bluestarman
Well-known member
I have been off the group for nearly 9 months, still dealing with BFS. Since then, I went to Mayo, got shocked and prodded, and was pronounced completely normal with BFS and maybe some strange migraines. Since that time, I have had zero anxiety (that's long gone), and have discovered a really strange cause that links to my BFS episodes--Irritable Bowel Syndrome. Since then, when I eat something or an amount that exacerbates BFS, I go twitch city. IBS has no root cause, but in managing it (which for me means eating less, basically, which isn't all bad) has caused my twitching and paresthesias to become minimal. The drugs that work for me are anti-cholinergics like Benadryl, but their effectiveness is limited in time before my bod apparently gets used to them and they quit working. So, I start, take the drug for a couple weeks, then quit for awhile and start again later. My biggest challenge right now is not to let twitching episodes ruin my sleep, which they can do, and that can make things so much worse in all aspects as you all know.Also, my ENT found that I have two structures rubbing together in my sinuses that absolutely should not be rubbing, which will need surgery. My sinus issues also get worse when the twitching flares, so in December when I get this issue corrected, I'll find whether this irritation is feeding the BFS and IBS. If my BFS is responsive to sinus surgery, I'll drop be and let you know.I don't plan to be back here often, but wanted to let you know that my anxiety is gone, and that I've found a connection in my case that ties BFS somehow to digestive issues.I don't really have any more advice to offer, though, except making peace with the fact that I twitch from time to time.