Muscle Movement Feelings with BFS

[kins]

) ) Morning all! I have a question about exercising and some weird muscle movement feelings with BFS. I want to continue to exercise because it helps with my anxiety, however I experience some weird feelings in my legs after and wanted to see if this would be common with BFS. For example, yesterday I did 30 minutes on the exercise bike on level 4 and when I got off my knee area feels kinda weird like something is inside moving around. Of course the twitches in my feet, toes and calfs are going at it pretty good and I know they usually do for a bit after activity until they finally settle down. My feet also feel a little crampy not sure if it is from the toe twitching, and I am speaking about toes moving back and forth on their own. Not sure if the feelings in my one knee thigh area are muscle cramps (they are not painful) or spasms? Does anyone else get these feelings with BFS? Are these common feelings after exercise? Thanks )

 

[EmmyCee]

Hello, just wanted to say you are not alone. I too get cramps/spastic feeling in my legs and feet. I am not sure if it is due to working out or just another quirk of BFS, but for me it is rather new. Come to think of it, I did start an exercise routine (1 hour dvd) and I did the entire thing, 3 days in a row, just to prove to myself, and self-test if you will (of course I need to stop self-testing but thats another post). At night I drank a glass or two or three of wine, and on Thursday of last week the cramp-like feeling started. It wasn't really a full cramp, but more like you describe it, like a spasm, one that wants to turn into a cramp but doesn't if that makes any sense. I get it more at night, or rather I notice it more at night. I also get the strange feelings of wiggling or vibrating too, so this all must be BFS.I think it might also have something to do with excercise, and dehydration (because in my case wine is not really the best post-workout drink) So I am going to try gatorade, calcium, and magnesium and see if the cramp feelings go away soon. Maybe you could try to up your electrolyte increase too to see if that works? Take care.

 

[kins]

Thank you guys! I am so happy you guys know what I am talking about. I started to get something weird at work today even, my left foot the two last toes were moving weird and then I had that same pre cramp type of feeling and I had to take my shoe off and tap the floor a couple of times to get the toes and the foot to straighten out. I was in a panic again thinking about those horrid diseases and worrying again thinking that this cannot be normal for toes and feet to do this. The buzzing and the vibrating I am all too familiar with and get it frequently! There are just so many weird sensations with BFS. My legs were then feeling heavy and my neck has lately been feeling really tense stiff like as if my head is on a separate stick. I think it was the panic and I think it is muscle tension. I noticed yesterday I was out having fun and did not get any twitches really and today at work when I was stressed I was getting nailed with them. When you get the toes moving are those actual twitching then do you know or is that a spasm?

 

[kins]

O'h and Emmie, you are not alone, I do self testing several times a day because I am so worried about >>> and I do all kinds of crazy things like walk on my toes, try to get up out of a chair with only one leg, lift chairs with two fingers only, walk up and down the hall walking on my heels and my husband's fav lol standing on one foot on tip toes for 20 seconds which he says he cannot even do! He thinks I am crazy and I really feel like it. I feel like I have been sucked into a deep dark hole and it is so hard to climb out, but I am clawing my way to the top. My toe has been twitching since at least December and then it just started spreading to other areas the last couple of months. I try to remind myself I have no "real" weakness that I can tell, but it is so hard. I shake with some kind of tremor, I have vibrating, buzzing, heavy feelings, cramping, twitching, etc. so hard to believe I am normal with all of that! I just wanted you to know you are not alone with the self testing and the fears!

 

[flyboy101]

I am totally with you on this. I stopped working out for a while for fear of feeling something I didn't want to. Over that past month though I finally had enough of it and decided I was going to workout no matter what. I am a firm believer that exercise is a must. I just got back from a 3 mile treadmill run and my left foot is buzzing like crazy (like I'm stepping on a cell phone that's on vibrate) and during my run the area just below my left knee felt really weird, almost like it was tired of something. This happens to me each time I exercise, but I'm not stopping. Too many health benefits and with all this stuff, it really helps with the anxiety.

 

[kins]

Yes, I agree...the exercise helps so much with the anxiety. I just hate though the weird sensations that come along with BFS. Do you find that you twitch like crazy after the exercise and how long does it usually take before you start to feel better? Also, I get that buzzing a lot, but now also like my arms and legs are vibrating which is really weird. Kinda the same as the buzzing I guess.

 

[flyboy101]

I have honestly been able to pretty much ignore the twitching in my calves. But the buzzing in my left foot is definitely worse after working out and I would say it settles down an hour or two afterwards (but still comes and goes all day). Oh and let's not forget the quads as well but not nearly as bad as my calves. I have also noticed the buzzing in other parts as well. Just another crazy part of this.