Living with Constant Twitching

[Kangarudin]

Hi there, Just started this new thread, because I'm simply wondering: does it ever stop? I have been twitching now for almost a year (it started the 23th of May 2013). Since that day, I have been twitching 24 hours a day, almost every 2 or 3 seconds. It's driving me crazy. When I'm busy, I don't feel it that much, but as soon as I'm relaxing in the sun, or in the evening when I lie in my bed, I feel the twitching everywhere and every time. Today my whole toe was moving because of it. I really hate it. Is this how the rest of my life will be? I'm 37, the thought that this twitching will stay here forever is getting me depressed.What are the experiences here? Does it ever stop? And if not, how do you all cope with that?

 

[Shawn87]

The only reason it bothers us is because we assign it value. We allow it to imprison us in fear. They don't hurt. When I'm not anxious sometimes I can even find myself amused watching them. As long as it's just twitching I will consider myself blessed because honestly there are people out there with some real life threatening diseases. That's not to offend anyone here because I know the mental anguish this can causes us. But, sometimes I feel a bit like a spoiled brat when I complain about a twitch.

 

[ShrkWhisper]

sorry to say, some of us, it never stops.20+ years still twitching............

 

[SecretAgent007]

I personally believe that it can stop for many if not all, as long as the right measures are taken. Those measures will be different for each individual depending on what they personally have going on that led to the onset of symptoms in the first place. I believe this to be true because myself and a few others have been able to overcome BFS. The key I believe is in achieving balance where there is imbalance in mind, body, and spirit. It was not easy in my case, but it was doable.

 

[veryconfident321]

i feel the same way when will this ever stop? i feel like if was a few times a day i would feel good but hundreds and hundreds times a day!

 

[MarioMasher]

It will either stop or die down to nothing, or you will grow so used to it you won't really care anymore. One way or another it always gets better.

 

[PuppetPup]

It could go away. don't lose hope Just remember everyone is different. When someone says that you are stuck with it for life, that is just their lot, not yours. Have a good one.

 

[NovaMaverick]

30 years, off and on (see my other/first post here on this forum).Started when I was 14

 

[Kangarudin]

Thanks for all those reply's people. It's true that as long as you twitch, you will always have ALS in your mind. Not if you twitch for 10 years, I guess, but when you twitch 1 or 2 years like me, you do. I still hope it will stop someday, but I don't think it will...

 

[BFSDiner]

It stopped for me. Im starting to lose track now how long I had it, but it was I believe about a year. Maybe year and a half. But I made major, major lifestyle changes. I noticed that after certain meals, my symptoms would increase a bit. If I had some calm before I ate, within an hour or three, I'd be twitching like crazy. Then it would seem to reduce a certain percentage as the hours rolled by. It didn't make any sense. Why would my footlong at Subway make me twitch more? Nonsense, of course But certain meals did kick things up a notch. So I started an elimination diet, determined which things (including drinks) didn't trigger an up-tick in symptoms, and added them to my "blacklist".Ate only the things which didn't illicit a response. Then began a whole-lifestyle anti-inflammatory pursuit. Not just dietary but emotional, physical therapy related, and mental. Good luck-B-