Hello everyone. I joined this group way back in 2005, when I was positive I had ALS. My symtoms actually started in early 2004. I went through doctor after doctor never being convinced I was healthy. I have had every single symptom probably most of you guys have....twitches, tremor, hyperactive reflexes, etc. in every part of my body. In fact, I still get them, but I honestly don't worry about it at all. Anxiety brings out a lot of stuff. You guys are all going to be okay! Mark my words. I remember how bad I felt back then, and how it made me feel better to read responses from people who had been there a while. Well, my advice is to stop worrying: they're probably here to stay a while, and they definitely won't go away when you're constantly worried about them. As I sit here now, I can think of so many things I missed out on and so much of my life that was latered from the constant worry. Don't let this control you!Regarding meds: the only medication that helped me at all was Alprolazam (Xanax). I took it for years daily, and eventually stopped taking it altogether. I still have an occasional anxiety attack, but not due to worry over my neuro system. I'm just susceptible to them. I don't know if it's viral or what, but I believe BFS starts from a buildup of negative energy (or stress) released by hormones in the body (adrealine, etc.) and eventually some "channel" or sort opens up and can't properly control the amount of stress hormone. BFS can get really bad during stressful times as you know.If you guys have any questions: did I have this symptom, that symptom, take this, try that, etc....just ask. Chances are, I have. It took me a long time, probably 5-6 years, to accept that I was okay. Don't waste precious time worrying about this stuff.
Ryan
