LS Twitching: Wives' Worries

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I happened to mention my twitching on a mailing list I am on.

Do you know what? The last thing any twitcher wants to here. Someone tells me her husbands *LS started off with a twitch, never mind *LS is not supposed to according to everything on here :(
 
For what it is worth I am trying not to let that worry me unduly.

If I do have it, it is because my latest twitches are different in kind and unrelated to twitches elsewhere in my body (which would need to be a bit of a rare co-incidence) and I have been telling myself that my tongue is just another muscle so why should it be immune from what happens elsewhere.

Again if my facial and tongue twitching is a sign of the worst then it will be the Bulbar onset, therefore I don't have long left before a.) I start noticing real (not imagined effects) and b.) I die.

Since this started in my tongue people have been reassuring me that I am not slurring my speech.

I think you are in a safer position than me, I am within the right age range.

Anyway it is not my intention to be a Jonah, and I really don't want to spoil the party by being the first to actually have the "dreaded disease" rather than just to worry about it.
 
Well, if it's any help, I also mentioned twitching on another forum (nothing to do with health or anxiety etc) and I had several replies from people who had also experienced twitching in various muscles, and just thought of it as "normal". I doubt they are aware of the connection to *** and I didn't mention it.
 
Easy now, I was demonstrating how hard it is to get away from this *LS ideation, it follows you around.

Anyone ever looked at the ads posted here, you can cure *LS with Chinese Herbal tea by all accounts according to one of them, now you tell me what is giving false hope?

Well, one of lifes pessimists, I had regarded a twitching tongue as the true and indefatigable sine qua non that this is the bullet with your number on it.

However I came back from the same Dr I saw a month and a half ago, who would not rule out *LS as a possibility and she said my tongue had not changed in appearance in that time never mind it has been at it 24/7.

Therefore I am more hopeful today.
 
Jeff~~
Thanks for that, very interesting! I was wondering, how and when did you get to the point that it wasn't stopping your life anymore? That is the trick! For some reason, these twitches are so anxiety provoking! I went to the neuro for the second time yesterday, and he didn't exam me again, but based on my labs, my sleep study, and who knows, maybe the overall way that I looked, and maybe also from my in office exam last time, he said he thinks my twitching is from the sleep disorder that I have, and Metabolic syndrome, sort of a pre-diabetic state. He specifically said that he does not think we are dealing with ALS. HOWEVER, you would think that maybe some of my twitching would subside, since I have been reassured, but it still continues as usual. AND, I am still having a hard time getting that disease out of my mind. It's like, now you start questioning your doctor, thinking, well, HOW does he know that? I haven't had an EMG or an MRI, how could he know that based on the limited testing that I've had done? So, my question to you is, did you do that type of thing, and if so, HOW did you stop?? Thanks so much! (I am driving myself crazy!)...One more thing, I think what made me nervous today is that while I was sitting down, I could feel a muscle in my calf twitching, and I looked down, and it was just kind of freaky to actually see it twitching, it was kind of a muscle on the side of my calf. It was twitching kind of continuously for over a minute, have you ever had that? It's still doing it now, just more off and on. Thanks so much! Val
 

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