Mystery of Widespread Twitches

puregamer2

Active member
I'm only 15, and been experiencing Widespread muscle fasciulations over the past few months. I've had twitches for years, many a day, but it never drove me insane like these are. Every few seconds a new area jumps, with the occasional twitch that lasts more then minutes or hours, even days. I was at the doctor once a month ago and I was dehydrated, got an IV, went home. Things didnt change at all. Yesterday I went to the doctor and was told it could be from sitting at the computer almost all day over the summer and now with no exersize, severe anxiety and depression. I was scared for weeks I had ALS, still not fully cured from that.Only thing that keeps me going is ALS twitches last no matter what, they cant be activated, correct?When I stretch or bend a muscle, it tends to twitch, self-activated twitches, for a few seconds or longer. My doctor says thats normal for my age because I dont get any sleep AT ALL, Maybe 5 hours a day for the past 5-10 months. She says my body is growing while im awake, when it should while im asleep. But since I'm never sleeping the full 8 hours, it happens during the day, and thats why I twitch, does that sound believable?I am trying to aim towards a deficency or BFS. They seem to calm down when im in movement or relaxed, because if I ever get scared over a twitch I dont like, my heart beats fast, and they feel like popcorn, increase intensly. I'm on a few vitamin pills and sleeping pills to get more RAM sleep.My question is, Do you believe that is the cause of my twitching all over?-No sleep, I ruined my body from staying up all night over the summer, almost 3-6 days a week all summer 24 hours a day-Eating junk food with no exersize, sitting at the computer all day (I am underweight, good metabolism I say, I really dont eat much, but if I do, its junk)-AnxietyDo you're twitches become more frequent when you become scared? I still have feelings that I have a dreadful disease, because they are so frequent, its hard to go 30 seconds without a twitch, and I'm so young to be stressing out over these.I'm taking Flaxeed Oil, forgot what these were for, just a supplment.Magnesium Supplments, Huge cause for twitching, sometimes they seem less frequent when I take theseVitamin B Complex, Doctor says low B12 is a huge cause for twitching..I never eat cereal, maybe thats it?Melatomine - Sopposed to help me get into that deep sleep so my body can finally relax and grow while sleeping. Not sure if the pills work, started taking them yesterday.There isnt a day I wake up and think about the twitches, which is bad, its become a habit. I wake right up and part of my mind is thinking about these things until I go back to sleep. Usually when im not thinking of them, I feel them less, until I get one that keeps going on, then my heart races, it starts all over again.I twitch mainly in my stomach area, fingers and legs/feet.Even if I smile hard enough, my mouth twitches. I was told point blank from my doctor that its natural for a boy without sleep in my growing stages.Any intake, Experiences?Thanks
 
Puregamer,You got to believe what your doc tells you, she explained this pretty well to you. You don't sleep enough and your young body requires a great deal of energy to grow and repair itself. You do not need to worry about ALS at all- your young age, lack of any clinical weakness (after years of twitching!), on and off twitching pattern exclude you from this category for sure. Hopefully you can get enough sleep soon and get off those sleeping pills. Yes, your anxiety can very well increase your twitching - if you try to put them out of your mind, they may just go away on their own. Your twitching is completely benign, go and enjoy your life! :) Kat
 
If the twitches are keeping you from sleep for months on end and if they interfere with your daily life, ask for something to help decrease them. I use Klonopin. Go with your doctor's advice but make sure he/she knows what the twitches are doing to other aspects of your life. You have to weigh the risks of the drug with the risks of the effects of the twitches regardless of what is causing them.
 
Thanks for the reply. Yeah I tend to go crazy over anything. Heck, if I have any twitch for more then a few seconds, my heart races and I go running around the room..literally.The thing I dont understand is, now everytime I lift something using my right thumb, it starts to twitch rapidly for awhile then it calms down. It's strange. No matter what I do with the muscle, it rapid twitches and feels horrible.I dont have necessary weakness, but I am just scared of using the muscles because they will twitch. I need to slowly lift more and exersize, so my body can get used to it, maybe?When I walk, I dont feel any of the twitches in my legs or stomach because im in movement, so if I had als, I probably wouldnt have the strength to walk for an hour, which I do alot now because its the only thing that can calm me down, besides the fact my muscles twitch like crazy afterwards.I still cant run, I run a few seconds and im tired, I can push myself to do it longer, I keep trying.I still havent had any deficency diag or anything, but i'm going to go ahead and say I have what the doctor told me. Still cant get my sleeping schedule back, I dont get tired until 1, and I need to wake up at 6! It's horrible. That MAY be whats killing me from the inside.Since 3rd grade, I would always go to bed pretty late since I didnt have a bed time. like anyone else, they become more frequent when I worry about them. But im curious about als,1- With ALS, would one muscle twitch, stop, and twitch in another area? Or would it be constant in that area-My arcs of my feet have been twitching 24/7 but sometimes so light I dont feel them or if I walk long enough, they get harder when my blood rushes harder-I get headaches alot, I get dizzy, tired easily, ect. Which I was told was a big sign of no exersize and anxiety.On my 2nd or so month of twitching continously, Slowly accepting them, but dying to get rid of them.I'll keep taking these vitamins and will hope they become less frequent.Oh btw, I've been having lots of tingling around my body. Not in big places, but occasional small areas like my knees, hands or parts of my legs. Another sign of Anxiety, perhaps. No exersize can kill your body! I regret sitting on the computer from day to night for the past 3 years. When I was active, I had less twitches, but now all I do is think of themThanks guys, if you know ANY home remedies I can do, or if you are certain what my problem is, please reply.Oh yeah, I forgot to mention its hard to breath. I spent years taking Afrin because I had a cold and got addicted, but I've been off of Nose Spray for over a year, but still cant breath well. Thats what drew me to ALS and Diseases. My dad has the same problem and says its def. a deviated septum, which I'm not sure. One side is clogged, then it switches back and fourth, sometimes I breath normal and usually when im laying down to sleep, one nostril is clogged badly. Another annoying problem :(
 
Below is the best info/advice I can give after having sudden onset bodywide twitching and tingling at age 37 starting 16 months ago. I have no weakness but have seen six neurologists and have had more tests than you can ever imagine. I still have no clear diagnosis. The following advice is based on my experience going through it all and still dealing with it daily.If you can figure out a way to sleep and do the things you normally do with no problems then do not visit doctors or take medication. The doctors can only really help you or will only want to help you if you need to reduce your symptoms for quality of life reasons. There are lots of immune-related and genetic things that can cause twitching and tingling. These may be part of your problem. But if they do not interfere with a quality life, then there is nothing worth doing to investigate it. And even if they do investigate, they are not likely to find a sure answer but rather just an educated guess. So 100% answers are really hard to come by in my experience. There is usually not a test that reveals the smoking gun unless you have some severe deficiency and in that case you would probably have more severe symptoms. The major diseases cannot be ruled out 100% ever. You just get 99.9% certainty based on likelihood factors such as age, type of onset (sudden onset bodywide twitching is not typical of ALS), time lapsed with no weakness (ALS usually results in weakness within at least a year of twitching even in the rare cases), etc.This board is proof that lots of people have odd neurological symptoms that remain odd and without clear answers but do not lead to disability. Sometimes this fact just has to be accepted and taken as great reassurance when you want to jump to the worst case scenario conclusions.
 

Users who are viewing this thread

Back
Top