Living with Non-Stop Twitching

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bryanyspencer

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Hi everyone,My name is Ryan and although i have read many posts have never posted before. I started twitching non stop all over last August so it's been over a year. In that year I have been so scared I am going to die that it's been hard for me to function. Some time my muscles hurt so bad i feel like my body is buzzing. I had 1 normal emg, normal bloodwork and 2 normal clinical examines. My first neuro said it looks like you just have benign twitching. I made an appointment with a new neurologist for a second opinion and he scheduled a new emg in two weeks and he said I probably have benign twitching but he scheduled a new emg and of course that scares me as well and of course i think i have als. Does this sound like bfs? It's nice to know that there are other people out their dealing with this condition or what ever it is. Know one else I know understands what I am going through. They think I'm crazy and sometimes I think that as well. Every morning I wake up with the thought this twitching will stop but of course it does not. My question for every one is how do you get your life back together when your dealing with all this twitching, muscle pain and anxiety?
 
Hey Ryan welcome to the board!This is classic BFS! You have had a clean EMG, 2 clean clinical exams,and a Neuro tell you you have BENIGN twitching, you could not ask for any better news than that! You absolutely do not have anything sinister going on, once you can believe that, you can start working on your anxiety! Once you have your anxiety in check, you will start to see a drop off in your symptoms. Step one is to trust and believe your Doctors. If your Dr thought you had something sinister, would they just send you on your way or would they want to keep a close eye on you and continue with further testing?? Someone who has ALS has TRUE weakness, they lose the ability to walk, talk, brush their teeth, ect... Do you have any weakness?? The answer to that is no, otherwise you would have failed your clinical exam. You've been twitching for over a year now, if it was anything sinister, you would have had true weakness already. A clean clinical with a clean EMG means no ALS PERIOD! Do your self a favor after you have your 2nd EMG done and your DR tells you its clean ( which it will be).. please trust him and try and move on. I know its hard but trust me once you can learn to relax and get your anxiety in check... things will get better! Life is too short as it is, please don't waste anymore time worrying about something that you don't have!Enjoy the Holidays with your family and friends! Mike
 
Honestly, I have no idea why you are even getting a second EMG, unless you are all of a sudden experiencing weakness. I don't mean to sound harsh, but there doesn't seem to be any need for it. You've been twitching for way over a year. If you had anything bad it would have very likely surfaced by now.I didn't even schedule a follow up with my neuro. I figured if my symptoms didn't change there would be no need, and didn't want to put myself through all the stress once again that an EMG "might" find anything. And, I've only been twitching for 5 months.I think the biggest thing we all have to do is a) trust our neuros when they tell us it's benign, and b) accept our benign, yet weird, condition for what it is and that it might not go away.Hang in there.Mitra
 
Try not to worry at all. The difference between us and the doctors is that we can be empathetic with you, since we've all been in your shoes, and know how much easier this all gets once you accept that it really isn't going to turn into anything bad!Take care of yourself.Mitra
 
Does anyone think that bodywide muscle twitching could be caused by long term ssri use. I was on Cymbalta for five years before my twitching occurred. Thanks,Ryan
 
Im pretty sure that my twitching was caused by prilosec. If someone's twitching can be caused by acid reflux medicine than Im sure an SSRI could cause it as well.
 

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