Midwest Neuromuscular Centers for BFS?

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snowstormblast

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Has anyone been to a Neuromuscular center or clinic in the midwest for twitching and been "diagnosed" with BFS? I live in Illinois, so that would be prefferable.
I'm looking for a center/clinic where the physician is experienced enough to know (as well as can be known) what's BFS vs. MND. Preferrably a place that has a 100% track record in diagnosing BFS and none of those having lead to MND.

I've had some worsening (and new) symptoms the last few weeks and can't get it through my feeble mind I'm still Benign. I'm sure it's just my little brain, but I thought I'd do a follow up at a new place soon.

Thanks
 
I do not know of any place that is for only twitching, but if you live close to Chicago I would imagine there is plenty of good places there to go. If you live down south like me, Barnes Hosptial as well as St. Louis University Hospital in St Louis are 2 very good hospitals as well.
 
I agree, the Mayo Clinic in Rochester MN. It can't be too far from you. My wife has been there for an injury induced dystrophy problem with good results. Other close relatives have been there also for several other things. Biggest problem we found was waiting time to get in, which was about 4 months for us. They also have a pretty impersonal attitude-all business. If you want information they are good. If you want speed or a kindly, concerned bedside manner our experience says not so good. The positive side of that is they are credible. If something is wrong with you they will tell you-no fears they are trying to hide something to spare your feelings.
 
My local Neuro wrote me a referral to the Mayo Clinic Rochester. I'm going on the week of May 5. I'll let you all know how it turns out. Let me know if any of you have any questions you would like me to address with them.

Take care,
Mike
 
Good luck with your upcoming visit at Mayo. Please let us know what you find out. I'll keep your "question for the Doctor" offer in mind. Best Wishes. --Graig
 

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