Living with Unidentified Twitching

clampsunsun

New member
Hello, Okay this has been quite a year so far. In July I began twitching all over, went through the myriad of tests, MRI's, nerve conductor, EMG, and tons of blood tests. Nothing was found other than I had some low vitamin D. After months of my freaking out, worried I was dying and couldn't stop focusing on it no matter what, I finally began to calm down a little bit. My twitching was still there, though I was taking magnesium citrate and it really helped calm them down from like a 10 to a 3 most times. So right as I feel that I was becoming as "comfortable" as i could with the situation, my stomach began hurting. That was in early October and since then guess what? My twitches are pretty much gone and now my stomach is a constant flare up. The doctors think this is all because I am a nervous wreck (was really stressed before the twitching started and then of course 10 times more stressed afterward) I am 44, and never really had stomach issues until the beginning of October. I have had high anxiety this year and am very much a panic person (panic disorder) but never anything like this until a few months ago. I noticed some pain in my lower left abdomen before i would go to the bathroom here and there. Then one day I started getting gas type pains all along my left side and they just never went away. I waited about 2 weeks went to a GI and she said she thought i may have taken too much ibuprofen on my last period and wanted me to take prilosec twice a day for 2 months. I started taking it and didn't notice too much of a difference but still had quite a bit of pain on my lower left side and a little constipation (just harder poo - but i could still go), then we did a CT scan with Barium sulfate. I opted not to do the contrast though wished i had. They didn't see anything wrong (though mentioned they thought they saw some scar tissue on my lower right lung which of course freaked me out further). Then I actually had a full colonoscopy done (with no sedation) and it was painful! They saw nothing but took 2 biopsies anyway and they came back clean. I have been a mental wreck for months now. I can't stop worrying that it is something worse and they haven't found it yet. I am a totaly health anxiety freak right now. I keep thinking i have everything serious and have felt so anxious, lost tons of sleep for weeks and i am depressed and scared. They now have me taking Celexa for my anxiety. I just wonder if anyone has pain that just changes constantly? I get some days where i don't feel much, then other days like today where i feel it on my right and left lower abdoment, similar to ovarian pain (had a ultrasound done of my ovAries not long after this started too) and other days it hurts under my belly button, just randomly. I finally tried going out on a limb on friday night and ate some chinese food for the first time in months. It was just cashew chicken and an egg roll but the next day i had major diahhrea and i am sure it was from the egg roll. I don't know why this is happening to me a. I just can't seem to calm down because the pain keeps coming back and then i freak out all over again. Is anyone else experiencing any of this? Thanks for any support you can give! I have always hated being sick throughout my life but the health anxiety i am feeling now is unparalleled. I feel like a hypochondriac but i know i feel these symptoms. Ugh.
 
Yes, definately, you rather look for anyone without IBS here, these persons would be harder to find. Not surprising, IBS is as well a disease of hyperreagible nerves.
 
You are the same as me, but I developed IBS before twitching and you did vice versa. Classic.You twithes 10 times? A day? You have to be kidding, right?
 
This might be too obvious, and I'm sure the doctor talked to you about this. High levels (or too high levels) of magnesium cause diarrhea (like bad diarrhea - along with gas, etc.). It's your body's way of telling you you've had too much.Just a thought.Mitra
 
PS: I had horrible diarrhea in the beginning of my twitching, when I was experiencing the most health anxiety. It could all be related to anxiety.
 
Thank you for posting back to me everyone! I meant on a scale from 1-10, 10 being the worst twitches when i was twitching out of control, that when i took the magnesium citrate it brought them down to a 3. Thank you also for mentioning about the mag Mitra. I actually stopped taking it when my stomach started hurting thinking it was causing it but it didn't help. I am not taking much anymore but some per day again. It is good to know that the nerves play a big part in the IBS. I know everything I read say nerves don't cause it but exasserbate it. What made this hard for me was i worked with a woman last year with stomach issues. She went through all of the testing I have, they could find nothing and then after her 2nd ct scan they found fluid in her lung, drew some out and there were cancer cells in it. Long story short, she ended up having cancer of 5 organs, so when my stomach started hurting, i thought i had the same thing, even emailed her about her symptoms (bad idea) they were abdominal pain, diahrea and constipation, all of which i had and are the most generic symptoms for stomach issues. I just can't stop thinking about it. My husband keeps saying you have had so many tests and then i say, "so did she and they couldn't find it and told her it was stress related." Very hard. I know it is her story and not mine, so i have to try to focus on that. Thanks everyone for caring. You know i am not an online forum person at all and i have had nothing but nice people reply to me on here. Thank you all for being so compassionate and kind. I guess we twitchers are nice people that just have too much anxiety going on! :D)
 
If you have stomach pain go to gastroscopy. If you have colon problems go to coloscopy. This are the good tests, it make your mind go to rest because they are 100%. If the find nothing they find nothing. And I am a proof you can have SEVERE problems there and they find nothing. I wish I had gone to this tests before waiting so long my anxiety worsened.
 
Hey Rebunka,You sound like you have very similar problems to myself. My digestive issues actually predate my twitching. I started having problems with acid reflux and abdominal pain 4 years ago. Those issues flared up and calmed down since that time. I took prilosec over that 4 year period and for some reason about 4 months ago they started to make me dizzy. I quit the medicine cold turkey and that is when my bfs started. I had a very tough withdrawl and had upper abdominal pain, bloating, reduced appetite, on and off IBS and I lost 15 pounds. I had tons of tests done including endscopys, blood work, a CT scan of my entire abdomen with contrast and fecal exam. Everything came back negative. The only thing that my doctors can tell me is that I have a hyper sensitive digestive system. I think that digestive issues and BFS issues are closely related. They are as a result of a hyperactive nervous system. Being highly anxious will definitely cause issues with digestion. When your body is stressed your nervous system focuses more on surival mode. Blood, adreniline and energy go to your muscles and away from your digestive system. If you are in a nonrelaxed (anxious) state then your body might not be digesting food efficiently. Gas is a product of inefficient digestion because your body is having trouble breaking down food. Gas creates pressure in your digestive tract and this can be what is causing you pain.I recently started taking a product called Iberogast for my digestion and it does seem to be helping me. It is supposed to be a tonic that helps calm your digestion down. this is where I got it from and it also includes some user reviews.In terms of the ppi's you are taking I cannot answer whether you should take that or not. It does help some people, but I honestly don't think it was helping me with my stomach issues. I will say that it is difficult to stop taking this medicine as it actually causes what is called rebound acidity.
 

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