Merry Christmas & Wishing Better 2013

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NordicPrincess

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HI,First: merry christmas to all of you, and more important: I really wish you all a better year in 2013!!I have a question I really hope you can help me with.I've been on antibiotica for 11 weeks (doxycyclin) in case of chronic Lyme because of some test with results that MAY indicate Lyme, but can not say for certain. (tests not done in Norway, sent to labs abroad).I stopped taking doxycyclin for to weeks ago after writing to the doctor at the Lyme senter I was maybe a little bit better when it comes to SOME of the symptoms, but the big picture is probably much the same. She then answered something cryptic (someting about it it was Lyme then I should be better I quess), but not giving me a new resept. It's impossible for me to know how I would be nwo if I hadn't taken antib., but the last two weeks I've experienced a two new phenomen that scares me more and more, and comes more and more often, now many times each hour.I find both very hard to explain, even in Norwegian, and in English is almost impossible, but I have to try because no I feel so scared.The first thing is a feeling/reaction that starts in my back head (in the skin) and spreads over the head and down my body - it's a little bit like extreme "freezings"/goose bumps..or maybe a kind of paresthesias, it goes in a "wave" and lasts for maybe 30 sec and then is over.The other symptom is like someone whips me over the calfs and gives a burning (??) kind of sensation afterwards (or a combination of burning and ice cold - I don't know) that lasts for about 20 sec and then "fades" away and is over. Both of these happens "out of the blue" - I can see no connection to thoughs/feelings or something I do. Actually they both started when I all in all felt a little bit better and had hopes for my future..Besides this, I experience more fasciculations again, and in sum all of these makes me wonder if the antibiotica in fact was starting to do me good, since I've been worse after I stopped. But maybe it would be the same if I had not taken antib. And most of all, I'm very scared for what this can be/indicate. My MS fear goes high again, and I had finally started to think less about this. Please tell me if you have experienced something like this, and explain how it is for you. Often when I've read descpritions here, I find that others describe what I feel in much better words, I just don't have the words myself, but it's right when I read it - hope you understand.Should I worry about this new things, or is it BFS???Hugs!
 
HI darling,looks like it is the same sensory issues which were torturing you since the start of all the story, just in a new wrapping...goosebumps are very common for me, for example, except that I do not have them every hour - but once every few days for sure, and same as yours - out of the blue, affecting scalp (oh God right now I have them! so this might be also induced I think), hands, legs...you may probably reassure yourself thinking that should it be MS, and especailly in non-remitting form which you are mostly afraid of, then it would be already something more prominent than sensory issues or pains. Some definite damage, not transient issues like those. Therrer is definitely something affecting your very specific tempreature sensing neurons (that is why you can not even understand if it is hot or cold sensation - because you have no real physical stimulus, just firing neurons, and it is well known that in case of extreme hot and cold people often can not distinguish what it is - for a first short period). But sensory nerves are completely another than motor so at least it is definitely sensopathy which often is a part of our strange syndromes. Al in all, people with fibromyalgia diagnosis, fro example, have definitely strong muscle pains and painful spots without any significant inflammation signs... thay also may have a kind of sensopathy therefore. I've just got a bout in those days and it is so strange to have quite clearly circled extremely painful muscle spot feeling otherwise well...I really wish you to have more blessed new year, my darling!
 
Thank you Gracely, it seems like you know a lot. It's always good to read your anwers, I feel that you care and you remember my story.Yes, when I took a thin feber neuropathy thermo test in september it was hard to know if it was cold or warm, so I think I know what you explain. Actually, I got a diagnosis of "anesthesia in skin" because I didn't feel cold or warm AT ALL in my left calf, and pushed the bottom later than normal on all other areas. Strange since I thought I was hypersensitive..but maybe I just waited longer than most people to push - was supposed to push when it god painful, I waited until I just couldn't take it anymore..(misunderstood abit)And yes, it has to be something with the neurons that reacts to temperature..Yes, maybe this i a new kind of paresthesias, but my paresthesias before have never been painful, just extremely annonying making me unable to wear thigh pants/jeans f.ex. I really HATE getting symptoms of a new kind, and especially when I thought I had a little more "control" and my symptoms a little bit better. I'm afraid of MS yes, and also about polyneuropathy, but it will help me if people in here recognize this very sudden intens burning/freezing sensations in the skin in my calf that comes in waves and "out of the blue".
 
