MRI Results: All Clear!

[seadragonsovereign]

Just an update here: My lumbar MRI from last week came out fine. No degradation or anything else of note, according to the nurse I talked to about it. (I had to call and get the results - a week after the MRI. I guess if it was bad they would have called right away?) So right now its a clean (at least I think it was) EMG, some minor problems showing up on the NCT, clean blood work and clean spine. But no clear diagnosis from my neuro. He said I didn't have any of the "big three" though it didn't seem like he was 100% on that. And of course the twitching/ratcheting/trembling goes on 24/7 (last night in bed it was as bad as it has been). Seems worst when I am "relaxing". The neuro has referred me to a neuro/muscle specialist at OSU, but I can't get in until October. I asked the nurse if I could try some other meds (was on phenoitin for a weeks without effect) like neurontin or klonopin. Can't hurt to try them, right?. She said that I was really doing my homework on this. (don't we all - probably too much so). Something may work, though it seems that his neuro was essentially washing his hands of me: "well I've done all I can, so we'll pass you on...". I don't think he was planning on any follow up on his own. I'm waiting a call today on meds. I also asked the nurse to send me a copy of all my records so I can maybe see for myself what is going on (probably a dangerous thing). As to the head: Lexapro has taken some of the anxiety away, as has reading everyone's posts here. Still taking a xanax about every day though when the anxiety gets too much. Doesn't help with the twitching, but it calms me down quite a bit.

 

[Krackersones]

It sounds like you are doing everything you can to get to the bottom of this or at least to a place where you can feel that you have done what you could. I think there is a very high likelihood that you will find some combination of medication that will help you if the symptoms are depleting your quality of life. Also going to a neuromuscular specialist is a great idea. When I finally went to one I felt like he understood me a lot better and that I had a place to go if things got worse. I have found that there are a lot of unknowns about twitching and that part of it is just dealing with the symptoms and knowing you have a straight line to the best doctor should things go to another level and that that person would be prepared to act based on experience rather than referring you to a million people while time is wasting. Chancing are they won't go to another level but for the few that do, my doctor tells me he has successfully treated many of them.Krackersones