Mystery Pain in Random Parts

kphantom26

Well-known member
Hi guys. I am 33 yrs old. 5 months ago I started to get migratory toothache type of pains in my body. Mainly they hit ankles, toe/s, finger/s, hand/s, spine. The pain can quickly hit for about a minute then go away only to hit the same spot hours later, or jump to another body part. The pain is very deep, thought it was bone cancer or leukimia at first. A few days after this started I began getting a vibrating in my right foot on and off, like a cat was purring on it. Now this vibration has been in my left foot for months on and off, and sometimes it tingles. Sometimes its a quic buzz buzz other times its there all day long. About a wk after the onset of the pains I began having EXTREME joint cracking all over my body. Extreme--like 15 cracks in 10 minutes, this has gotten worse, and now my joints pop out of socket at times--I stunned my dr with this. For 3 months I have had NON STOP muscle twitches ALL OVER MY BODY. Sometimes they are visable other times they arent. Sometimes they are big hard twtiches, often they are little pulses deep in my muscle. These are all over and I am getting them even at night-it wakes me up.For 2 wks I have been getting muscle cramps. Like my muscle compresses and then releases-it hurts badly and happens all over--maybe twice every two days.I had an EMG about 1.5 months ago and it was fine. My MRI of brain and spine showed no lesions though it was w out contrastI met w a neuro yesterday who said usually ALS does not have pain. He also said that sometimes it does not show up on an EMG right away.I AM PETRIFIED. Maybe I got an EMG too early so it did not show up as anything? I had no twitches during the exam of the EMG test so does that matter?I have been blood tested for EVERYTHING-yes everything, all is good.Please help me understand this. Should I get another EMG??I am worried that this joint cracking and popping out of socket is due to muscles wasting slowly and that the twitching all over is due to this as well as the cramps.
 
there it is again....is an emg reliable or not.....i read always the stories and sayings from neuros that an emg does not always show up als at the beginning. what is true now, i want to know!!!!!! my neuro from the als-clinic in switzerland told me, they would see minor changes even prior to the first symptoms of als!!!!!
 
I also feel as though I am trembling inside...I am thinking I should request another EMG.My question is does full body muscle twitches often come up first with ALS??
 
Really??? I thought the twitches were all over-my neuro said with ALS it is usually all over? I am PANICKED.I had an EMG that was fine but that was when it FIRST started.Is EXTREME cracking a symptoms of ALS? This started before the twitches and when I say extreme I mean VERY VERY extreme about 150 times a day, I was NOT like that before my pains started ( I get deep shooing pains around my joints that hit all over)
 
Thanks for educating me on this. My neuro obviously freaked me out. He also said MS does not cause pain which I knwo is not true!Okay so for me-DEEP breath, clean EMG even if it was early it would still show up and also muscle twitches EVERYWHERE is not a sign of ALS. Thanks again for taking me off the ledge!You sure know a lot about ALS and BFS!
 
How there could be neurologists who tell you with ALS is typicall widespread twitching?! If it comes to LATER stages of diease, he is right. But in the beginning?! I guess he has never had ALS patient and also isnt smart much - probably he just remembered from textbooks that fasciculations=LMN damage...Its not true, only in later stages asi I mentioned above...
 
Hey yall its the weekend and IF YOU SMELL A SKUNK I GAURANTEE YOU THERE IS ONE AROUND! I've been on this site long enough. Don't take this posters thread to heart. I laugh because ALL OVER the internet from CCF neuros and ALS specs it says "WIDESPREAD ONSET is always most likely benign". I do apologize if this thread is innocent and you had a QUACK but guys like I said if you smell a skunk...it usually is one.(p.s) screen names are always dead give aways to me and also WEEKEND frantic posters. Why didnt he freak out on Friday? Prob cause he/she had more time this weekend to sit around and think of whom he wanted to screw with mentally! Sorry if I seem harsh but I've just seen this crap before and its dead on recongnizable. Give Alonzo and or Gary a chance and they will figure it out. Infact I will link this thread to them. Again, grain of salt.We know the truth guys.ALS is LOCALIZED. Sure 6.7% reported widespread twitching- it is unknown if any other symptoms were reported at the time and NO EMG was performed. STICK TO UR BRAINS AND UR GUNS And dont let this get to you. Enjoy your weekend.Lovely :sick:
 
Lovely- First off I am not a "skunk", I am on here looking for answers like everyone else. I am afraid of what my dr said came here for reassurance. Your rudness is not appreciated.Furthermore, the fact that I posted on a Friday night has nothing to do with my life. I live in big city, and am not 21 anymore where I feel the need to go out everynight-especially when I am feeling sick as I amSo please, stop jumping all over people that post questions in search for answers. YOURS are not the ones that we are looking for!
 
Thank you ncguy! I do have other symptoms such as body pains, numbness and buzzing in my extremeties so I am still undergoing tests for other possibilites
 

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