Samantha18
New member
Hi everyone, Im new here and I hope that you can help me manage this crazy condition BFS.It all started when I got back from me Florida vacation back in september. I was feeling great and so relaxed while on vacation but when I got back, I noticed that I have ALOT of multiple body twitches. You name the spot, it twitched. Right away like how many of us have....I went online and scared myself half to death when I saw that ALS could be a possible factor. 
Well so I decided that maybe I was dehydrated......started drinking tons of water and take calcium and magnesium everyday. After some relief,...I decided to go see a neurologist. He set up and EMG for me which turned out normal. He told me to just get rest, exercise and dont worry about it. The thing is from what I read about doing an EMG, the doctor is suppose to ask you to flex your legs etc etc.......this doctor didnt ask me to do anything but just lay there. While he was doing the test, I was watching the screen and saw a bunch of jagged lines going up and down and heard some noise coming out of the speaker.........but he said that its still normal and so was my nerve test. I didnt really want to question him because he is suppose to be one of the best neurologist in NY and he is also a professor at one of the medical colleges............so I guess I should trust him.....right????Its been 3 months since the twitching started......has gotten a little better. One thing does come to mind......I have been kept under survellance for Multiple Sclerosis. Long story short, I had some numbness above my ear that didnt go away but eventually did.......MRI said "Corpus Callosum spot does suggest demyelination (inflammation) but the other spots arent specific for this"................anyway, so I spoke to my MS Specialist.......she said for me to repeat my MRI in Feb. '09.........she feels that the twitching is NOT due to MS but is just BFS.With all that said,.....have any of you still get fears of ALS? The doctor said no but I dont know what to think anymore Sorry for all the rambling on,...I just dont know who to talk to anymore about this. Everyone thinks Im nuts :*(
Well so I decided that maybe I was dehydrated......started drinking tons of water and take calcium and magnesium everyday. After some relief,...I decided to go see a neurologist. He set up and EMG for me which turned out normal. He told me to just get rest, exercise and dont worry about it. The thing is from what I read about doing an EMG, the doctor is suppose to ask you to flex your legs etc etc.......this doctor didnt ask me to do anything but just lay there. While he was doing the test, I was watching the screen and saw a bunch of jagged lines going up and down and heard some noise coming out of the speaker.........but he said that its still normal and so was my nerve test. I didnt really want to question him because he is suppose to be one of the best neurologist in NY and he is also a professor at one of the medical colleges............so I guess I should trust him.....right????Its been 3 months since the twitching started......has gotten a little better. One thing does come to mind......I have been kept under survellance for Multiple Sclerosis. Long story short, I had some numbness above my ear that didnt go away but eventually did.......MRI said "Corpus Callosum spot does suggest demyelination (inflammation) but the other spots arent specific for this"................anyway, so I spoke to my MS Specialist.......she said for me to repeat my MRI in Feb. '09.........she feels that the twitching is NOT due to MS but is just BFS.With all that said,.....have any of you still get fears of ALS? The doctor said no but I dont know what to think anymore Sorry for all the rambling on,...I just dont know who to talk to anymore about this. Everyone thinks Im nuts :*(