :D) By the way, don't think of your appointment as "OMG I have to wait a month until somebody tells me I am okay!!!" Think of it as "Oh crap, in a month I gotta go through this sh-t again." Don't look at your appt as a lifeline, look at it as an annoyance. That is the quickest way to stop focusing on your symptoms and just move on with your life.
 
I had this awful restless leg syndrome type ticklish sensation in my arms and legs that only hot showers or soaks seemed to help (temporarily). My right lower leg had this aching/wrapped in duct tape pressure for months. And many other crazy things I don't even care to get into. I had quite a few sleepless nights. But in the end, all the doctor visits and tests were just a waste of time and money. I found out none of it held the answers I was seeking. Now days I do experience some of same things, albeit to a lesser degree. But I do not lose sleep over them. One thing I wish would happen is that BFS would be renamed. 1. The word "benign" is a disservice to people who often suffer quite real and debilitating effects. 2. It involves much, much more than fasciculations.
 

Users who are viewing this thread

Back
Top