Living with BFS & Nerve Damage

jayjayjay

Active member
I have suffered with BFS for over a year now, more so in my legs. They started after I herniated a disc in my back. I was so scared of ALS I had the EMG testing and it came back fine. It did show that my left leg had nerve damage.... The twitching can get really bad sometimes, I will feel it all up and down my legs. My worry lately though has been possible MS? I go back to my neurologist next week to discuss. Question for you all though, do any of you have severe sleep starts or night jolts? I know many of us get the big jolt when falling asleep which can be very normal. But I also tend to twitch in my sleep. Like Jerk... my arm will jerk, sometimes my belly, my leg. My daughter actually woke me up one night and asked if I was ok. So weird! and super scary of course. The big ones that wake me up, ugh I hate those. But these little ones that aren't waking me have my mind wondering what it could be. I know I haven't always done this?
 
I have Night jerks every Night , both Big and small ones. I also,have Them in my jaw , these worries me most. I am going to see a neuro next week
 
I go to see my Nuero soon as well. It's super scary. I will even wake up with spastic muscles in my calf. Just scary stuff and of course my mind goes right to MS. Hate it
 

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