Living with BFS: Is Recovery Possible?

[twitchjake]

I wonder if I have to live all my life with BFS or if it will go away.
How many people had BFS in the past and now have no twitches at all?
My neurologist says that it will go away, but it's more than 1 year I twitch and I really want to know the truth!

 

[fractlFrenzy]

My Neurologist also says it will stop sometime although he says he has had patients twitch for 10 years plus. On other health sites people have said they have stopped. You probably won't get anyone first hand here saying they stopped because if it stopped this would probably be the last site they would visit they would be enjoying life.

I am at just over a year now and I hope that I will stop as well but I think we need to be resigned for more twtiching and perhaps when we stop hoping for it that is when it will stop.

 

[Tkplrjtrim]

I am 31 years old.

I first started twitching when I was 14 years old. My chest muscle twitched for a couple of weeks. Then it just stopped. Then at the age of 28 it started again. This time in my calf muscles. I freaked out a bit because it was like I had bugs under my skin but with no internet to point to ALS etc I didn't really worry about it. That went away after a few weeks also. Then about 8 months ago I noticed my middle finger twitching every so often. But that stopped about a week later. Had a very tiring flight from New Zealand to Ireland (took about 33 hours - 4 different planes). I had a lot on my mind during that time and noticed my finger starting to twitch. This started to scare me (as now I had the internet to look things up with) and I found something along the lines of Parkinsons. But a few days later it dissappeared. 6 weeks later I made the trip home again and they started up again. This time for about six weeks. Once again they stopped.

A few weeks later I mentioned them to my doctor as I was curious as to what had caused them. (I was twitch free at the time). He mentioned ALS and BOOM!!! that night they were back with an unbelievable frequency.

After becoming more aware of the benign nature of my symtoms I don't worry about them any more. And my twitches seem to be getting better.

I will let you know if they stop again!