I have suffered with BFS for over a year now, more so in my legs. They started after I herniated a disc in my back. I was so scared of ALS I had the EMG testing and it came back fine. It did show that my left leg had nerve damage.... The twitching can get really bad sometimes, I will feel it all up and down my legs. My worry lately though has been possible MS? I go back to my neurologist next week to discuss. Question for you all though, do any of you have severe sleep starts or night jolts? I know many of us get the big jolt when falling asleep which can be very normal. But I also tend to twitch in my sleep. Like Jerk... my arm will jerk, sometimes my belly, my leg. My daughter actually woke me up one night and asked if I was ok. So weird! and super scary of course. The big ones that wake me up, ugh I hate those. But these little ones that aren't waking me have my mind wondering what it could be. I know I haven't always done this?