My Mystery Muscle Twitches

[JohnnyRocket]

Hi everyone. Nice site you have here. Lots of interesting stories, here’s mine. About 3 or 4 months ago I started getting muscle twitches in my eye and other places. They persisted and saw my doctor about it and he said it may be the diuretic I take for high blood pressure. I had my electrolytes checked and it turns out that they seem to be fine. I still constantly get random muscle twitches everywhere throughout the day and notice them most when I’m sitting at my computer at work. I swear I can’t go 2 minutes tops without getting a twitch somewhere. I also notice the past month or two that I’ve been getting these little pins and needle sensations most commonly in my feet. Sometimes I’ll have my leg crossed and I’ll feel a little *beep* in the bottom of my foot intense enough to cause me to have a reflex reaction like when you touch something very hot. I also have noticed this strange feeling in a localized area usually around my back/shoulder area. It feels kinda like my skin is crawling or numb…very weird. I haven’t really noticed any weakness or muscle atrophy, although my knees seem a little weak, but I’ve always had weak knees due to old knee injuries. Even in high school occasional my knee would give out in a basketball game while jumping from one leg. I go back to the doctor (primary care) tomorrow.

 

[totaltwirls]

Welcome!! Sounds like your symptoms mimic ours very much. Most of us have the twitching and the numbness tingling, along with a sense of buzzing at times.

 

[JohnnyRocket]

Yes, well that's nice to hear. Like many of you I'm sure, I typed in muscle twitching in the internet browser and then became scared to death at what popped up...ALS in large amounts. At times my anxiety has been so high I think I'm forcing some of my symptoms. I've become very jumpy when my mind becomes fixated on what disease I could have.

 

[AlisaHopeAmber]

Stay on board with us. It does sound like it could be BFS. There are so many people here with symptoms similar to what you experience, including me. Of course you will want to follow up with your doctor and see what he recommends, but in the meantime this site can offer a lot of support as well as answers to your questions.

 

[totaltwirls]

Many of our neuros indicated that widespread twitching is not indicative of ***, especially without accompanying atrophy and weakness (clinical weakness, which would come on and continue to deteriorate). It would not be felt one day and then go away the next. Also, many of our neuros indicated that twitching is generally not the presenting symptom. It is usually the weakness and atrophy and then once the muscle is dying is when the twitching/fasciculations would appear, but you would have severe presenting weakness by that time and it is usually that which sends the person to see the doctor. Generally, people with *** do not even feel their twitching. Search through this forum and you find many postings indicating just that. There are so many knowledgeable people on this board and I am always seeking out and finding out about new things everyday. )

 

[Doomageddon9]

Welcome to the party, pal!

"One of us! One of us!"

What film is that one from? Thats right! Freaks.

It can be alarming....the twitches and things...to be sure. But, I have found out how normal it really is...especially in your case. Need peace of mind? Call the doc and see a neuro.....just to help you move past.

Hi, I'm Gut...and I worry about everything.

 

[DJohnDavies]

Hey Jet - welcome!

My neurologist told me to my face, point blank that twitches in ALS are not the type that randomly move throughout the body. He said they usually begin and stay in a certain area, are accompanied by worse symptoms in that area and then spread from that area. Could he be wrong? Maybe. But he told me he had seen plenty of ALS as his resident specialty at Baylor in Houston under one of the world's top ALS doctors.

Johnny