I posted a few months ago and I have talked to a few people on here but I am a mess. Here's why:20 months ago (yes, I am counting like a nut, lol) I had this weird feeling that I was having to work harder than usual to pronounce words, especially words with an "s" sound. I am a nursing student, came across the word "dysarthria", googled it, and it has been a rough, downhill slope from there. My grandma died of ALS (in her 70's, but still) and every site pointed to "bulbar ALS". Especially the sites where people who actually do have ALS share their stories. They scare the bajeeses out of me. Anyways, here I am 20 months later with a twitching tongue and STILL can't talk. I can't tell if it's progressive or if I just have good and bad days and nothing is really changing. I am having a hard time dealing with it (REALLY hard). I literally look at my tongue numerous times each day and every time I look, my tongue looks like it's getting skinnier. I have tongue twitching almost every night now, or a weird sensation that I can only describe as twitching. When I stick my tongue out and flex it, it pulls to the left. However, my major issue is that I cannot speak without the sensation of difficulty. I cannot say "s" words. I must mention that I have always had a slight lisp, but it seems exaggerated. And when I say I cannot speak, I mean....this sensation is here and has been here every day, every time I speak for the past 20 months. Sometimes it's more pronounced and sometimes it feels clearer but I never ever get a break from it. I don't know what to do anymore. I have been to a few neuros (4 to be exact), had ck levels (twice), aldolase levels, sed rate levels (not sure why) and these were all normal. About 6 months ago, I had an EMG of my right arm and right leg and that came out clean (and have asked 2 neuros to do one of the tongue but they refuse) . I have been to 2 ENT's and had a (normal) swallow eval. The neuros I have seen are convinced nothing is wrong with me but I feel there is. It's so frustrating for this feeling the be present EVERY time I talk. I want to relax and not think about it but talking is something I do all day every day and every time I talk, I feel my tongue is weak and the panic cycle begins again.I have tried Zoloft, am on Xanax (which improves the panic but not the speech...and also makes me very tired), tried therapy, yoga, vigorous exercise, swimming, reading...everything. I am a complete mess. Does ANYONE have any advice? I'm afraid I am on a slow path to death. I have read that bulbar als is quite aggresive but stupid google tells of stories of people who have had bulbar als for a long time. I am afraid I am just really slowly progressing. I can't enjoy life like this. HELP 