The nature of neurons is so that if they are working too much (the firing threshold becomes low), then they undergo certain change resulted in exhausting their ability to conduct signals. it is a bit like ths battery goes empty. So probably it is intrerrrelated to a certain degree - hyperexcitation and loss of sensation.I think there are other fellows with similar manifestations, at least you may ask Suzy and Chrissy, looks like thir stories were involving painful sensopathies too.
 
Thank you again. my paresthesias are getting worse by each day now and I'm seriously afraid of that is going on. Is Very hard for me now to actually believe that this is not something malign/bad/meaning I'm serioulsy ill. And I'm thnking about that a neuro wrote in his report that BFS can not cover all of this.. but he didn't bother to write What it is then..have no idea of What he knows about BFS..he was an idiot.:(
 
I don't remember exactly these symptoms and I had many......but the closest one I guess it would be the feeling of touch on my skin... It felt like somebody is touching me :D) which was super scary and creepy. I can tell you that I had many bizzare symptoms that I don't wanna even think about, this condition plus anxiety can really bring variety of sensatuons pains etc
 
Ok, thank you. this I try to explain is not like being touched at all, but I understand this eas scary also. I get the impression that you are better? what helped you, do you know? please tell. I'm in a very difficult phase now, feel desperate for help but there seems to be no help:( can't undrrstand why I'm getting worse with new symptoms. thinking about Lyme..and MS.
 
Listen. For once and for all, MS doesn't cause fleeting symptoms that wax and wane throughout the day. MS lesions are physically present in the brain and they eventually remit, over time. Thus, the symptoms which they induce do not simply disappear for hours or minutes, and the symptoms are also not widespread, but rather, ONE limb, or just the eyes, or just the bladder, etc. One symptom at a time, not multiple areas at once. Both MS specialists told me, "you are too sick to have MS." Yes, BFS sucks that badly. :rolleyes: The tingling, skin crawling, hot/cold and all kinds of weird sensations are VERY common with BFS. I had exactly what you are describing and it took months before it resolved. Many times, I couldn't feel the skin over my chin and jaw, and actually thought the dentist had damaged a nerve. As Yuli mentioned, my scalp was forever tingling, and when the neuro tested the sensation on my legs, I also could not distinguish hot/cold, sharp or dull. I hope this helps, Blessings, Sue
 
unfortunately my whole saga began within two weeks for taking doxycycline as well. I was not taking it for Lyme but rather under dermatologist prescription for skin breakout. since taking it i have had twitching and parathesia. I can't say for certain doxy is what started it all but i still suspect it. if you are taking doxy remember your skin is now ultra sensitive to UV rays so if you take doxy and are tanning or outside in the sun all day you could be causing skin damage. this could easily cause the burnning feelings. I am not sold on persistent lyme as being legit so I won't comment on that. your symptoms don't sound like MS so I wouldn't worry about that....I would be much more suspicison of the doxycyline.
 
LisaLM: thank you very much! i feel like a stupid kid when I write about my MS scare..I guess I've read too many MS stories that seems so much like mine..and I know one woman personally that also have symptoms like mine and she ended up with an MS diagnosis after a year. after6 mounths of symptoms they didn't find anything..but there are always exceptions, I understand that, and you are right. I read at anxiety centers home page yesterday and found many of my symptoms there, specially about tingeling and good descriptions of it, like I have, and I havn't read so much about it here, so maybe all my crazy kind of paresthesias can be at least partly caused by anxiety/stress, even though I find it very strange that anxiety/stress can give such symptoms without the more usual symtoms.. it also said at those pages that anxiety/stress symtoms can mimic MS symptoms but of couse different reasons. About doxycycline; I've had fascic, parestesias and migrating pain for a year know. took doxycycline from 20.sept untio for two weeks ago, so in my case doxycyclin didn't start it, nor did it worse..Hugs
 

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