Making Sense of Calf/Thigh/Tailbone Pain

[jordan444]

Ok... let me make a long story short.

Went to 3 neuros and 1 neurmusc specialist (u of Penn and umdmj) all did not order an EMG. Now... a week later since (what I said was my last DR) both my calfs are going crazy! I don't feel them now as much but I see them. There more and more like fiber moving under the skin. I also have some cramping going on in my left thigh area and some SEVERE tailbone pain radiating into my butt. I'm going to see a new DR next week for my tailbone pain and hopefully he'll order a new MRI. I still can't get the ALS stuff outa my mind completly but I have to belive in some way this is related to all my back problems with the stenosis and facet joint problems and now the sciatic/tailbone pain this has to be a pinched nerve of some kind! I'm also having some major abdomin grumbling that will not stop! Oh and I still think I see some indentation in my right calf but my wife thinks im nuts. What do you guys think?

 

[jsageurge]

I think that you have absolutely nothing to worry about (except worry itself) and should trust the three specialists. I also think that most of us with BFS are a little nuts, myself included, either because it made us so, or was a pre-existing condition.

 

[TrisTrip]

My wife thinks I'm nuts too. She's mostly bang-on!

My nuros told me that fasiculations are the third indicator of ALS not the first. This following wasting and weekness. - So no worries.

abdomin grumbling - What's your anxiety like?

I did the whole ask my wife: "does my left leg look smaler to you?" thing for a while - shes bloody sick of it now.

Also, my calfs are totaly different in shape (so are most peoples). If your wife cant find the indentation in your calf its likely in your head. I think that ALS would have progressed to a flat looking calf as opposed to an indentation- not sure though.

If you've only got fasiculations in your calfs your one lucky BFS'er.

I'm mostly in my calfs (same as brother and father) but also everywhere else intermitantly. My skalp and arms are giving me hell today.

I've not had an EMG but know I don't have ALS - so should you with three doctor visits under your belt.

Your problems could totaly be related to your back problems or your back problems could be related to your axiety (if your anxious)

Good luck, rest easy.

 

[TrisTrip]

listen to j_sageurge he knows things.

I know I'm a little nuts!

Like 10 years ago I was sure I got AIDS froma girl I met at a bar. Developed all sorts of symptoms. Two tests confirmed I did not, symptoms dissapeared.

 

[helpmeout]

That is interesting Trijeff,
I read on an health anxiety board once about a man who thought that he contracted HIV and thought about it soo hard that he actually developed thrush!! He was negative of course, but it is funny what the mind can do to the body...


Amanda

 

[TrisTrip]

I read a simmilar article in Psychology Today (June 2005) about Chronic Fatigue Syndorm and Fibromyalgia and how these diseases are often effected by phychology.

One point in case was in an article (Same issue) called HEAVEN CAN WAIT.

As it goes Doctors told Jim Malone he had HIV. "...A second confirmation test came back negative-but somehow, nobody ever told him the good news. Beileving that he had HIV, Malone developed the symptoms of the disease...."

I could type the entire article if people are really interested. I type wicked fast.