Muscle Movement/Jumping Inside?”

eyennyGlimmer

Well-known member
Does anyone feel like they have muscle movement inside, yes I know twitches but I feel like my muscles are jumping inside which causes me to move slightly. I feel it more on my neck and shoulders, back. I gues it feels like a pulse movement but faster beats then a pulse. I dont know if that makes sense.

Second thing I wanted to ask- for the people who have or had the bug crawling sensations do yours feel like this-tiny grapepie on skin, maybe they are little twitches? I feel them more when I wear a long sleeved shirt, isn't that a sign of neuropathy? or/if these are little twitches is it normal for me to have this 24-7 on upper body instead of calves? Thanks..Jenn
 
Perhaps the 'jumping' muscles on your neck, shoulder and back are caused by being hunched over the computer and posting 800+ messages on this BB during the past 4 months!

Try to RELAX and give your muscles a break.

Dale
 
ummm ..... no that is not it..I had these before I found this group..I take it you do not have these symptoms..Thanks..Jenn

oh and one more thing..most of those 800 posts are helping people ;) ..
 
Good grief! Who cares! This board is definitely NOT for criticizing other people. You post away Jenn. Keep the questions coming and keep the answers and support coming as well. I've found many of your posts very helpful personally so pay him no mind.

He's just got issues.

Melissa
 
Hello.

For what it's worth, if you read Dale's first post, I think he was trying to help.

I don't think the tone was aggressive; I think he was trying to be light-hearted.

There does come a point where most of us will have to accept that there is a mental/psychological issue that is probably far more debilitating than the physiological issue. And the best way of dealing with that is probably a combination of (a) mental health professionals, (b) friends and family, (c) learning to look "outwards" not "inwards", and (d) time.

There's no doubt the tone of the board has changed; it seems to be less about providing information and more about reassurance and sharing experiences. That's fine, of course; only relying on this board alone to solve psychological issues may not be the best course of action.

All the best, anyway. This is a flying visit.

In good faith,

d
 
I second Sharon's post. This board IS for support/questions, etc. I know I have been criticised for asking questions after twitching for "so long" and that I should know better by now.

To those people I say, don't read the post then. If it bothers a person that another member of the board posts too much, asks the same questions, been "twitching" so long that they should know better, etc., then go somewhere else with your snide remarks and attitude. Don't respond to the post! It's as simple as that. You're not helping anyway.



Ginny
 
Is there a time limit on how long we are allowed to be worried, or symptomatic? I wasn't aware.

It would be nice though...imagine that after 4 months of twitching, and cramping, and having all the anxiety that goes with it...you were done?
Thats the law....you are done, your time is up.


Till that happens (and I wish it would soon) don't worry about posting, asking questions, and helping others. Everyone is different, and we all find our way in our own good time.

Keep posting Jenn.

Stay Happy,

ristinaL91
 
Yes Jenn, I do have this sensation you're describing - in fact, I've got it in my left forearm today where it feels like my muscles are jumping inside. At one time, it was causing my whole arm to move - it does that a little bit every now and again. The last time I had this, it disappeared as fast as it came on.

I don't get much of the bug crawling sensations so I can't be of much help there.

Also, I'd just like to say that Jenn has helped me so many times on this forum that I can't repay her enough. A lot of her posts are to help people, not to ask questions for herself. This forum is for all - to help ourselves and others.

God Bless, Mark
 
jenn, bfs has a lot to do with anxiety. some people stress over work, others over their morning coffee; we do it mainly about our health, which is neither right nor wrong. but you are stressing out over an off-hand comment. you're typing faster than you can talk-it's like reading stream of conciousness. "me thinks she does't protest too much." relax. you know the best thing about bfs; it has the word "benign" in it. that might be the greatest word in the english language-focus on it. bfs might suck, but it ain't gonna kill us, stress will. go away from the computer and do something pleasant. follow agonroughrider's lead ( at least for today :)...
 
I'll repeat my message for the original poster in a more pleasant tone: PLEASE try to relax. I was trying to help. At least one person got it.

I must admit that I was a little surprised by your attack, but then I remembered that you've misinterpreted other peoples posts to you in the past.

I'll try to be more CLEAR for you next time and don't worry, I'm not out to get you.

Good health to you.

Dale
 
Okay, I've got to respond to that.

1. I don't think it was the fact you posted yesterday that made Dale assume you had an anxiety problem. I think it was the content of the post, combined with several of your other posts (including the one I quoted).

