My Twitches Everywhere, But Left Side Worse

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DesiredLife321

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Hi My twitches can happen anywhere. Strange places like ribs, shoulder blade, chin.....everywhere! However, my left side is worse and has additional problems. Left shoulder blade and funny twinges. My shoulder cap started to feel strange. I say stiff but this is probably not the best word..... It feels like I have something tight around it, and through out the day it can get tighter moments. I find that this area has lots of twitches: some I see and some I feel but don't see.I have the arch/sole of foot with same issues. I feel the need to rub it but doesn't always help! I have the thigh and calf affected similar. But becomes worse when I walk on it! It is the same as the above body parts: annoying and not comfortable. Left thumb pad is the same: but I see the twitches with my iPad touch! My reasons for als fear is due to the discomfort spreading to all these areas on one side. I have never seen Neurologist. This has been slowly going on from September 2013.I am not
 
Dear DesiredLife321, my problems are similar. I began to twitch in september 2013. My twitches gets worse over the months. The main parts are calves and feet (24/7), thighs, left arm and left thump muscle and sporadic series of twitches all over my body including back and abdominal. My left body part is mainly affected! I have there much more problems. My left calf and my left arch of the feet is smaller than the right ones. My left wrist hurts and the fingers of my left hand feel weak. The last days my left upper arm hurts a lot, also my left shoulder. I have read very often that a lot of members have one side more affected than the other. If you have no real weakness it will be just bfs! Your description is extremely typical.
 
Have you had tests before? I knew people had twitches affecting one particular side. But it's more the tightness, cramp, exercise intolerance on one side that worried me. Felt like I could handle twitches, but then the other things freak me out. We so sound very similar! Have you been craziness to do the touch test if staring at limbs to look for tiny twitches? Or is that just me being insane?x
 
the perceived (I hope so) weakness in my arm, wrist and fingers is always on my left side. My left calf feels weaker than the other, my left foot cramps more than the right one. But I have also cramps in my right calf and foot. Beside my strong twitches I can feel and see, I have twitchers I do not feel. Sometimes I can see twitches on my left hand, which I cannot feel. If I stare long enough at my hand, arm and wrist I notice also tiny twitches. But most of the time I avoid to do that, because I am worried enough about my strong twitches in my feet and calves. Last week I noticed tiny twitches at the arm and hand of my friend. And he has not bfs... I have visited some neuros in the past and I have 4 EMGs (one extensive and the other three from only one muscle)But all of these neuros told me that an EMG is not necessary if the clinical examination is ok. The last neuro, a neuromusculare specialist told me that twitches without clinical weakness are nothing. They are not pathological. And you do not have clinical weakness. Nevertheless I understand your feelings, because I am also anxious because these strong symptoms are so bad to handle. I have also problems to sleep becaus my twitches are so strong.
 
Thanks for sharing! I get the strong ones too. Also get a crawling feeling over my palm and sole if foot. Just been doing strength tests which are bad idea. Soon as I start hopping my leg feels like it will give way if I don't stop. Shoulder and arm feel uncomfortably when raised above my head eg blowing my hair. I think an emg may help me either way But need to get past GP first x
 
I have exact the same: I have pain and an extreme weak feeling by lifting my left arm, for example by blowing my hair, I need more than one break by doing that. Exact the same. I have problems by typing, because my left pinky finger feels weak and my wrist hurts.
 
Do u suffer from general anxiety, health anxiety etc? I'm 29, had health anxiety for nearly 2 years. I lie here on my bed, with my body twitching like Christmas tree lights!!
 
It's rubbish and I get annoyed with myself for the way it rules me!!I let it take over. I google, stare at myself, test myself, cry!Wasting my life worrying!!
 
Hi !I am only 2 months into this twitcing , and it is also The left side of my body , specially leg and foot , but also my left arm and left side of my face , near my mouth. I am so scared , i went to A neurologist after only 2 week of twitcing and he made A clinical examination which was fine and told me that he Would not recommand EMG because there was no sign of A.. But i am still scared and my GP Said to me today that she is convinced that i have anxiety and that courses The twitcing. 10 days Ago she gave me MIRTAZAPIN ( antidepressive ) that should let me sleep better , it helps me sleeping but i now feel dizzy and today my Right leg feels stiff. I realise that i am very scared but it is because of The twitcing and not The other Way round as my GP Think . I Tried to tell her about my symptoms but now she Wont listen because she is so convinced that it is All anxiety. I dont know if want to continue with mirtazapin , i have Read that muscle pain and twitcing is A Common sideeffect ! I am 55 year and have never had Health anxiety before so it is hard for me to believe my GP , i only Can hope that The time Will show me that it is not a..Bibi
 
Oh the anxiety/twitching circle.....I'm the same! I stayed on meds to show that anxiety was managed but still twitches! I am now off them. :-/ I feel medications helped me a little but didn't stop symptoms. That's why I've never got past GP!
 
What are your experiences with the weakness or perceived weakness? My concern is that my symptoms are early MND and will lead to complete weakness and inability. People who have MND don't just wake up and realise they can't do something, surely? I'd have thought it would be gradual changes ie stuff feeling, tired when holding limb a certain way!?
 
Usually (for most common cases) they wake up healthy and then just during the day find they suddenly can not use fingers etc. This type of onset is described many times. One of the fellows here described her aunt died with bulbar onset - she went to bed health and woke up unable to speak clearly so she decided she got a stroke overnight but it was ALS... One of the recently joined fellows had her mother died from ALS in several months, and this case was like his mother had started with heavily dropping things and in few weeks she was paralysed... If they have eventual development, it is anyway very quick (days or weeks and never months and years).remember the rule of thumb for ALS - FAILING NOT FEELING.percieved weakness never restrict you from action. clinical weakness limits you or clearly prevents from action.
 
DesiredLife321,my mother was diagnosed in ALS, it was limb onset (her feet first), and I can say, once she was running after my little girl in our garden, next month (3-4 weeks later) she was visibly dragging her feet, tripped and fell, again and again. So within a short time, she had severe clinical weakness. Twitching started well after this, on nearly completely useless limbs.
 
I think it's when I read ALS stories and people have said "it started with just..." That's where I think "oh crap"I'm very sorry to hear that your mum has ALS. Have you come onto this site because of your experiences, or due to having bfs yourself?
 
Some other members and me have relatives with ALS, then had twitches.I started twitching 6 weeks after my mom's dxd. At that time our family was coping with several other issues, so I was very close to a total mental breakdown. I created my theory about familial (inherited) ALS and insisted on it. The neuro was not really interested, as there are no relatives in my family with ALS. Now 14 months have passed (I forget to post at my 1yr anniversary), ans twitches and bizarre sensations come and go. I do not have clinical weakness, I do everything normally, so after this time I accepted it is really BFS, caused by googling ALS stories, health anxiety, extreme overload, grief etc etc.
 
Sorry, I forgot to mention that I my left side is also far worse than the right side (sensations, perceived weakness, twitching). My twitches started at my right foot 14 months ago, since then the pattern of twitches have changed several times (scared me to death). For 6 months my left side is more affected.
 

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