Why do I have good days and bad days? In the last couple of weeks I haven't been able to sleep past 4am all because I decided to google about people's personal stories with ALS and how it started! I'm so angry at myself for doing that!!!! Although my Doctor didn't tell me I have BFS (he said it was stress) I am finding some comfort here reading stories like mine. I've always been against taking medication unless I need to, but I actually broke down and bought some sleep aids lastnight (which didn't work, I was up at 4am) to try and get some rest. I've always been a very strong person emotionally, never needing anyone's advice or help and now I feel out of control with this whole thing. I love to read the stories on here from the veteran's and them telling us that they're still here and doing well and I'll feel better, and have a great day and the next morning I wake up at 4.....twitching and freak myself out again. Sigh.......I'm almost 5 months into this and I feel like I'm losing mind.......
Managing Stress and Sleep Issues
- Thread starter JOHNNA
- Start date
Hello Jeanine, Let me tell you you are not losing your mind. But yes your are getting distressed. I know what it feels like to obsess and worry about these symptoms. I think it is really really unlikely you have ALS simply because it is rare. I read yesterday on the BBC website that 1 or 2 people in a 100,000 get diagnosed each year and 75% of that are men. GP's are not really familiar with this stuff because it tends to be vague and kind of weird in it's presentation. I awake twitching and tremors every morning, weird sensory stuff. I have just been into town and went on an escalator stairs and when I got off it felt I was still on it, my balance went all kind of weird. It's a pain in the butt!! I think we will be OK!! 
)
)Jeanine,I've had this for almost 7 years, and mine started with a 3 week eye twitch, followed by my finger moving on its own, followed by all hell breaking loose from head to toe. Sound familiar? This is a weird condition, most likely autoimmune based. You definitely fit the profile.Trust me in that given time, you'll get used to this. If you're in a fragile state of mind, as you are, going to other sites and reading about diseases you don't have will not do you any good. You'll end up reading bits and fragments of things, then falsely associating them with your condition, reinforcing your anxiety. Stay here with us, and you'll be fine. 
Cheers,Bill
Cheers,BillHey Janine, I'm so sorry that u have been sad....but please don't dr google or read ALS stories....as a fellow anxious person I know how they can affect sensitive people like us....believe what your dr says ok....those stories that u read are sad and tragic there's no denying that...but they are not your story or anyone else on here....u are ok.....probably stressed as hell but ok....big hugs honey.....shanny