2. If we are going to start telling people that they have to respond in certain ways (let alone enforce that principle), then we are going to wreck the forum. People will abandon it and its appeal will be dramatically narrowed. Besides, one could equally well say: if you don't like a particular RESPONSE to a question, then just ignore it.

3. Having said that, if any response is unnecessarily alarming, or malicious, or just downright rude, then there's a very good reason to delete it and/or criticise the poster. Did Dale's post fall into this category? No. He was basically saying give the computer a rest and try to focus on "real life". This remains, in some circumstances, pretty good advice. And it's advice that a number of people here have given. Yes, if you are going to use the internet then use this site and don't go googling; but part of the process of coming to terms with BFS is LEAVING this site in the end. There are very few posters here who have been here as long as Dale; and it isn't because they were miraculously "cured" of their twitching. They just realised it wasn't going to kill them.

4. We all know how hard it is to get to that point. The VAST MAJORITY of us here have some sort of anxiety issues. Some all the time. Some only occasionally.

5. Was Dale's post blunt? Yes. Was it helpful to you, in your current situation? Clearly not. Would I have written a post like that? No. But was he simply criticising you for posting too much? Clearly not. If you read his first post the only capitalised word was "relax". That was the crux of his advice.

6. Maybe there should be a ban on advice relating to our mental states. Maybe it should be confined to a particular forum. But the fact is there has never been MORE of this type of advice on this board. There's no point singling out a particular culprit simply because his manner is blunt.

7. In terms of your physical condition. Several of your posts suggest you are still (like many of us) SPECIFICALLY concerned that you have ***. You have had ALL the important tests for that condition, and they have ALL indicated that you DON'T have it. Nerve conduction ("shock") tests are NOT crucial in testing for that disease. If you've had any sort of neurological examination, and had the EMG needles stuck in your limbs, that really is just about the best the medical profession can do in terms of reassuring you on that point. Logical conclusion? You don't have it.

8. Aboutbfs is a place for support, information, advice and discussion. Maybe the forums should be more clearly demarcated so people know exactly what they are likely to find in each place.

9. Anyone who posts in numbered lists is a bit weird.

10. Best wishes, as always.
 
soccercoach,

Actually my rambling posts are not from anxiety it is because I am a little p***ed off about a rude comment. I never stressed about my health until BFS came along. Since year 96 I was dx with a fatal heart condition which caused me to have a heart defib implant put in and I have to have surgery every 4 years to replace the battery and I have had the thing break on me twice which caused blood clots and more surgeries. My Dr.'s use to tell me you cannot do this you cannot do that, you cannot take that med because of your heart condition. I use to laugh at them and do the complete opposite, I cannot tell you how many meds I took that they say someone with my disease cannot have. I didnt freak out, I use to laugh at it because I took the stuff before I was dx and it didnt do anything to me so why would it now, and I was born with disease. So my point here is I was not like this before BFS about my health, not even my heart. I never said BFS will kill us I know it will not but why I post about symptoms is because, one the same reason everyone else does, two because I want to make sure that is what I have. My own Neuro said that I am having way to many other symptoms and wants me to see a movement specialist, I am worse from the time he saw me. He only saw me two months into this and I could never have the shocking part to the EMG which does make me wonder but not some freak about it but only asking questions....Jenn
 
Cowboy, I think by the time we got that all figured out, the poor bugger who made the post would probably have died of old age...

I am however very happy that you remembered my advice to you.

BTW, I don't ever recall calling you mental. That being said, I think your wife has certainly hit the nail on the head...
 
This is the part where I play the man.

I won't respond to this or any of what's his name's posts, but I will pray for him.
---
Father in Heaven, whatever issues may be causeing Dale to feel uncomfortable, unkind, irritable, I pray that there will be a healing in his life and that he may learn to help people rather than take opportunity to attack them. I pray for a sense of confidence and peace in his life and a constant joy that he can spread to those in need, Amen
---

This response is directed to Jenn. Jenn keep coming here and posting as much as you need to. At one point I averaged about 4 posts a day. Could be more, I haven't bothered to check lately as that is a waste of time. Even 100 posts a day is acceptable if you need it. This place is for you and me and anyone else who may need encouragment 10 times a week or 10 times a day. Even if there are a couple of bad apples, the ratio is still (0.1% of all users being unnecessarily unkind) good considering there are a couple thousand registered users here. I had a sore neck and back for a week hunching over my computer ... go figure ... I hope all is well with you and your fiance.

Back to work I go...

Take Care.

Troy
 

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