My Journey with Muscle Twitches

[Krackersones]

I have issued some posts and questions here, but want to summarize and ask about your opinon. Already 6-8 months in it. started with twitches, I think, in the left foot and then left hand. Most issue now are my hands. Left hand was twitching much, especially between thumb and fore-finger. Went to GP and neuro, because my muscle on the left hand seemed smaller. Neuro made NVC and EMG of three points from my left hand and forearm and said it clean. It went very quick, so I see a Neuro at the neuro-mucle centre of a university. Made a tough clinical with babinski, reflexes, walking on toes and heels. Then NVC of the left and right hand as well as left foot. MEP. Made an EMG in the muscle between thumb and forefinger, which took some minutes and told me all is fine, no fibs, etc. Told me no further EMG is necessary, as if the muscle twitches it is already affected and would be visible. He didn´t make EMG of foot, as he said clinical is ok. Do you think one EMG of hand is ok? Because I have read a post from ChauBao, which said bulbar and upper MND can have clean EMG. Only lower MND has dirty EMG from the beginning. Does it also mean, if the muscle twitches and you have upper MND onset, then maybe EMG cannot catch it? Also my hands make me crazy lately. It seems now the right hand develops some dents (rigdes). They were not here before.I have not (obvious) weakness, which I can tell, but the ridges are visible. Should I do the right hand EMG also? I could read, that if dents were atrophy, then the weakness would be clinical soon, but I can still pick up some heavy object with that hand. Is it really that weakness comes before atrophy.Now also my tongue twitches. I saw it and it freaked me out completely and my tongue is now feeling a kind of sore and aching. It freaks me out, as most of you had widespread from the beginning, but mine tongue twitches first after 6-8 months. Don´t care much about bulbar onset, because this would be much obviously now and hard to dismiss. Sorry, to ask all this questions, but would like to hear your opinons. Especially from you Ed, as you are the forecaster with that board.I only want to see my son growing and go on as before, but all I do now is suffering and fear. thanks for all comments.

 

[edirish73]

Without severe progressive weakness in at least some part of your body, you will not get a diagnosis of ALS because even the signs we fear on the EMG can be due to other things if they don't lead to serious progressive weakness. I understand your fear totally. I have all the things you and others suffer with including the tongue twitching which for me was there from the very beginning a year ago.Regarding your tongue twitching, you said you saw it but did you feel it? This is a big question. If you just saw it, it is probably normal tongue movements if you have no tongue weakness. If you felt it, then it is probably another manifestation of what is happening to your nerves generally. I feel my tongue twitches, so I know it is part of the systemic condition (whatever it is) that effects my nerves.Krackersones

 

[FantasticFurball]

Hi Jro, I can feel my tongue twitching, that was why I realized it, that something is twitching my tongue. The whole condition freaks me out. I don´t know how long I can take it anymore. Cannot enjoy my family and life.This sucks.

 

[FantasticFurball]

Hi Ed,thanks so much for your post. It is the best post, for me, I have ever read. You are my hero ) I believe you, but I won´t check the link from Laurent on the ***-forum, it will bring up nothing good for me. I will try to follow your 3 golden rules, how you managed your anxiety. Man this is a tough journey, we all are on. Children are the best in life. I will try to focus on my family and leave it all behind. Colombia rules. ByeRace

 

[priorityhigh5]

Dear RaceEMGs are really a source for concern. A lot of folks begin asking questions once they had a clean EMG. I dont know how many posts that have been written about the subject on this site. It must be hundreds or perhaps even thousands. The most important in my point of view is the neuros clinical xm, however, as it lays the foundation for further investigations. EMG is a tool used for a lot of different issues and the majority of posts here seems to forget that an EMG is ordered only to calm people down. And as such it is not always a succesfull tool. Only very few - if any - on this site have had an EMG done becourse the neuro suspected anything sinister. If your neuro have given you a clean bill of health theres no need to do further investigation as you are not seriously ill. It IS really that simple.I myself didnt have an EMG as my neuro stated it would be a complete "overkill". And when Im thinking of it, theres two informations on this site which should really calm you down. I found them on the F. A. Q. - site:1) "A simple clinical rule is that fasciculations in relaxed muscle are never indicative or motor system disease unless there is an associated weakness, atrophy, or reflex change." If you have a lot of fascics right now - you would have been in a terrible state if it was ALS.2) "As long as you have been diagnosed by a qualified Neurologist, you should have no concerns." N O C O N C E R N S !Enjoy life, stay away from surfing diseases, trust the docs. Regards