My Foot Feels Odd when Walking

[exploringexistence]

I'm having this problem right now and I am totally freaking out about it. I feel doomed. It's hard to explain but it almost feels like I am walking oddly, even though when I look in the mirror, my feet appear normal. It almost feels like my foot is tensed or stiff or something. I only notice it when walking without shoes. It feels normal with shoes on. I actually had this right after the twitching began but it kind of subsided. Now it is really bad. I am convinced I am having one of those foot drop things. I can still stand on the leg, on tiptoes and walk on it. It just feels weird. Should I be this scared?

 

[sparkrlock]

Hey there!Dont be scared! I went through ALL of the things you have seen on this site. During my highest anxiety period I was "felling" every step I took. My mom actually said "Sean whats wrong with you" because I was walking differently because I thought my right leg was having problems. I am not saying you are just having anxiety but according to ALL the doctors I have been to with ALL of the tests, if you have any trace of ALS you dont "feel" like you are walking funny. Its a DEFINATE thing. Also both my neuros re-assured me that the clinical test is all thats needed but I had 3 EMGS's for my piece of mind and other issues (carpal tunnel/NCV found it). The reason I know why anxiety was the cause of"walking like a robot and feeling each step" is because during that time I thought I saw fibrilations on my tongue and completely forgot about walking! So its anxiety, our symptoms (twitching, cramps and muscle stiffness) are NOT anxiety. But anxiety causes you to feel EVERYTHING in your body. I was completely obsessed and could not function. I still twitch today but I know that my body is going to feel different....this is an ACTUAL condition but its NON-LETHAL. So try not to worry so much, if you think your legs are going bad go out and go to the park and go for a walk a few times a week. My neuro told me the key is "absolute progression of weakness" with ALS. No weakness no ALS....and you can FEEL week all you want....but its not the same thing. I was talking to a co-worker and her uncle had it. He started falling down the stairs an dragging his foot within a month of symptoms. Both my neuros confirmed after a month you would have definate symptoms and an EMG would pick it up. My neuro saw my twitchs a few weeks ago and said "wow Sean you have them constant in your arms, legs and feet" so I was worried....and she said "but this is common in BFS..it does not matter where, how, or how frequently you twitch...you dont need any more tests...these are benign"....she said it with 200% confidence. So how could she look and see my twitches and cramps and not even want to follow up with me! Its cause we have a few symptoms of a COMPLETELY different disease. Hang in there....the road is long and bumpy....but one day you will find how to deal with the anxiety and realize this condition SUCKS but thats it. She said most of her patients have BFS for about 3 years and some for LIFE!!!!! But it does not matter...its all benign. Sean

 

[exploringexistence]

Thanks for the reply. I was ready to take myself to the hospital that's how scared I felt. I'm still feeling super nervous. I have an appointment Tuesday but it seems like an eternity. I have been self testing (as usual) all day but today the stiffness just seems so pronounced. It feels like when I raise my right foot to walk that the ankle muscle and toe feel sort of stiff like I'm tensing them when I am raising my foot. My toe feels like it's pointing straight up or something, more so than it should. I asked my mom to watch me walk and she said it looks totally normal. When I bend my ankle upward, I do sort of feel a painful stiff feeling. I was doing a lot of tiptoe walking today because I was nervous about this. I can still walk on my heels right now, but I am so scared tomorrow, my foot will be frozen. Would I have weakness before that happened or would it just happen?

 

[InkedMama]

FIRST OF ALL... I know I AM NOT SUPPOSED TO BE ON HERE SEAN BUT I WANTED TO READ YOUR NEUROS info. I TOLD YOU THAT SOOO NO IM NOT CHEATING. Well SORTA KINDA BUT.....Anyhow, Missingoutonlife, Girlie, Listen. All that self testing is making you sore , stiff, etc. TRUST ME, I have been there DONE that, Sean ripped up my t shirt. I would walk on heels and toes all around my house, to my car from wal mart lol, down the street...im telling u , it was bad. then I'd do push up, sits ups, squats...and have my hubby literally put resistance on me and me push back and vice versa...I was literally SELF TESTING for a championship you'd thought- Then when I got to my doctor and he did the actual "testing" I was like OMG, I was WAAAAAAAAAAAAAAAYYYY over testing.( my muscles would hurt and i'd be sore, ASK sean lol, I'd freak out) The test the docs do are very light. Its not like STRAIN...and you've got to bench press..or freaking do 30 squats. When my doc did the test I was like "your kidding me, thats it?"...he was like "yeahh its not hard to spot definate weakness, you'd know, I know, your family etc. Please listen to us on the site sweety. We've ALL been there. Im 6 months pregnant and thats what scared me..all these things I "thought" was not normal going on w/ my body were infact much of my pregnancy weighing in on me. Then yesterday I found out my tremors and shakes were tied to possible Gest. Diab. Hopefully I pray though its just Hypoglaucema. But since i've been on this new pregnancy diet I haven't had a shake one. Anyhow, Sean is a very very very reliable source along with many many many others on this site that have replied to you. As well as your Doctor you have been too. Just remember every day you wake up..your one day closer to getting over this..and realizing...your perfectly ok!!!! So just listen, I wish I could get my 2 months back that i worried sick before seeing my M.d. !!!! BYE SEANNNNN LOL IM OUT I SWEAR! (jeff just saw me on here) lol