Muscle Discomfort - Last 2 Weeks

[TwitchyMD]

Last two weeks I notice strange muscle "discomfort", I do not know how to describe it. my muscles just do not feel right. Sometimes its strange pre-cramp pain, sometimes weird pain-like feeling, sometimes it is stiffness or delayed relaxation, for example if I bend my hand toward my arm, it stays there for a while and then release with a lot of twitching. On the top of that, I am getting weird twitching on the back of my hand, between ring and pinky finger, which is really strange.

 

[BFSDiner]

This is my most recent symptom, at a whopping 7 weeks into this. My thigh aches as I am sitting around doing nothing. My left bicep aches as I pull it up to brush my teeth.Its all inflammation. Im pretty convinced of that at this point. Inflammation for some strange reason. Anywhere from the muscle on back to the spine. Are NSAIDS and Steroids the only two options for systemic anti-inflammatories?

 

[christinasgirl123]

It IS not inflammation. They tested me when my body was such a painful mess, that I could neither walk nor lift my arms. Yes , I was rolled in there in wheelchair, and I often cried from pain ( i had two children , so I know pain and can bear it...). They behaved like vampires iduring that time in Hospital and took blood daily for 2 weeks , I have 6 sheets if blood results. No inflammation, no antibodies, nothing. They found ot that the muscles are kind of dystonic but not al all harmed, also the metabolic tests were OK, lactase, anything....btw I was put for 2 weeks on high dosage of prednisolone because of a severe reaction to Tegretol and it did nothing for my BFS.

 

[christinasgirl123]

It IS not inflammation. They tested me when my body was such a painful mess, that I could neither walk nor lift my arms. Yes , I was rolled in there in wheelchair, and I often cried from pain ( i had two children , so I know pain and can bear it...). They behaved like vampires iduring that time in Hospital and took blood daily for 2 weeks , I have 6 sheets if blood results. No inflammation, no antibodies, nothing. They found ot that the muscles are kind of dystonic but not al all harmed, also the metabolic tests were OK, lactase, anything....btw I was put for 2 weeks on high dosage of prednisolone because of a severe reaction to Tegretol and it did nothing for my BFS.

 

[BFSDiner]

Nerves, muscles, tissues can be inflamed without an official "autoimmune inflammatory disease". That isn't required. There are blood tests for certain things like SED rate which indicate a certain type of inflammation. And ANA which indicate autoimmune. And Rheumatoid Arthritis Factor test which also would indicate a form of inflammation.But there are several other types of tissue inflammation. And they can and do affect nerves. I've injured myself and had the same muscle aches, and anti-inflammatory medications fixed it (NSAIDS / ibuprofen). I'm not saying BFS can be treated with Ibuprofen. But had I gotten those blood tests, I would not show positive for "inflammation". I have another condition called seborrheic dermatitis. Its an inflammatory skin condition. Won't show on a blood test. But it's inflammation. It goes away and comes back in direct relation to how much rest I've had. Or how run down I am. Thinning hair in men is a result of inflammation. Hormones and Androgen Receptors in the male scalp react, creating a localized autoimmune reaction by inflammation, causing the hairs to be rejected by the body more each hair cycle. So inflammation caused by hormones. Alopecia in women (universalis, totalis, etc) is also an auto-immune inflammatory condition that won't show up on a test. But they have very real symptoms.Inflammation may not be the cause of BFS, but at this stage, I think its relevant. The prednisone thing you mention definitely carries weight, but I wonder if prednisone would stop hair loss? Probably not. It's a different type of inflammation. Many have commented, and I have noticed that when I do things that reduce systemic inflammation (by diet, good rest, etc) my BFS symptoms decrease. That is an inflammatory difference. The very phrase "Hyperexcitability of the Nervous System" is saturated with the implication of inflammation.And to complicate things, we don't all have the same condition.