Moving On From Nueropathic Pain

[pilotproblems]

And now...it is time to hang it up. I will continue to visit and chat, post when support is needed, but truly TRY to move on.For the record, I still twitch 100's+ times every day all over my body. I have twitches that can and can't be recruited in any muscle. I get thumpers, signle pops, bubbling twitches, and many more I can see, but can't feel, all over my body. I am in nueropathic pain hell...my feet and legs BURN with icy-hot feelings all day long. I cramp all over (mainly legs) and I get pins and needles sensations all over my body. This is me, and I will do my best to live with it. I wrote the below with no editing...I am going to read it everyday.....Today I get another chance at life. I have been chasing, what appears to be an impossible diagnosis of why my body is twitching, from head to toe. I have pursued this with so much intensity that I missed out on life the past 9 months. I have often questioned myself why I chased this like I did. Am I suppose to chase this for the rest of my life? And what if I never get better, but yet, never get worse? Months of my life were not a waste in chasing my “undiagnosable” illiness. However, I have decided, that with my latest Dr. visit, that it is time to put the searching to rest. For the sake of whatever remaining sanity I have, and for the well-being of my family and friends, I will work hard to move on to what has defined my exisitance for a period in my life. This chapter is closed. I have accomplished a lot, and learned more information than I ever thought I would. All the more wiser, yet all the more dangerous with the wisdom I have taken in. I believed that I could discover the “magic bullet” to understanding why I am experiencing numerous conditions that seem improbable to medical science. Taking a step back now, I see through the fog, a scared and lonely man whom never lived this way. Looking for the answer was the right thing to do, but the journey proved exhausting and devoid of any rational answers. I had become so engrossed in a quest, that I failed to answer a simple question, “how are you going to live if the diagnosis is bad?”My life has been a viscious and endless cycle of unimaginable symptoms and anxiety, and it most likely will continue to be. I am trying a new prespective on life…live it. As much as I wish to know the answers to all that ails me, living every-day and taking in as much as possible will be much more rewarding and fulfilling.Life is nothing more than a series of events, unfortuneate and fortuneate, with the end result being the same.

 

[NickRage812]

Mikey,If you are like me, you have gone from the frying pan to the fire....well, maybe the frying pan to a less-awful frying pan. Don't you need to deal with your symptoms ?If your feet and legs "burn all day long", you really need to experiment with medications. Was it not you that told me that lyrica worked for you ? I think it was ?I am on 2 meds...trileptal and cymbalta. Unfortunately, since it is 2 meds, I can't perfectly tell you which did what. But I strongly suspect that the trileptal is the key....I started it first. It has not cured me, but I was in pain all the time (check all my old posts). I took tons of -codones. I cried a lot. Now, no pain meds at all. Still a bit twitchy and quivery, but much less pain. Pain says to me that you need to try meds.

 

[sparkrlock]

Hey!I can completely relate to you. Im about 2 years into this that I remember with DEFINATE twitches all day long from that point on (and maybe 3 years with ones here and there). Its just a horrible thing and im in the same boat as you. 3 EMG's...2 Neuros....and about 15 clinical exams. They tell me "eh its anxiety"...Bull! I wake up twitching, sleep twitching...have the best day ever and twitch. So I am doing the same as you...I just have to move on and stop thinking its "the end". We are going to be fine! I am backing off of effexor and im not waking up twitching anymore...ANY ssri I took seriously ramped up my twitches, including burning feet and other places on my body. No more burning...and twitches are maybe 10 a minute now, but still constant 24x7 in my left foot. If my neuro tells me I dont have ALS...I have to beleive him. I dont think he would do all those tests and let me walk out the door...and have on my paperwork "re-assured patient he DOES NOT have ALS"....if he was not sure. So hang in there! They cant tell us what it is, and thats bad! But we know what its not, and I have to be thankful for that. Best of luck you ya! We will all be hoping for the best, but if you are on ANY SSRI...please talk to your doc and quit it. I was having HORRIBLE burning and ramped up twitches. Talk to ya! Sean